05/22/2026
Update :5/22
Jackson had his 3 day stay in the pediatric unit in Bangor for his med switch . He did really well and had no seizure activity while switching over to his new medicine . This new med will hopefully help with the behavioral issues he’s been having with kepra which is know to do that. He will have Pt and Ot and speech on June 8th and won’t have to have another Nero apt till Aug. And if his Iron levels come back good again in mid June he won’t have to see his Hemo doc again. Jackson is getting stronger and gaining everyday. Thank you all for your amazing support .❤️