Nate the Great Leukemia Warrior

09/07/2026

I owe yall an update on Nathaniel Lebo. Please give me some grace right now. I just lost my husband very unexpectedly and our children have lost their father. We are trying to figure life out without him and that unfortunately is not an easy task.

We moved Nate's appointments from Wednesday to Friday. I couldn't ask him to endure a full day of appointments the day his daddy left us. So they were moved to Friday and we only rescheduled what was 100 % necessary.

His counts improved so we did 1 chemo drug via his port and he's on oral chemo for the next 3 weeks. This week he has his full chemo cocktail via his port. We're a week behind for this phase of treatment and that's okay. We needed his chemo treatments to align with Charlie's service and not put Nathan in a state where he was sick for that. I will do whatever is necessary to keep Nate as healthy as possible during this.

Nate's psychologist isn't available for him to see right now so he had to see someone new. For him, that was not easy but I feel like he needs someone other than me, his siblings, his uncle and his cousins to talk to. We are all grieving and processing Charlie's loss and that looks very different for each of us.

His doctors say medically he looks good.

I don't know how this is going to affect him. No one does. We know stress and grief is hard on a person. But I imagine it's much worse on someone going through treatment for cancer. Nate still has a long way to go. My hope is his body can handle it. My hope is mentally he can it. Only time will tell.

We ask that you keep lifting Nate up in prayer. We ask you to keep sending prayers up for our family. The coming days will not be easy but we will get through them together.

If you feel lead a gofund me was set up for Charlie's arrangements,

https://gofund.me/7c6b409fa

We still have Nathan's

https://gofund.me/9ba71cf55

VENMO: https://venmo.com/code?user_id=1683621836488704993&created=1765256525

CASHAPP:
https://cash.app/$HooieSue

Thank you all!

I am creating this fundraiser for the Lebo family as they face an unimaginab… Crystal Lebo needs your support for Support the Lebo Family After Charlie’s Loss

08/27/2026

Here's your Nathaniel Lebo update

Last week Nate's counts were low and he needed 2 units of blood. He was kept off his blood pressure meds and sleep meds. His oral chemo was continued. He felt very fatigued all week but he has for the last few weeks. They increased his bedtime dose of gabapentin to help with restless leg syndrome and sleep.

This week is a very similar picture..
His counts are still low. He got another unit of blood and a unit of platelets today, all chemo has been stopped for at least a week. He is neutropenic so we are on fever and infection watch. His body has nothing to fight with. Visitors are restricted from the house and he is stuck at home for a week.

He feels awful. When we got home today, he went straight to bed. I am hoping this isn't a sign of him getting sick but we will see. He is back on blood pressure meds. His blood pressure is starting to be high again repeatedly through out the day. So they're trying extended release metoprolol. They are hoping it will lower his blood pressure and heart rate, which have been problems since Dec of last year.

We're all hoping Nate will feel better soon and that chemo will not be delayed longer than a week.

Thank you for following his journey and reading all of our updates! Thank you for your thoughts and prayers. We appreciate everyone of yall.

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On the morning of November 28, 2025, our world changed forever. Nathan woke up with… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

08/18/2026

So I havent given an update in a couple of weeks.. Things have been busy and Nate has been doing pretty good.

We're having some issues with his blood pressure being too low and his heart rate being too high. We go back to the cardiologist Wednesday because of that. We have stopped his BP medicine and his sleep medicine because they thought his sleep meds were causing it. They are not. His blood pressure is dropping with an increase in his activity level (walking around the hospital or grocery store or walking from his room to the living room.). When his BP drops his heart rate goes up. His counts and other blood work looks fine.

He had a sleep study done last night hence me being up so early. We went in yesterday morning to see the sleep doctor then had to be back at 8:30 last night. We were kicked out at 5:30 this morning. We'll have those results in 10 to 14 days. He hasnt slept right in months and it's really affecting his quality of life.

We're a little over halfway through his 19 week chemo phase.. YAY for that!! There's no doubt we're all ready for this to be over and him to have a little break from chemo. I'm not sure what's next. We're discuss that when we're closer to finishing this phase.

Thank you for following his fight. Thank you for keeping us in your thoughts and prayers. We appreciate everyone of yall!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On the morning of November 28, 2025, our world changed forever. Nathan woke up with… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

08/05/2026

Here is your update on Nathaniel Lebo...

