Nate the Great Leukemia Warrior

06/09/2026

I was so excited about the boys getting to see Jelly Roll last Friday and the realization that we been fighting this fight for 6 months that I forgot to give yall a treatment update.

Nate's labs looked great last Wednesday. His triglycerides are back on the high side so of course that means he's back on Omega 3s until that comes down.

He started chemo and high dose steroids. 3 different chemo drugs were given last week and he started 3 weeks of oral chemo. He isnt nauseous or vomiting with this round but he is dealing with excess stomach acid and being very tired. We know chemo meds change everything for him but we weren't expecting it to hit him this hard this fast. It normally takes a couple of weeks to see changes.

We're 1 week down with 18 weeks to go for this phase of his treatment. We're back to watching his counts, his exposure to the public and people that may be sick or recovering from being sick, and as always him. We really don't need him sick. It will turn 19 weeks into who knows how many weeks. It delays treatment for at least 2 weeks sometimes longer than that while he recovers.

Thank you for your thoughts and prayers. We appreciate everyone of yall! I will update again soon!

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On November 28th, Nathan woke up yellow. He had been sick since we returned home fro… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

06/06/2026

I normally don't share the perks of life at St Jude. Today I am.

The patients and families got a private mine concert from the one and only Jelly Roll!

During said mini concert, Jelly Roll gave everyone tickets to his show tonight in Southaven. We did not know about this beforehand so I didnt have time to make proper arrangements for Kacey to be able to go to both. So Nathaniel Lebo, Beck Lebo, Nana Paula and I all went to the concert tonight.

I will warn you now I am not a professional and I do not own the rights to the music! I will post videos in the comments!

06/01/2026

It's been a really good week. Just a very long one. I promise you since Dec 4 2025, my days, weeks and months all blur together..I cant tell you if I'm coming or going most days. I just do whats gotta be done and keeping moving forward.

Nathaniel Lebo had appointments on Wednesday. He had labs, doctor's visit, lumbar puncture with chemo, bone marrow biopsy and doppler ultrasound to check out his clot.

His labs look good. Doctor says he's doing great. Lumber puncture went okay. They had to stick him twice. But they got what they needed. Bone marrow biopsy was a little tricky this time. He's 19 so his bones are hard and they had a little trouble popping a hole in his hip bones. It's kinda hard to watch. I know he's in pain but he tells them to keep going. He just wants it to be over and done with. My heart breaks watching him during these knowing there's nothing I can do other than hold his hand and try not to let my face say what my brain is thinking. This kid is a warrior. He's awake talking to us with only a local anesthetic to help manage the pain. The doppler was pretty straightforward.

With Monday being a holiday, I didn't expect to get bone marrow results back until this Monday but we got them back on Thursday afternoon. His bone marrow is clean. While this doesnt change the treatment, it does prove treatment is working. For that we celebrate! We thank God for answering prayers. We laugh, we cry happy tears, we continue the fight! Knowing his treatment is working makes the bad days worth it. We know others aren't as blessed. We know others have lost their battle so we keep fighting.

We dont have his spinal fluid results back yet.

His ultrasound shows the clot is shrinking (FINALLY) so more good news there.

So what's next for Nate the Great??
19 weeks of chemo. It will either start this Wednesday or June 10th. We hoping for June 10th. He really wants a break so we will see what we can do to make that happen. It will be weekly chemo infusions, oral chemo and at least 1 lumbar puncture with chemo 3 weeks after this phase starts.

Thank you for all your thoughts and prayers! We appreciate everyone of yall!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On November 28th, Nathan woke up yellow. He had been sick since we returned home fro… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

05/25/2026

Here's a little update for yall!

Nathaniel Lebo is doing pretty great. His counts look good for a cancer patient. He feels good. He wants to do things. It's pretty amazing to see the difference between immunotherapy and chemo treatments.

We had to make some med changes. His blood pressure is still staying high and his heart rate is a little elevated. They switched him over to Losartan from Lisinopril. We're hoping to see the change he needs from that.

He will finish his immunotherapy Wednesday. We have to be at St Jude very early to start our day. He has labs and a doctor visit.

He is going to the IR suite for his lumbar puncture with chemo. This will be how his lumbar punctures and bone marrow biopsies are done until he's finished with treatment. We decided to go this route tomake things easier for him and the doctor preforming the procedure. They will do 1 stick and hopefully get where they need to be and if not they will use a series of x rays or ultrasound to get where they need to be. This means I will not longer be allowed to be in the room while he's getting them done. He will still be awake but due to the fact they may need to do imaging I can not stay with him. Someone from Child Life will be with him. He's good with that.

