National Council on Severe Autism

National Council on Severe Autism Pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism.

We are committed to improving the long-term welfare of individuals, families and caregivers affected by severe forms of autism and related neurodevelopmental disorders. To that end, we

โ€ข ๐—˜๐—ฑ๐˜‚๐—ฐ๐—ฎ๐˜๐—ฒ ๐˜๐—ต๐—ฒ ๐—ฝ๐˜‚๐—ฏ๐—น๐—ถ๐—ฐ about these disabilities, and how they require special attention and services.
โ€ข ๐—ฃ๐—ฟ๐—ผ๐˜ƒ๐—ถ๐—ฑ๐—ฒ ๐—ฎ ๐—ฝ๐—น๐—ฎ๐˜๐—ณ๐—ผ๐—ฟ๐—บ for think tanks and serious discourse addressing policy and services.
โ€ข ๐—˜๐—ฑ๐˜‚๐—ฐ๐—ฎ๐˜๐—ฒ ๐—ฝ๐—ผ๐—น๐—ถ๐—ฐ๐˜†๐—บ๐—ฎ๐—ธ๐—ฒ๐—ฟ๐˜€

about the impact of legislation and policy on our vulnerable, growing, and often overshadowed population.
โ€ข ๐—ฃ๐—ฟ๐—ผ๐—บ๐—ผ๐˜๐—ฒ ๐—ฟ๐—ฒ๐˜€๐—ฒ๐—ฎ๐—ฟ๐—ฐ๐—ต into therapeutics, neurobiology, and causes of severe forms of autism and related disabilities.
โ€ข ๐—ฃ๐—ฟ๐—ผ๐—บ๐—ผ๐˜๐—ฒ ๐—ฎ๐˜‚๐˜๐—ต๐—ฒ๐—ป๐˜๐—ถ๐—ฐ ๐—ฎ๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ of individuals, families, and caregivers affected by severe forms of autism by giving voice to their realities and needs. The nonprofit NCSA is the nation's leading voice pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders. More information: www.NCSAutism.org



๐—–๐—ผ๐—บ๐—บ๐˜‚๐—ป๐—ถ๐˜๐˜† ๐—š๐˜‚๐—ถ๐—ฑ๐—ฒ๐—น๐—ถ๐—ป๐—ฒ๐˜€
โ€ข Focus discussions on severe autism and related support needs
โ€ข Respect the lived experiences of families and caregivers
โ€ข Acknowledge the distinct challenges of severe autism versus other parts of the spectrum
โ€ข Maintain civil discourse even in disagreement
โ€ข Share personal experiences respectfully and constructively
โ€ข These guidelines aim to create a supportive, focused space for our community.



๐—ง๐—ต๐—ฒ ๐—ก๐—ฎ๐˜๐—ถ๐—ผ๐—ป๐—ฎ๐—น ๐—–๐—ผ๐˜‚๐—ป๐—ฐ๐—ถ๐—น ๐—ผ๐—ป ๐—ฆ๐—ฒ๐˜ƒ๐—ฒ๐—ฟ๐—ฒ ๐—”๐˜‚๐˜๐—ถ๐˜€๐—บ (๐—ก๐—–๐—ฆ๐—”) ๐—บ๐—ฎ๐—ถ๐—ป๐˜๐—ฎ๐—ถ๐—ป๐˜€ ๐—ฎ ๐˜‡๐—ฒ๐—ฟ๐—ผ-๐˜๐—ผ๐—น๐—ฒ๐—ฟ๐—ฎ๐—ป๐—ฐ๐—ฒ ๐—ฝ๐—ผ๐—น๐—ถ๐—ฐ๐˜† ๐—ณ๐—ผ๐—ฟ ๐—ฐ๐—ผ๐—ป๐˜๐—ฒ๐—ป๐˜ ๐˜๐—ต๐—ฎ๐˜ ๐˜‚๐—ป๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ถ๐—ป๐—ฒ๐˜€ ๐—ผ๐˜‚๐—ฟ ๐—บ๐—ถ๐˜€๐˜€๐—ถ๐—ผ๐—ป ๐—ผ๐—ณ ๐˜€๐˜‚๐—ฝ๐—ฝ๐—ผ๐—ฟ๐˜๐—ถ๐—ป๐—ด ๐—ถ๐—ป๐—ฑ๐—ถ๐˜ƒ๐—ถ๐—ฑ๐˜‚๐—ฎ๐—น๐˜€ ๐˜„๐—ถ๐˜๐—ต ๐˜€๐—ฒ๐˜ƒ๐—ฒ๐—ฟ๐—ฒ ๐—ฎ๐˜‚๐˜๐—ถ๐˜€๐—บ ๐—ฎ๐—ป๐—ฑ ๐˜๐—ต๐—ฒ๐—ถ๐—ฟ ๐—ณ๐—ฎ๐—บ๐—ถ๐—น๐—ถ๐—ฒ๐˜€. Our moderators have full discretion to take immediate action against any violations of our community guidelines, including but not limited to:

