09/03/2026
📣💚 If you’ve ever wished your Lyme story could reach the people who have the power to create change, this is your moment.
👀If you want to help support the mission I started in 2024 this is also your moment!
We hear patients’ stories every day, from the clients we work with one-on-one to people around the globe who share their experiences through comments, videos, messages, and conversations within our community.
And we hear the same thing again and again:
Lyme doesn’t just affect the body.
It can affect your mental health, relationships, social life, identity, spirituality, sense of purpose, independence, and hope.
These parts of illness are real. They matter. And they deserve to be part of the conversation about the future of Lyme care.
That’s why we’re so excited that Lyme Resilience Collective submitted an idea to the LymeX Healthathon. 🧠💡
This is a national, patient-centered opportunity to bring lived experiences and actionable ideas forward to help improve the lives of people affected by Lyme and tick-borne disease.
🎥 We submitted both a 3-minute video and a 2-page proposal outlining what we believe could meaningfully change life for Lyme patients today.
💻A quick note about accessing our submission: We’ve noticed that some people are having trouble accessing the video portion from their phones. If you’re having trouble but would still like to view our submission, please message Lyme Resilience Collective. We’re happy to send you the official documents we submitted so you can see exactly what we submitted.
If possible, we recommend using a computer or laptop to view the submission.
Our submission is rooted in something we deeply believe:
🩺Medical treatment is important. AND people also need support navigating everything illness can take from them.✨
But we don’t want this conversation to only be about what we have witnessed. One of our main values at LRC is COMMUNITY.
We want them to hear from YOU.
💚 How has Lyme affected your mental health?
💚 What has it done to your relationships or social life?
💚 Have you experienced isolation or loss of community?
💚 Has Lyme changed your identity, your hope, or your vision for your future?
💚 What kind of support do you wish existed?
You don’t have to tell your whole story. Share only what feels right for you.
But if you have ever felt unseen, unheard, misunderstood, or alone in what Lyme has done to your life, this is an opportunity to let your experience be part of something bigger.
📢Please read our submission, vote if you feel our idea deserves to move forward, and share your experience in the comments underneath it.
Your voice matters.
And the future of Lyme care should be shaped by the people who are living it. 💚