Finlee June’s Journey

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Finlee June’s Journey Hi, I’m Finlee June! Born w/ a rare genetic condition: Treacher Collins Syndrome. Let’s be friends, watch me grow!

10/12/2026
Our sweet angel baby just went back. Please keep every single one of the prayers flowing this way 🤍
10/12/2026

Our sweet angel baby just went back. Please keep every single one of the prayers flowing this way 🤍

Tonight, this big girl took her softband hearing aids off for the very last time. That is SO incredibly bittersweet to t...
10/12/2026

Tonight, this big girl took her softband hearing aids off for the very last time. That is SO incredibly bittersweet to type out 🥺

Tomorrow is the day. The day we no longer have to worry about the band being too tight, her hair getting stuck in it, hiding from the rain, dead batteries (or the even scarier of the two… MISSING batteries!), hearing aids popping off, or getting whacked with the thing like a pair of nunchucks when we’re on her last nerve 😂

It feels like another missing piece is finally being placed into our delicate puzzle. We’ve packed her suitcase full of all the wonderful goodies you guys gifted her, ready for a morning full of joy before our world changes once again 🩷

As always, thank you for joining us on this ever-changing journey. I feel so honored to have a crew of such wonderful people to share our updates with and report back to every step of the way. Your thoughts, prayers, and love mean more than you know. We’re carrying all of that with us into tomorrow 🥹💕

(Finny June’s big girl bedroom is still a work in progress, but we’re getting there!)

The only things that make the waiting worth it 😜We are suckers for sensory play! Pre-op appointment completed! ✅NeeDoh O...
10/07/2026

The only things that make the waiting worth it 😜

We are suckers for sensory play! Pre-op appointment completed! ✅

NeeDoh Official Clickeez RMS USA

But how crazy that this feels like yesterday and a million moons ago all at once 🥺 In one week, we reach the end of anot...
10/06/2026

But how crazy that this feels like yesterday and a million moons ago all at once 🥺 In one week, we reach the end of another huge era in Finny June’s journey… Her hearing aids are getting implanted.

When you were born, they told us your head was too small for a hearing test. We fought with everything we had in us for those hearing aids because we knew good and well that sweet, tiny head of yours wasn’t going to reach the size requirements for testing anytime soon. You literally didn’t have external ears… what more proof did they need?

Three months down the road, we were blessed to be in Alison Mitchell’s audiology room, putting on a hearing aid for the first time. It was a loaner that was the size of you, and you despised it for quite some time, but we trudged through.

You tossed a full set into the botanical garden in New York, never to be found again. You lost another set in the aisles of Target that was later found on the bow rack. You’ve swung a set at us in retaliation a few times, too. 😂 We’ve had eaten-battery scares, hearing aid hide-and-seek (we’ve been down to just one for months now 😅), and times you’ve taken them off because, “You can’t hear what I’m saying now.”

We’ve treaded water lightly because I want you to hear me when you’re near it and they aren’t waterproof. We’ve steered away from rain dance parties and turned our backs on sprinklers for the sake of keeping those things safe.

But come Monday, all those worries float away. 🥺

It’s so bittersweet. This journey. Every piece of it.

I’ve prayed endlessly for this road, these opportunities, this childhood for Finlee. To see it come to life is unexplainable.

Please keep our family in your prayers as we re-enter the hospital this time next week. We have fine-tuned our anesthesia plans for a better outcome for this surgery. I am hopeful and grateful. I have loved every single inch of Finlee throughout this journey, every band, every bow, every little piece of what made her uniquely her. But to see my sweet baby girl without anything across her head is going to hit different 🤍

The sweet gifts you all sent for the last procedure helped more than I can even say. I saved them for the pre-

When you have three kids, getting just two of them out of the house feels like having one kid. 😜Since moving here, Finle...
10/04/2026

When you have three kids, getting just two of them out of the house feels like having one kid. 😜

Since moving here, Finlee has been quite terrified of the beach. The first trip we took, she slipped, got water near her trach opening, and called it quits. She would barely even venture toward the water without our hands in hers.

Today, we got to go back with a fully closed and healed trach hole, and she was like a new girl! 🥹🥹🥹

We still don’t let her go in the water without us, but today she was willing to let go of our hands and wave jump!

Maylee has also been doing swim lessons, and she was out there SWIMMING!

My heart could literally explode with joy. God is so good! 🤍

WHAT. A. WEEKEND. 🥹First time our crew entered into Swamp territory as a full fam! 🐊🧡💙We made it to the SEC Nation game ...
09/30/2026

WHAT. A. WEEKEND. 🥹

First time our crew entered into Swamp territory as a full fam!

🐊🧡💙

We made it to the SEC Nation game day event, and I swear to you, it felt like they were our guests and not vice versa! 😂

The cheerleaders were kinder than kind… offering to take pictures with our babies and even offering their pom poms for them to hold. Waving at Albert and Alberta, our girls will remember this FOREVER. Security moved us to the front of the Paul Finebaum Show. Maylee was OVER THE MOON being in the mix, Finlee was officially all peopled out by noon 🤣

It was such a sweet experience! Go Gators! 🐊🧡💙🥹

University of Florida UF Club Cheerleading Paul Finebaum SEC Network Southeastern Conference Tim Tebow

Our big brave beautiful girl is suited up and ready to go! She has been ecstatic all morning about the goodies she’s rec...
09/16/2026

Our big brave beautiful girl is suited up and ready to go! She has been ecstatic all morning about the goodies she’s received, she hasn’t stopped playing yet. Trach stoma closure coming so soon!

Thank you guys so stinking much for thinking of her and showering her with so much love. Please send all of the prayers our way this morning 🧡

Pre-anesthesia appointment completed! ✅All of the ducks are in a row…. A full plan is in place. Wednesday at 11AM, our s...
09/14/2026

Pre-anesthesia appointment completed! ✅

All of the ducks are in a row…. A full plan is in place. Wednesday at 11AM, our sweet butter bean will have her trach hole closed.

The end of an extremely exhausting (but absolutely necessary) era is so near 🥹

Feared for my life a little bit yesterday when the 2-year-old had a hammer in his hand 😂🔨 But we all survived, completed...
09/13/2026

Feared for my life a little bit yesterday when the 2-year-old had a hammer in his hand 😂🔨

But we all survived, completed 1 of 3 haunted houses LOL and earned another Lowe’s kids club badge! 🤩🏅

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Saint Augustine, FL

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