Camp Wamp

05/08/2025

03/27/2025

03/27/2025

03/14/2025

Today is Rare Disease Day— and it matters to the Cerebral Palsy community more than you might think.

Cerebral palsy (CP) is the most common lifelong physical disability, yet many of its root causes—including genetic syndromes, metabolic disorders, certain infections, and perinatal stroke—are classified as “rare.” This leaves many individuals with CP caught between two systems: research and healthcare designed for either common disabilities or rare diseases—but rarely both.

At the Cerebral Palsy Foundation, we believe “rare” should never mean invisible. Yet:

⚠️ Too many families wait too long for an accurate diagnosis and treatment options.
⚠️ Too many children lack access to critical early interventions that could change their futures.
⚠️ Too many adults face a lifetime of medical uncertainty.

It doesn’t have to be this way. We need urgent investment in early detection, intervention, and lifelong care—because everyone deserves access to the best possible future.

05/09/2024

My annual May post

🧑‍🎓👩🏾‍🎓👨🏽‍🎓

Teachers,
When you’re at graduation this year and your coworkers are crowded around the bubbly, highest achieving students that have all the chords, and were in all the clubs, make a point to find the student with the IEP that rarely spoke, struggled with your class, and hit them with the most inspirational words you can pull from the well. That student has just climbed their Everest. -author unknown

05/07/2024

https://scoop.upworthy.com/son-surprises-dad-who-has-cerebral-palsy-with-a-wholesome-video-and-his-reaction-is-priceless

The doting son wanted to convey how great his father was to him despite suffering from cerebral palsy for years.