Praying for Mason Teague “Meaning in the Mess”

Praying for Mason Teague “Meaning in the Mess” On June 22, 2022 16 yr old Mason suffered an AVM hemorrhage,unresponsive for 6mo & still fighting🦋

This has been the hardest hospital stay yet. Mase was stepped down from the neuro ICU but we haven’t seen much, if any i...
09/03/2026

This has been the hardest hospital stay yet. Mase was stepped down from the neuro ICU but we haven’t seen much, if any improvement. Yesterday was the hardest day yet, with Mason spending the majority of the day writhing in the bed. We finally asked that they do more to help him settle down because he was miserable.

After paying for several nights of hotel rooms, we decided to look into the requirements for Ronald McDonald House in Tulsa. We were pleased to learn that we DO qualify, so we reached out to the social worker and got a referral. Unfortunately, Mason’s suffering has increased to the point that we are spending most of our time in the room with him, making sure that he doesn’t remove his IV and monitoring leads.

The hospital is leaving no stone unturned, but we may be running out of stones, at this point. They will be performing a lumbar puncture and an MRI tomorrow, both under sedation because Mason can’t stop moving. When I tell you that he is MISERABLE, I am not exaggerating. Mandi and I are exhausted in every way possible. The hospital life can be so isolating too. Thankfully, our priest, Father Ambrose stopped by for a surprise visit today.

I’m expecting that we will be in the hospital for at least another week and, once Mason is ready to discharge, he will likely be referred for another round of in-patient rehabilitation (probably out of state). So, once again, everything has been turned upside down for our family. And POOR Cayde! He has taken a back seat for 4 years now. Mandi and I are riddled with grief and guilt over what has become of Cayde’s life. He was so incredibly happy before this happened. And he never complains, which is almost more heartbreaking.

We are faced with so much uncertainty right now. I try not to be cliche but I mean it when I say that God is the source of our strength and our Hope is in the Resurrection. Nothing brings me more peace than to know that Mason will shine so incredibly bright in the Life of the age to come. And, as I lose more and more of myself to this tragedy, I’m thankful that Christ is there to fill the void.

“I will sing unto the Lord as long as I live: I will sing praise to my God while I have my being.” ☦️

***10:30PM CDT Update: Glory to God! Mason is sleeping WITHOUT heavy hitter sedatives. Thank you for your continued pray...
08/29/2026

***10:30PM CDT Update: Glory to God! Mason is sleeping WITHOUT heavy hitter sedatives. Thank you for your continued prayers.***

I owe you all a better update, but I am lacking the energy for much more than the basics right now. Mase has been VERY agitated and unable to sleep (without interventions) since the seizure, thus, Mandi and I are running on very little sleep. This has probably been our most exhausting hospital stay to date, and that’s saying something.

We don’t have any definitive answers yet, but it seems likely that there were some pretty serious med issues leading up to our hospital stay at OU and following that stay, due to the med changes that were made to address the issues that he presented to the hospital with a couple of weeks ago. It is looking more and more like medication side effects have been treated with new/different meds, so the meds in question have been stopped to give us all an idea of what Mason’s true baseline is before prescribing any new meds. We both believe that is a great approach.

We hope that all goes well and that we can be back at home soon, but we are also prepared to push to go out of state again, if that is what we need to do in order to have Mase safely in the home with us. We have discovered that TIRR Memorial Hermann in Houston has a program to handle issues like this, so that is something that we will be discussing with his current team and with the social worker if we aren’t seeing progress over the course of the next few days.

Please continue to pray for Mase (Kevin)… he is miserable. ☦️🙏🏻

Mason was admitted to the neuro ICU at St. Francis around 4:00am this morning and has been struggling to settle down eve...
08/27/2026

Mason was admitted to the neuro ICU at St. Francis around 4:00am this morning and has been struggling to settle down ever since. Around 9:20am, he told us that the new meds are really messing with his head and that he needs help. Shortly thereafter, he experienced a terrible seizure that had to be stopped with multiple injections of Ativan. There was some concern that he might struggle to maintain his airway so a rather large team responded and a ventilator was placed at bedside, just in case. Thankfully, he is still managing his airway and his pupils are reactive to light.

In reality, we were with the best team in the hospital to manage a seizure AND an EEG was already running, so they should have a pretty good idea of what was going on in his brain leading up to the seizure. Small blessings?

