Chiari Queens - Love For Austyn, Amelia, Aubrey, & Addy

08/21/2026

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💜🌊✨ Niagara Falls & Western New York Are Lighting Up Purple for CCWAA26! ✨🌊💜

September 25, 2026
The Peace Bridge will be illuminated in PURPLE!

September 26, 2026
Buffalo Botanical Gardens will be glowing PURPLE!

And from 10:00–10:15 PM EDT, Niagara Falls will light up PURPLE in support of the Chiari community!

You can watch the stunning Niagara Falls illumination from anywhere in the world at https://www.earthcam.com/world/canada/niagarafalls/?cam=niagarafalls_str&fbclid=IwY2xjawT1OVBwZG9mAWV4dG4DYWVtAjEwAGJyaWQRMVRXMDRxQ1BJSTNKOHlqcGlzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeyFv7c9cLuagxKWGj6Awyi8NDOrDEkwbIYH8OKs7HncqH-pgaPYPk-YOqoTY_aem_2T0CtnjIeGcoNyDOQRHyCg🌎📲

A huge thank you to Haley and her mom, Agnes Starr, for working so diligently to make this incredible display of support happen each year. We are also incredibly grateful to the Niagara Falls Illumination Board for their continued support of our mission. 💜

Please note that the shade of purple at Niagara Falls may vary due to weather conditions and mist. It may appear more bluish or pinkish, but no matter the shade, it’s always a beautiful show of support for Chiari awareness! 🎗️💜

Three incredible landmarks. Two nights. One powerful message.💜

Let’s light up the night for Chiari awareness and CCWAA26! 💪💜

05/12/2026

04/16/2026

Please say a prayer for Amelia!! She was just taken back for surgery to remove her tonsils and adenoids!!

03/31/2026

🦓💙

03/19/2026

Austyn celebrating her 100th day of Preschool today🤣

02/25/2026

What a difference ONE YEAR can make!!!! 💜💜

A year ago today we were in NYC and Austyn was having her 2nd Chiari Malformation Decompression surgery.

Today she is living her best life!!! It’s not perfect but the difference in this child from before her surgeries is incredible. She is a different kid and she brings so much joy(and sassiness) to everyone who knows her.

We spent today at Great Wolf Lodge(we have appointments for the girls and a sleep study for Amelia tonight while we are here. Plus extremely cheap prices for a room 😂) but we are thankful to have this kind of day with the girls instead of where we were a year ago!!!