Last Wednesday turned into an overnight hospital stay because his blood pressure was too low. It was caused by his new medicine to help him sleep. So he is off of that and will have a sleep study in 2 weeks to see why he isnt sleeping.

His counts were okay and he is doing as well as can be expected with 9 weeks of chemo. Only 10 more to go for this phase of treatment.

I will update again as soon as possible after his appointments tomorrow.

Since I have your attention, I need to clarify something that I have heard numerous times since we told everyone he was being treated at St Jude.

St Jude covers any and all medical expenses related to his treatment including any outside providers they send him to during his treatment. St Jude covers our meals while we're on campus. St Jude provides us roughly 18 dollars to drive to his appointments on campus.

What St Jude doesn't cover is our bills (lights, gas, water, internet, cell phone, etc) here at home, our rent, any overage in gas for travel that comes with unexpected hospital stays and me having to come home and get clothes and such for said stays, groceries, trips to pick up medicine that he runs out of in between appointments. They dont cover expenses when something on my truck messes up or it needs new tires, oil changes and other maintenance. They dont cover Christmas gifts or birthday gifts for him or Kacey. They dont cover the medical bills he has from November 28th 2025 until December 3rd 2025 before we got transferred to St Jude. They don't pay for us having to miss work to be with Nate.

As great as they are they actually don't help with much outside of the medical side of his treatment. I'm not mad about it. It just leaves just in a constant state of deciding what bills get paid in which order and still have money for gas and groceries. We are in the same as everyone else money wise except we have a child with leukemia that is in treatment. That is why we post the go fund me, my cash app amd venmo on almost every post. We need help and you don't get it if you don't ask.

Thank you for reading and understanding.

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On the morning of November 28, 2025, our world changed forever. Nathan woke up with… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

07/24/2026

Here is your weekly Nathaniel Lebo update..

He is doing good. His counts are holding steady, which we are very thankful for. We are seeing improvements in chemo side-effects thanks to the meds he started last week. The biggest thing right now is the nausea and almost daily vomiting. His meds are helping with that but it

Heart doctor has decided his blood pressure medicine is working and doesnt need any adjustments so they will see him again at the end of January unless something changes between now and then.

Right now we continue the treatment protocol and pray for the best since everything appears to be working. We take the good days with the bad days.

Thank you for your thoughts and prayers. Thank you for following our journey and supporting us through this. We really appreciate you all!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On the morning of November 28, 2025, our world changed forever. Nathan woke up with… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

07/20/2026

I havent given Nathaniel Lebo weekly update and I do apologize. Life is very busy right now and it's wearing on all of us. Nate with chemo and side effects. Kacey with work. Charlie and I doing everything possible to make things as normal as possible for everyone.

Nate is doing pretty good all things considered. His counts are up one week down the next. He started some new meds to help with some side effects that seems to be helping. His nausea and vomiting seem to be getting worse but it's being controlled very well.

He has 3 back to back weeks of chemo and 3 weeks of high dose steroids with a week off in between. His body doesnt like steroids. His blood sugar gets really high so we have to make changes for that.

We made a little video last week while we were at the hospital to share with yall!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

07/10/2026

I sometimes forget it takes a village even when they're young adults. Yall are part of our village and Nathaniel Lebo is looking to grow his.

His little village looks nothing like mine. My St Jude village is completely different from his. So let's help him find his people!

https://www.tiktok.com/t/ZP8G4ThEF/

07/09/2026

Wednesdays are already very long days. Early wake ups and late nights for me. For Nate, it's early wake ups and naps whenever possible. Add in low counts and the side effects of chemo and today was absolutely miserable.

The kid will never let you see that side of this. He holds his head up, puts a smile on his face, speaks to everyone we pass so they can have a reason to smile. He goes to all his appointments, talks to the nurses and doctors never letting on to how bad he really feels. He never complains, never asks for anything, never tells them no or that something hurts. He keeps fighting. He is the reason we keep.fighting. The way he handles this is the only way I seem like I have it together even if I don't.

Nate is definitely feeling all the side effects with this phase. He's tired. He can't sleep. He has mouth sores and sores in his digestive tract. He isnt eating or drinking alot because it hurts. Yet he still manages to smile and laugh. Half the time if you didn't know what he was battling, you wouldnt think he was sick.