We are exhausted after a night of no sleep and our concern for Mason has been compounded by this morning’s seizure. As always, we appreciate your continued prayers for Mason (the servant of God, Kevin). Another update will be provided once we have a better understanding of what is happening to our poor boy. 🙏🏻 ☦️

Well, that didn’t last long… We’re back in the ER following a day of intense agitation, tachycardia, and a persistent fe...
08/26/2026

Well, that didn’t last long… We’re back in the ER following a day of intense agitation, tachycardia, and a persistent fever. Mason has been telling us that he is scared and needs help. 😞

We had a scheduled follow-up with his psychiatry team this afternoon and there was agreement that he needed to be seen in the ER. We decided to take him to St. Francis in Tulsa, as his neurologist is there and the OU Psychiatry team consults with patients at St. Francis. We’ll share another update once we have an idea of what is going on with our poor boy. In the meantime, prayers are always appreciated for Mason (Baptized “Kevin”). ☦️🙏🏻

We are home. We are tired. And there is SO much to update.We have some concerns about new “episodes” we are seeing. Hone...
08/25/2026

We are home. We are tired. And there is SO much to update.

We have some concerns about new “episodes” we are seeing. Honestly, it feels like we traded one set of problems and issues for another.

But this photo says SO much to me.

A momma who loves her boy beyond measure. A momma who also deeply loves other people’s children and loved ones.

The people elected to represent ALL of our loved ones meet inside the Oklahoma State Capitol, seen directly behind Mason. It is within walking distance, or rolling distance for those who use wheelchairs, of the hospital where this photo was taken.

Mason is sitting in what they call the “healing garden.” But it is hard for me to look at this view and see anything healing about it. The medical helicopter pad is directly to the west, with a nearly nonstop rotation of helicopters bringing people in and carrying others away.

This image is astonishing to me.

The building where decisions are made for the people of this state sits so close to these hospital halls, yet it feels painfully disconnected from the suffering parading through them every single day.




08/20/2026

🙏🏽☦️🙏🏽☦️🙏🏽☦️

08/20/2026

Guess WHAT? Circumstances never stay fluid and consistent in this weird life we live! The one thing I can say is at least all of the trauma made me funny(sometime’s funny looking and sometime’s funny haha), depends on the day 🥴

We got an email this evening completely missed that Cayde has his “first” day of school tomorrow NOT Friday! Whoops! 🤦🏻‍♀️🤷🏻‍♀️
Thank goodness we still have him enrolled in Epic. That’s been a huge blessing the last year and a half. Hard decision, at first, but wouldn’t change it. He has incredible teachers that are kind and understanding.

Therefore, I am in run around and get my littlest mister in bed and NOT overthink things too much! Justin and I both have decision fatigue, right now. So decision making will be put off until after S. L. E. E. P!

I will “Be Still” tonight!
Can’t mange a LIVE UPDATE tonightdue to my failure to keep ALL THE P**P GROUPED!

Tomorrow morning, Coffee and Chatting! Whoever is brave enough to watch the LIVE update will let definitely see me funny looking 😂 and hopefully the funny HAHA!🤷🏻‍♀️

Things with Mase are still questionable, but I am hoping to provide a clearer update on the live tomorrow morning, after rounds are done! It’s safer for everyone if the honey badger is on speaker and not there when the ‘math ain’t mathin”🤷🏻‍♀️🤦🏻‍♀️

So many moving parts to juggle and many at once! But, we can do hard things! We KNOW THAT! Thank God, truly for the marriage we have! 🙏🏽☦️🙏🏽☦️🙏🏽☦️

I am actually EXCITED about the live. It’s been too long!

Also, I have been doing my best to answer and respond to as many comments as I can. Know that not one goes unread. 🤟🏽🤟🏽🤟🏽

Quick update and request for everyone who sees this🤍🤍🤍Would you mind checking to see if you have “liked” Mason’s page AN...
08/19/2026

Quick update and request for everyone who sees this🤍🤍🤍

Would you mind checking to see if you have “liked” Mason’s page AND “followed” it? If you have not done one or the other, would you please do so? 🙏🏽

We are wanting to show Mason that there are still ppl interested in HIM and his struggles(he is checking the page himself now🥹). It really does help push Mason’s page to other ppl’s news feed…which helps us spread awareness and gets more prayers sent up🙏🏽☦️

Mason is doing “better”, but we still have a couple things that need to be addressed before we can be discharged. ❤️‍🩹

I had to make the drive back home to Cayde yesterday evening and met him and Dad at urgent care. Thankfully, he tested negative for “all the things”, so we are battling an ugly virus. 😔 My littlest mister just needed his momma!

This life is not easy nor desirable. It’s not pretty and fun. My personal page is no longer filled with all the “happy” experiences, family pics, and milestones. For the most part, it’s rarely utilized. It’s simple, really. I don’t see the point 🤷🏻‍♀️ Mason’s page is where I can POSSIBLY help make a difference for others.

I am not giving in. I’m just warming up.

This hospital stay has been quite eye opening to the failures of the Oklahoma Healthcare System and this
Momma is ready to start talking about it.

