Spina Bifida Association of New York State

09/10/2026

Your vote is your voice, and the disability community deserves to be heard.

Today, the Spina Bifida Association of New York State joined HeadCount and Living Resources New York to help people with disabilities prepare to participate in the upcoming election.

From accessibility and healthcare to transportation, services, and community resources, decisions made by elected leaders can directly affect the lives of people with disabilities.

That is why participation matters. Nothing about us without us.

Thank you to everyone who came out today and took the time to make sure their voter information was ready for Election Day.

09/10/2026

09/10/2026

📚 Back-to-school preparation includes understanding the supports available for your child.

The Spina Bifida Association of New York State's Toolkit for Educators: Parent Supplement explains that an Individualized Education Program (IEP) is a written individual educational plan developed for a child with a disability who receives special education services.

An IEP includes:
• Assessment information, including test scores in different areas of functioning.
• An overview of your child's present level of performance.
• Your child's strengths and needs.
• Goals and objectives designed to address those needs.

The IEP is developed by a team that may include:
• Parents
• Professionals who work with the child
• The child, in some cases
• School team members involved in supporting the child's education

Your participation as a parent is an important part of the IEP process.

Learn more about IEPs and the educational process in the Toolkit for Educators: Parent Supplement:https://sbanys.org/wp-content/uploads/2024/07/SBANYS-Toolkit-for-Educators-Parent-Supplement.pdf

09/10/2026

Your Dare to Dream Gala ticket gives you more than a seat at the table.

It gives you an evening filled with great food, entertainment, auctions, recognition, and time with the Spina Bifida community.

Your ticket includes:
• Cocktail hour
• A three-course dinner
• Access to the silent and live auctions
• Musical entertainment by Jeff Brisbin
• Awards and recognition ceremonies
• Four hours of celebration and community at one of SBANYS’s biggest events of the year

Join us for the 14th Annual Dare to Dream Gala and make November 7 a night worth looking forward to.

Saturday, November 7, 2026
5:00 PM to 9:00 PM
Hilton Garden Inn
235 Hoosick St., Troy, NY 12180

Purchase your ticket or table by November 3: https://sbanys.org/event/dare-to-dream-gala/

SBANYS reserves a hotel block for traveling guests to receive a reduced rate of $109/night. If you are interested in the room block, email [email protected] for more details. Email [email protected] for more details.

We gratefully thank our sponsors: Albany Med Health System, Socha Plaza, Times Union, Rivers Casino & Resort Schenectady, Equal First Aid, Fenimore, 1st National Bank of Scotia, infoEd Global, First New York Federal Credit Union, Orbitalfire, KeyBank, Rich & Terri Sleasman, Kevin & Vanessa Chamberlain, and Dave & Karen Wentworth.

09/09/2026

⛳ Tee off for a meaningful cause at the 9th Annual Eric Crow Memorial Golf Tournament!

Join us Saturday, September 19 at Eagle Crest Golf Course for a day dedicated to remembering Eric Crow and supporting the Spina Bifida Association of New York State.
Golfers can look forward to a scramble tournament, contests, raffles, prizes, breakfast, lunch at the turn, dinner, and more.

• Player Registration: $125
• Foursome: $500
• Dinner Only: $35

Contests include closest to the pin, longest drive, and a putting contest. There will also be raffle baskets and a 50/50.

📅 Saturday, September 19, 2026
📍 Eagle Crest Golf Course, 104 Route 146A, Clifton Park, NY 12065
⏰ Registration and breakfast: 7:00 to 8:00 AM
⛳ Tournament start: 8:00 AM

Registration and payment are due by September 12.

Register and learn more: https://ecmgt.netlify.app

Come spend the day with us as we honor Eric’s legacy.

09/09/2026

🚨 TOMORROW IS THE DAY! 🚨

Don't miss our Voter Registration Drive tomorrow, Thursday, September 10, from 11:00 AM to 2:00 PM!

Stop by 300 Washington Ave Ext, Albany, NY 12203 to register, update your details, or confirm your registration status. Co-hosted alongside HeadCount, the Spina Bifida Association of New York State, and the Independent Living Center of the Hudson Valley, this event is completely FREE and open to the community.

💡 Quick Tip: Bring a valid ID or the last four digits of your Social Security Number to make filling out your registration quick and easy!