We were told today this is week 6 so I guess my count is a little off. Only 13 weeks left in this phase. Due to his counts being so low, his oral chemo has been stopped. This is not a.big deal. He already has taken more than they expected him to at full dosing. He got 4 weeks at full dosing and 1 week at half dosing. We're still seeing some numbers that need to come down and some that need to go up. We need his hemoglobin and platelets to hold where they are. We need his ANC to not drop below 300.. its at 446 today. We need his white cell count to come up a little or hold at 1.94. We need him to stay healthy and not get any infections. He has IV chemo and a lumbar puncture with chemo next Wednesday. We need him to feel better and be able to sleep. We need his mouth sores to go away. We need to see the side effects from the chemo go away. We really need all the things to come together to make next week work.

Thank you for following us. Thank you for your thoughts and prayers and support. We appreciate it!

https://gofund.me/9ba71cf55

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On the morning of November 28, 2025, our world changed forever. Nathan woke up with… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

07/03/2026

Yall... it's been a long week and half and we don't expect it to get better for a few months. Nate loves exceeding the expectations of his medical team. Now that's not necessarily always a good thing. He loves to sugarcoat and give half truths when talking to them. He never wants anyone but the immediate family to know exactly what is going on with him. Me on the other hand- we're fighting to save this kid and if I think its important and they need to know I'm gonna tell it. Unfortunately my face usually gives it away before my mouth does. His medical team watches me when he talks now because they know this. So let's say his appointments are interesting some days.

Nate's counts are officially in a free fall once again. They're 2 weeks behind schedule thanks to his rhinovirus infection we didnt know he had. It's good that they are starting to fall but it also means his immune system is shot once again. The balancing act begins to keep his counts low enough to kill off the Leukemia cells but high enough to keep him from catching something every time we turn around.

Nate was able to get 4 weeks of his oral chemo at full dosage. This is the first time he's ever had full doses for this long. Due to the significant drop in his counts this week, his dose was cut in half. No worries though. They never expect these kids to get full doses the entire phase of treatment. That would mean the chemo isn't doing its job. So we keep moving forward.

This particular phase of treatment.. Getting IV chemo and lumbar punctures with chemo every 3 weeks and daily oral chemo for 19 weeks is very hard on teens and young adults. He's having some side effects that he hasn't experienced before . Some are worse than others. Some are short lived while others seem to be hanging on for longer. Pray for him! Sleep is not coming easy for any of us. When he's ready, I will share what side effects he's having other than not sleeping.

We fight one day at a time, hour by hour when necessary. But we fight and we don't give up. 4 weeks down 15 to go for this phase.

We appreciate everyone of you supporting, praying and loving us through this. It means the world to us.

https://gofund.me/f98d08cc0

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On the morning of November 28, 2025, our world changed forever. Nathan woke up with… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior

06/27/2026

The past few days have been a little tougher than we had hoped.
Nathan recently started another phase of chemotherapy, including calaspargase, vincristine, dexamethasone, and his daily 6-MP. Shortly afterward, he began having persistent nausea and vomiting that quickly became severe enough that he couldn't keep food or even fluids down.
Today we spent the day back at St. Jude. He received IV fluids and IV nausea medication, and the team ran more blood work, viral testing, and an abdominal ultrasound to make sure nothing more serious was going on. Thankfully, his pancreas and gallbladder look okay, which was reassuring. His liver enzymes are elevated,
One thing we did learn is that Nathan tested positive for rhinovirus (a common cold.for us normal folks)so in addition to the side effects of chemotherapy, he's also fighting a viral infection. It's another hurdle, but we're thankful to have an answer that helps explain why he's been feeling so awful.
He's still struggling with nausea, vomiting, and exhaustion, and we'd appreciate continued prayers that his medications begin working, he's able to stay hydrated, and his body gets the rest it needs to recover.
Cancer treatment is full of unexpected twists and setbacks. Just when you think you've found a rhythm, something changes. Through it all, Nathan continues to show incredible strength, and we're so thankful for the amazing team at St. Jude that continues to care for him every step of the way.

Thank you to everyone who continues to pray, send messages, check in on us, and support our family. We read your comments, we feel your love, and they truly help carry us through the hard days.
Please continue praying for Nate the Great as he keeps fighting one day at a time. 💙🎗️

https://gofund.me/1823063bc

https://venmo.com/code?user_id=1683621836488704993&created=1765256525

https://cash.app/$HooieSue

On the morning of November 28, 2025, our world changed forever. Nathan woke up with… Ashley Lebo needs your support for Help Nate the Great, Leukemia Warrior