Daniel’s Life Journey

Daniel’s Life Journey ****SEE PINNED POST****

Forever GratefulUntil my son required ECMO, I didn't know it existed. My son was born March 2019 and was put on ECMO Apr...
05/09/2026

Forever Grateful

Until my son required ECMO, I didn't know it existed. My son was born March 2019 and was put on ECMO April 2019 because he caught Pertussis (Whooping Cough) He was decanulated June 2019 and remained inpatient until October 2019. Since this time, he has overcame A LOT and has became very independent. He was diagnosed with Autism & ADHD combined, so he's definitely a handful, but we're learning each day on how to manage and work with him and navigate with him.

Not only am I forever grateful that ECMO exists, but I am also forever grateful for Minneapolis Children's Hospital as that's where he was inpatient and received his care!

03/20/2026

New decor in his bathroom and bedroom

03/20/2026

Singing "Happy Birthday"

03/20/2026

I think it's safe to say that he LOVED his decorations!!

7th Birthday was a success! He LOVED his Monster Jam! Looking forward to watching him grow even more in this next year! ...
03/20/2026

7th Birthday was a success! He LOVED his Monster Jam! Looking forward to watching him grow even more in this next year! 💙🎁🎂🎈🎉

WE HAVE A 7 YEAR OLD!!!! 🎉🎈🎂🎁💙
03/19/2026

WE HAVE A 7 YEAR OLD!!!! 🎉🎈🎂🎁💙

Went to lunch the other day and Daniel was determined to use chopsticks for his Pho. Proud momma over here 🥰🥰
02/24/2026

Went to lunch the other day and Daniel was determined to use chopsticks for his Pho. Proud momma over here 🥰🥰

Daniel had his first cast change and took it like a champ!
02/08/2026

Daniel had his first cast change and took it like a champ!

Daniel did so good with his injection and casting! He's been doing great walking in them already. Not sure if he'll do i...
01/29/2026

Daniel did so good with his injection and casting! He's been doing great walking in them already. Not sure if he'll do it daily but one thing he did was ask if he could take the cast off. Otherwise, he seems to be doing good. Now to see how he does in school.

01/28/2026

As you go to sleep tonight and wake up in the morning, please lift Daniel in your prayers. Because of his sickness in the past, it led to muscle weakness/tightness in his legs/ankles/feet. He has been in AFO ankle braces for quite sometime and now we have met with a doctor from Physical Medicine and Rehabilitation that suggested Botox followed by 4 weeks of serial casting and a new set of braces. We're in hopes this will help him. 🙏💙🙏💙🙏 thank you all in advance for your love and support.

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Rogers, MN
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