A Rare Journey With Jenna

A Rare Journey With Jenna I have gone to church, seen a guru and had a shaman cleanse me. I have tried everything from ashwagandha to crystals to scorpions.

I am willing to be a guinea pig for anything that might give me my life back. Living with doesn't just change physical attributes; it changes who you are. I used to be mother, a hard worker, an avid runner and camper. After 5 years of living with rare disease, I am still learning who I am now. I am unemployed, using mobility devices and fighting illness. I have learned to be okay with

that. When I forget, God sends a reminder. He has been with me through it all. He is faithful and He will help me use this for good. Today, I am a child of God, an advocate for rare disease and a writer. Thank you for joining me on this rare journey of transformation. I pray that this is helpful in some way.

https://youtube.com/shorts/sSg6Hg8jUek
09/27/2025

https://youtube.com/shorts/sSg6Hg8jUek

While the video shows a wolf spider tossed about a den of scorpions; I'm actually describing yesterday's procedure of lumbar transforaminal epidural steroid ...

If you have found your way to this post, I want to thank you for joining me on this journey with rare disease. Let's rai...
09/26/2025

If you have found your way to this post, I want to thank you for joining me on this journey with rare disease. Let's raise awareness about Let's advocate for ourselves and others! Find out how God and scorpions really show up for me! Feel free to message me because I look forward to sharing with you!
A bit about me: Mother of two young adults and a dog named Sundae! I am a digital creator, a writer and an advocate for rare disease; my disease specifically is I was diagnosed 06/30/2022 and I have been searching for healing and knowledge ever since. There have been several victories made but I still have the disease and so, this Rare Journey With Jenna continues!

Please don't forget to subscribe, like and share both here and youtube at

Wow. This past post really depicts the early days of this weird sensation in my legs that I now know as Dercum’s Disease...
09/26/2025

Wow. This past post really depicts the early days of this weird sensation in my legs that I now know as Dercum’s Disease. I’m glad I kept running and I’m glad I made this post; as it serves a purpose today.

Hey Guys! I'm starting to dive into each diagnosis I have received; beginning with a a deformity in the lower half o...
08/05/2025

Hey Guys! I'm starting to dive into each diagnosis I have received; beginning with a a deformity in the lower half of the leg, involving the knee and hip joints as well. This video includes a cool story about my son receiving the same diagnosis. Check this one out!
(Updated post with actual intended video.)🤦🏾‍♀️

This is the first episode detailing my first rare diagnosis of Blount's disease. It is a rare condition in which a person is born with a deformity in their l...

https://youtube.com/shorts/z04ZYjOJ35Y
07/30/2025

https://youtube.com/shorts/z04ZYjOJ35Y

I tried for two very important appointments on consecutive days. I was fatigued out after the epidural spinal injection and have barely left my bed since.

Here we go! Happy Sunday everyone! I pray you enjoy this video and anticipate more to come! Please subscribe, like and s...
07/27/2025

Here we go! Happy Sunday everyone! I pray you enjoy this video and anticipate more to come! Please subscribe, like and share!

I'm sure everyone I know watching this is thinking, 'why is she doing this'? This is why. I cannot, will not, stop trying to find something to do with my lif...

Just a "hello" and introduction. "Practice", if you will.
07/23/2025

Just a "hello" and introduction. "Practice", if you will.

This is an introduction of myself and my specific rare diseases that I will later be detailing in upcoming videos.

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San Antonio, TX

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