โ€ข Harassment of families and caregivers
โ€ข Dismissal or minimization of severe autism challenges
โ€ข Hate speech or discriminatory comments
โ€ข Trolling or intentionally disruptive behavior
โ€ข Spam or promotional content

While warnings may be issued, moderators are not required to provide prior notice before taking action. Comments may be removed and users may be banned immediately based on the severity of the violation. This discretion is necessary to maintain a safe, supportive environment for our community.

๐—•๐˜† ๐—ฝ๐—ฎ๐—ฟ๐˜๐—ถ๐—ฐ๐—ถ๐—ฝ๐—ฎ๐˜๐—ถ๐—ป๐—ด ๐—ถ๐—ป ๐˜๐—ต๐—ถ๐˜€ ๐—ฝ๐—ฎ๐—ด๐—ฒ, ๐˜†๐—ผ๐˜‚ ๐—ฎ๐—ฐ๐—ธ๐—ป๐—ผ๐˜„๐—น๐—ฒ๐—ฑ๐—ด๐—ฒ ๐—ฎ๐—ป๐—ฑ ๐—ฎ๐—ฐ๐—ฐ๐—ฒ๐—ฝ๐˜ ๐˜๐—ต๐—ฒ๐˜€๐—ฒ ๐˜๐—ฒ๐—ฟ๐—บ๐˜€. All moderator decisions are final. NCSA reserves the right to modify these guidelines at any time to protect our community members.

Filmmaker Casey Blackburn is seeking videos and images from families showing challenging side of severe autismโ€”the stimm...
06/14/2026

Filmmaker Casey Blackburn is seeking videos and images from families showing challenging side of severe autismโ€”the stimming, seizures, aggression, self harm. etc.โ€”for a montage.

The film Hear Me will use very short clips from these videos (no more than a few seconds), so even brief moments in a video are useful.

Anyone willing to share only needs to go to https://hearmemovie.com and click "Share your story" on the main page. Thereโ€™s also more information about the film there.

Anyone who contributes will be acknowledged in the credits (unless they prefer to remain anonymous) and will get a sneak preview of the film before it premieres at festivals.

A short film on the silent crisis facing parents and caregivers of severe autism.

Starts top of the hour. Come join us!
06/11/2026

Starts top of the hour. Come join us!

Registration Open! Part Two: June 11
Sign up here: NCSAutism.org/proof2

From the article: Kentucky families raising children with profound autism gathered recently to demand answers from state...
06/10/2026

From the article:

Kentucky families raising children with profound autism gathered recently to demand answers from state officials about a crisis playing out quietly in homes across the commonwealth โ€” children so severely impaired they require residential care that doesn't exist in Kentucky, leaving parents to send them hundreds of miles away or, in some cases, surrender custody to the state just to access help.

"There is such a negative feeling among many legislators that Medicaid is overspending, covering people who don't need the services,"..... She said there are 17,000 Kentuckians on waiting lists for Medicaid home and community-based waivers. State lawmakers this year approved funding for 405 new slots.

