International Pemphigus & Pemphigoid Foundation

International Pemphigus & Pemphigoid Foundation The IPPF is a patient advocacy and support organization for those suffering from pemphigus/pemphigoid.

Our most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives. To help fulfill those objectives, we:

* offer a physician referral service to help patients find the best medical care possible;
* pro

vide a number of valuable and popular patient support services;
* publish informational brochures, pamphlets and a quarterly newsletter with news, useful information, medical updates, personal stories and more;
* run an annual Patient/Doctor meeting;
* collaborate with pharmaceutical companies on the leading edge of treating these diseases;
* provide up-to-date information about current clinical trials and research on the disease in which patients may be able to participate;
* maintain relationships with Congressional representatives and others who may be able to encourage or provide research funding. To ensure that we are able to provide the most current information about the disease and treatments, we have developed and continue to maintain close relationships with doctors and leaders in the medical community, including the National Institutes of Arthritis, Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health, and the American Academy of Dermatology (AAD). The IPPF is also an active member of a number of other organizations that help us fulfill our role as patient advocates and enable us to have more impact as we work together: National Organization for Rare Diseases (NORD), Coalition of Skin Diseases (CSD), American Autoimmune Related Diseases Association (AARDA), and the National Coalition for Autoimmune Patient Groups (NCAPG).

We’re kicking off another inspiring day of learning and sharing. Let’s connect, collaborate, and turn ideas into action!...
08/30/2026

We’re kicking off another inspiring day of learning and sharing. Let’s connect, collaborate, and turn ideas into action!

Proud to spotlight our Gold Sponsor KabaFusion presenting “More Than a Diagnosis”. We’re grateful for their support and ...
08/29/2026

Proud to spotlight our Gold Sponsor KabaFusion presenting “More Than a Diagnosis”. We’re grateful for their support and commitment to making a difference!

Nutrition plays a vital role in health, well-being, and quality of life. At the IPPF Conference, Dr. Kyle Amber is discu...
08/29/2026

Nutrition plays a vital role in health, well-being, and quality of life. At the IPPF Conference, Dr. Kyle Amber is discussing diet and nutrition.

And we’re off! Kicking off an exciting conference filled with fresh ideas, inspiring conversations, and plenty of opport...
08/29/2026

And we’re off! Kicking off an exciting conference filled with fresh ideas, inspiring conversations, and plenty of opportunities to connect and learn.

A heartfelt thank you to our Gold IPPF Patient Education Conference Sponsors, KabaFusion and Sanofi + Regeneron. Your ge...
08/29/2026

A heartfelt thank you to our Gold IPPF Patient Education Conference Sponsors, KabaFusion and Sanofi + Regeneron. Your generous support helps make meaningful connections, education, and conversations possible. We’re so grateful for your commitment to the IPPF community and to improving the lives of patients everywhere.

Join us at the IPPF Patient Education conference as Dr Sinha & Dr Seiffert discuss epigenetics in P/P.
08/28/2026

Join us at the IPPF Patient Education conference as Dr Sinha & Dr Seiffert discuss epigenetics in P/P.

Time to tune into hear Dr. Brittney Schultz discuss From Origins to Symptoms: What Causes the disease.
08/28/2026

Time to tune into hear Dr. Brittney Schultz discuss From Origins to Symptoms: What Causes the disease.

There are no silly questions at the IPPF Conference - your questions can shape the conversation! Be curious. Speak up. A...
08/28/2026

There are no silly questions at the IPPF Conference - your questions can shape the conversation! Be curious. Speak up. Ask the question.

We’re kicking off the IPPF Conference! Looking forward to connecting with inspiring people, sharing ideas, and shaping w...
08/28/2026

We’re kicking off the IPPF Conference! Looking forward to connecting with inspiring people, sharing ideas, and shaping what’s next together.

The IPPF and the Canadian Skin Patient Alliance (CSPA )is inviting people living with bullous pemphigoid (BP), as well a...
07/27/2026

The IPPF and the Canadian Skin Patient Alliance (CSPA )is inviting people living with bullous pemphigoid (BP), as well as family members and caregivers, to take part in a short survey about their experiences.

Living with BP can affect many aspects of daily life, and we want to better understand the challenges, concerns, and priorities of the people most affected by this condition. As new treatments are being considered in Canada, hearing directly from patients and caregivers is an important way to ensure that real-world experiences are part of the conversation.

The survey takes about 10 minutes to complete and is available in English and French. As a thank you, participants will be entered into a draw to win one of two $50 gift cards to a retailer of their choice.

To participate, please scan the QR code or use the links below:
English: https://forms.cloud.microsoft/r/bGLRmYwRbT
French: https://forms.cloud.microsoft/r/4ULdGY7kG0

Our open surveys page can be found here:
English: https://www.canadianskin.ca/research/open-surveys
French: https://apropeau.ca/recherche/enquetes-en-cours

Your voice can help us better represent the needs of the BP community and support efforts to improve access to care and treatment.

Address

915 Highland Pointe Drive, Suite 250
Sacramento, CA
95833

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+19169221298

Website

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