I am going live today! YEP, you read that right. Not sure when, that depends on Cayde’s needs.
The past two years have wrecked my confidence in my abilities I know I excel in.
NOT ANYMORE! I have been fighting my way back to “see myself”, again.
This hospital stay felt like it was going break me. BUT, once I walked into our house last night, I suddenly felt quite the opposite.
I felt grounded and laser focused!!!!
This stay gave me some of that confidence back. 🥹❤️‍🩹🙏🏽☦️

We know Mason better than ANY medical professional. It is not acceptable for specialist’s(ie Neurology, Neurosurgery, etc) to take a quick look and “sign off”.
NO! There are new symptoms that have largely been ignored by the specialists that COULD help figure out the piece of the puzzle that is missing. Why not find the missing piece while in a controlled environment? At this stage, Mason is not medically manageable at home. Soooo, here we are in MEDICAL LIMBO, again💔

Parents/caregivers should not have to pay and use PROFESSIONAL AI tools to help figure out what’s wrong with their loved one’s and what the DOCTOR’S are missing. And, quite frankly, if they all lack the empathy to dig in and actually figure it out…maybe THEY need to use all their FANCY AI tools to check themselves and their ego’s! Not all patients fit into the box they try to shove them into. Where is the “personalized” approach to the care plan? Why. at a teaching hospital, can they NOT dig in? MAKE IT MAKE SENSE!

I do not like having to be the momma honey badger, but I’m not afraid to unleash the beast if need be. 🤷🏻‍♀️

Lord, have mercy on me!🙏🏽🙏🏽🙏🏽

Please pray for us. Mason is not responding well to the med changes and is now without nutrition or an IV. And I need to...
08/16/2026

Please pray for us. Mason is not responding well to the med changes and is now without nutrition or an IV. And I need to be clear that this is NOT the hospital’s fault. He is having delusional beliefs that his feeding tube and even his IV are somehow in his lungs and that they are being filled with fluid. This has led to multiple feeding tube and IV pulls. You might be thinking “just restrain him”. That might work with others, but Mason has shown that he can fight through any level of restraint that a hospital can employ (he’s an absolute Houdini).

We finally saw the results of his MRI in MyChart and, from what we can tell, the news isn’t going to be all that good. There are multiple findings that concern us with at least one of them leaving the possibility of a surgery on the table (in our assessment). But we’ll have to wait for a consult with the attending physician and neurosurgery to get the complete picture. At this time, we are waiting on psychiatry to stop by so we can discuss the behavioral changes brought on by these apparent delusions that Mason is having.

Right now, we don’t appear to be any closer to going home than we were when we entered the hospital on Monday. To add to our stress, Cayde starts school with Epic Charter Schools on Friday… never mind that we haven’t seen him for a week now. We miss the little guy and we feel as though we are failing him. At least Epic is remote!

I’m hoping that Mason will calm down enough for us to pray the Typika sometime today, since it is Sunday. We received a wonderful gift bag from the St. Benedict Russian Orthodox Church, including a lovely icon, depicting Orthodox Saints who have shown forth in North America, along with a cross, some stickers for Cayde, and a couple of cards. I can’t express how much that lifted our spirits and how much it means to us.

Mandi and I had a stressful conversation about whether or not to leave Oklahoma for a state with better specialty hospitals and a stronger Medicaid program. I have been exploring our options and looking at real estate in states like Colorado, Illinois, Wisconsin, and Minnesota. But Mandi reminded me of some advice that she received from our priest recently… “be still”. So that is what we will do, for now. God help us! ☦️

Sorry for the time between updates. The hardest thing about this hospital stay has been the lack of sleep. We’ve always ...
08/14/2026

Sorry for the time between updates. The hardest thing about this hospital stay has been the lack of sleep. We’ve always said that caring for someone like Mason is similar to having a newborn, in that you only get to sleep when the baby sleeps. Well, the baby isn’t sleeping much! At some point, the lack of sleep starts to really take a toll on you, both physically and mentally.

As for Mason… we still have more questions than answers. Right now, they are taking a close look at his medications and making some adjustments to see if the meds were causing issues. I’m not sure if I mentioned in the last update, but Mason failed his swallow test with all liquids and solids, so he isn’t able to eat or drink anything. Some of his meds are only available in pill form, one of those meds being his main antipsychotic… yeah, probably not the best one to go without for 48 hours.

They placed an NG tube for nutrition the night before last but Mason ended up removing it himself and it has yet to be replaced. The plan was for him to go down for an MRI and THEN have the tube replaced, but we have been waiting for him to be picked up for the MRI for 13 hours now. So that means that he STILL isn’t getting the meds that he needs for mood stabilization.

I don’t see how any progress can be made until he can regularly receive his medications. I wish I had more information to share. Please continue to keep us in your prayers. This has really taken a toll on us and we have no idea how much longer we will be here. Cayde starts school soon so we have that hanging over our heads too. It just feels like too much all at once. Lord have mercy!

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