Hundreds of families navigate a broken system largely on their own โ€” and they're running out of options.

Agenda for the 2026 NCSA Authentic Awareness Autism Assembly - Day 1 (July 14th). We have an incredible line-up and a fu...
06/07/2026

Agenda for the 2026 NCSA Authentic Awareness Autism Assembly - Day 1 (July 14th). We have an incredible line-up and a full day packed this year.

Day 2 (June 15th), we head to Capitol Hill to meet with our elected officials and advocate for the needs of the severe and profound autism community.

We even threw in an extra optional community fun day on June 16th at the Smithsonian National Zoo if you'd like to stay and unwind with new and old friends this year before your travels back home.

Grab your tickets at NCSAutism.org/dc26

06/06/2026

โ—๏ธNotice: Everyone who is registered for D.C. should have received an email tonight with details on trainings and more. If you did not, please contact Jackie at [email protected]. Some emails bounced with misspellings, and we want to ensure all who are registered have access to the announcements and trainings we'll be sending out as we near the event in Washington, D.C.

We built a lodging share board for DC. If you need a bed for the nights of July 13, 14, or 15, post your need. If you ha...
06/06/2026

We built a lodging share board for DC. If you need a bed for the nights of July 13, 14, or 15, post your need.

If you have extra room at the Embassy Suites by Hilton DC Convention Center and are willing to share, offer your extra space.

The board updates live, and you can mark your post Filled once you have matched.

Share a room, split a cost, help a fellow caregiver make the trip.
Post your need or your space: https://ncsautism.org/dc26-lodging-share

Replay of today's webinar: https://youtu.be/ipP1YrQT6HwThanks for the great discussion! Email Leslie at leslie.neely@uts...
06/05/2026

Replay of today's webinar: https://youtu.be/ipP1YrQT6Hw

Thanks for the great discussion! Email Leslie at [email protected] with inquiries to participate in their research.

Individuals with profound autism often engage in behaviors such as ...

Happening NOW! Come join us. ๐Ÿ™‚ NCSAutism.org/problem-behavior
06/05/2026

Happening NOW! Come join us. ๐Ÿ™‚ NCSAutism.org/problem-behavior

Free NCSA webinar, Friday, June 5, 10:30am to noon ET.

"Is There a Problem with 'Problem Behavior' in Autism Research?" Dr. Michael Kranak (Oakland University) and Dr. Leslie Neely (UTSA - The University of Texas at San Antonio) examine how the policing of language shapes scientific conclusions, clinical priorities, and whose voices are heard when families of individuals with profound autism are largely absent from these debates.

Live Q&A on Zoom.

Register: NCSAutism.org/problem-behavior

Tomorrrow! Register today. NCSAutism.org/problem-behavior
06/04/2026

Tomorrrow! Register today. NCSAutism.org/problem-behavior

Free NCSA webinar, Friday, June 5, 10:30am to noon ET.

"Is There a Problem with 'Problem Behavior' in Autism Research?" Dr. Michael Kranak (Oakland University) and Dr. Leslie Neely (UTSA - The University of Texas at San Antonio) examine how the policing of language shapes scientific conclusions, clinical priorities, and whose voices are heard when families of individuals with profound autism are largely absent from these debates.

Live Q&A on Zoom.

Register: NCSAutism.org/problem-behavior

"Last year alone, at least 97 children with autism were found dead after wandering; 84 drowned. Despite the rising toll ...
06/01/2026

"Last year alone, at least 97 children with autism were found dead after wandering; 84 drowned. Despite the rising toll in pools, lakes, ponds and other bodies of water, prevention efforts have struggled to keep pace. Most drownings happen in minutes, long before first responders, drones, helicopters or K-9 teams can arrive.

Now, the National Center for Missing & Exploited Children (NCMEC) is recommending a simple but potentially life-saving idea: get urgent alerts directly to the people already nearby before first responders can reach them, with one clear directive: SEARCH WATER NOW."

For many families in the autism community, the arrival of warm weather brings a familiar fear:...

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