Make your voice heard at the polls. We look forward to seeing you tomorrow! 🙌

09/09/2026

Fundraise. Volunteer. Walk-N-Roll!

There are so many ways to be part of Walk-N-Roll! Whether you’re fundraising, volunteering, joining a team, or cheering on our community, you have a role to play.

🎁 Turn your fundraising into something real!

Every dollar you raise brings you closer to exclusive Walk-N-Roll incentives:

🎯 Raise $100
• F***y Pack
• Short Sleeve Walk-N-Roll Shirt
• Walk-N-Roll Cap

🎯 Raise $500
• Backpack
• Long Sleeve Walk-N-Roll Shirt
• Tote Bag

🎯 Raise $1,000
• Polar Camel 20 oz Handle Mug
• 60" x 85" Plush Blanket

📦 Important incentive details: Incentive items will not be available in person at either Walk-N-Roll. After the event, fundraisers who raise at least $100 will receive an email with a special code and link to claim their items. Items will be shipped within 2 weeks.

At both Walk-N-Rolls, we’ll recognize:
• Top 3 Individual Fundraisers
• Top 3 Fundraising Teams
• Team Spirit 🏆

💚 Volunteer & Make a Difference

Volunteers help create a welcoming and accessible Walk-N-Roll experience for everyone!

Help with:
• Event logistics
• Registration & check-in
• Raffles & merchandise
• Helping participants navigate the event

Volunteer shifts are available 8:00 AM–2:00 PM.

Interested in volunteering? Email SBANYS’ Executive Director Julia Duff at [email protected] to sign up.

📍 Syracuse Walk-N-Roll
📅 September 27 | 10:00 AM–2:00 PM
📌 Willow Bay at Onondaga Lake Park
Syracuse, NY

📍 Mid-Hudson Walk-N-Roll
📅 October 3 | 10:00 AM–2:00 PM
📌 Cluett Schantz Memorial Park
1801–1805 Route 9W, Milton, NY 12547

Registration is required to attend!

Register for Syracuse: https://charity.pledgeit.org/syracusewnr

Register for Mid-Hudson: https://charity.pledgeit.org/midhudsonwnr

Need help with registration, teams, or anything else? Email [email protected].

Presented by Byram Healthcare

09/08/2026

📚 The transition to preschool is an important step in your child's educational journey.

The Spina Bifida Association of New York State's Toolkit for Educators: Parent Supplement provides guidance for families as they prepare for the transition from Early Intervention (EI) to preschool.

The Toolkit highlights that:
• Early Intervention services support eligible children from birth to age 3.
• Parents are encouraged to contact their public school when their child is 2½ years old to begin preparing for the transition to preschool.
• Planning ahead can help families prepare for the next stage of their child's education.

Every transition brings new opportunities to learn, grow, and build support for your child's educational journey.

Read the Toolkit for Educators: Parent Supplement:https://sbanys.org/wp-content/uploads/2024/07/SBANYS-Toolkit-for-Educators-Parent-Supplement.pdf

09/08/2026

Looking for something fun to do next week?

Come out to the Socha Plaza Wellness Walk with the Spina Bifida Association of New York State (SBANYS) and Key 4 Women on September 16th!

Walk through the plaza, visit participating businesses, discover local services and resources, collect stamps on your event card, and enter for a chance to win a gift basket.

Plus, enjoy refreshments and light food while connecting with businesses and members of the community.

Wednesday, September 16th
4:30 PM to 6:30 PM
133 Saratoga Road, Schenectady, NY 12302

We hope to see you there!

Questions about the event? Email [email protected].

WellnessWalk SchenectadyNY CommunityEvent LocalBusinesses CommunityWellness

09/08/2026

Looking for something fun to do next week?

Come out to the Socha Plaza Wellness Walk with the Spina Bifida Association of New York State (SBANYS) and Key 4 Women on September 16th!

Walk through the plaza, visit participating businesses, discover local services and resources, collect stamps on your event card, and enter for a chance to win a gift basket.

Plus, enjoy refreshments and light food while connecting with businesses and members of the community.

Wednesday, September 16th
4:30 PM to 6:30 PM
133 Saratoga Road, Schenectady, NY 12302

We hope to see you there!

Questions about the event? Email [email protected].