He also has a doppler ultrasound so they can check the blood clot in his neck under his central line. He is still taking blood thinners to help clear that. We're hoping it's gone or has at least shrank this time.

Specific prayer requests for this Wednesday are:
1) His lumbar puncture will go good this time.
2) His anxiety. He hates hospital days but adding procedures to the mix certainly doesnt help.
3) We need his blood clot to be gone.

Thank you for all your thoughts and prayers! We appreciate everyone of yall.

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On November 28th, Nathan woke up yellow. He had been sick since we returned home fro… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

05/18/2026

I wanted to stop in for a quick update on Nathaniel Lebo for yall!

Spring, summer and fall are very busy for our bakery business. With the event season being what it is, we are literally booked every weekend until after the first of the year.

If Nate is doing good, you may not see as many updates. With his current appointment schedule, we are at St Jude one day a week ALL DAY long. By the time we get home, we're exhausted and I have to start prep work for our event on Saturday mornings not to mention the other 1 million things that need to be done.

Last weeks appointments went good. Nate seems to be responding well to immunotherapy. He gets his last bag change this Wednesday so by the 27th of May he will be done with his first 28 day round of Blina and he will have another lumbar puncture done then. He will have a 2 week break before he starts anything else.

05/09/2026

Our week has been super busy but I wanted to give everyone an update on Nathaniel Lebo!

He is doing great right. This immunotherapy drug is definitely the break from his chemo he has needed. He feels better. He wants to do things. He still dreads his appointments but we're only going 1 day a week right now.

His counts are getting better. I have moved us out of lockdown. His doctors say he is doing good. His blood pressure is even normal for him right now. His heart rate is staying a little higher than they would like but that's okay.

Thank you for your thoughts and prayers! We appreciate everyone of yall!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On November 28th, Nathan woke up yellow. He had been sick since we returned home fro… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

05/01/2026

Immunotherapy is going great for Nathaniel Lebo! For the first time ever we get to go home as scheduled not a day or 2 later.

He had some mild hand tremors for less than 24 hours. He says he feels awesome. Doctors and nurses are very pleased with the difference between this and his high dose chemo.

We didn't have the daily labs and all that goes along with chemo. They have just watched him and how he responded to the drug.

We'll be home later today and shouldn't have to be back for appointments until Wednesday! Once a week for bag changes, labs and to see his doctors.

Thank you for all your thoughts and prayers! We really appreciate it!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On November 28th, Nathan woke up yellow. He had been sick since we returned home fro… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

04/29/2026

Good morning!

We were admitted yesterday afternoon for his first 28 day round of Blina (Antibody Immunotherapy). He had to have a unit of IVIG before they started it. We already knew his antibodies were low. They had been wanting to give him IVIG for a week but I wanted them to retest for some weird antibodies he had when we first got to St Jude in Dec.

IVIG is a clear blood product that is made from many different donors. Those donors carry antibodies from illnesses they've had in life and can transfer to the recipient of blood or blood products. Nathaniel Lebo received daily doses of IVIG at the end of November into the first 3 days of December before we were transferred here. He tested positive for a lot of weird things he never had. So we needed to be sure those things were from the IVIG. He was on daily antibiotics because of that. They retested him on Friday and everything came back negative. He has had daily antibiotic stopped and has moved to regular preventive antibiotics.

His Blina was started at 10 am this morning. The current plan is to go home on Friday as well as he doesnt get any side effects from the medicine. They montior him and make sure he's good then he continues his meds via continuous IV through his port for 28 days. We come in weekly for needle changes, bag changes and to see his doctors.

Thank you for your thoughts and prayers! We appreciate everyone of yall!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

04/26/2026

Life is definitely busy right now.

Nate had a very busy week with appointments. Kacey started his first real job and of course the Farmer's Market opened for the season on Saturday. I had alot of baking to do on top of getting the boys where they needed to be on time. Charlie helped but it was still a very busy week.

Nathaniel Lebo is good. His high dose chemo was clear on Friday. He had a follow up with his heart doctor. His heart still looks fine. We're still working on meds to control his blood pressure and heart rate. He had a follow up for his eyes. They're fine as well. He does need new glasses.

His oncology team is happy with all his counts so he'll start his first 28 day round of immunotherapy Wednesday morning. He'll be in the hospital from Tuesday night until Friday morning so they can monitor how he responds to the immunotherapy drug. He will have a continuous IV via his port for 28 days to slowly deliver his medicine. We're really excited for this part. They expect him to feel great while he's getting this part of his treatment. It will be a HUGE change from the chemo drugs.

That's all for now. I will do my best to keep yall in the loop!

Thank you for all your thoughts and prayers! We appreciate all of yall.