Ollie's Outstanding Heart

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Ollie's Outstanding Heart Ollie was born on 10.6.2021 with a rare and critical heart defect. Follow along on his journey 💙

When you're Ollie, you're allowed to walk around the hospital with no shirt on 🙃Ollie had a routine echocardiogram and c...
02/05/2026

When you're Ollie, you're allowed to walk around the hospital with no shirt on 🙃

Ollie had a routine echocardiogram and clinic visit today. He has been off all medication for a while now, and his echo has remained unchanged! 👏 At his next cardiology visit, we will talk about doing more in-depth testing, as his last CT and nuclear medicine imaging was in 2024 🩵🩵🩵

Cardiology visit for Ollie today! 🩵He has officially been off all of his medication for nearly 3 months! His Echocardiog...
09/03/2025

Cardiology visit for Ollie today! 🩵

He has officially been off all of his medication for nearly 3 months! His Echocardiogram showed everything has remained stable and his EKG looked great! In Ollie’s world, no news is the best news. See ya in 6 months, cardiology! ✌️

Cardiac Neurodevelopment Clinic today! 💙 During his visit he saw Cardiology, Neurology, Physical Therapy, Occupational T...
04/17/2025

Cardiac Neurodevelopment Clinic today! 💙 During his visit he saw Cardiology, Neurology, Physical Therapy, Occupational Therapy, Speech Therapy, and an Orthotist who came to cast him for new leg braces! Everyone is amazed at how well he is developing! While at the hospital Ollie and A Heart For Stella got to officially meet for the first time! (Photo to come at our next run-in!) 💕

Kids with Down syndrome and kids with congenital heart disease are typically smaller than other children their age and tend to grow at a slower rate than their peers. Ollie’s growth chart looks great! While he is very small when compared to the average 3.5 year old he is rocking the Down syndrome growth chart!

Ollie had a long exhausting day at the hospital🏥 He started the morning off by having an IV placed, which usually is no ...
10/02/2024

Ollie had a long exhausting day at the hospital🏥 He started the morning off by having an IV placed, which usually is no big deal for Ollie, but today was much harder. He then had a CT and Nuclear Medicine Imaging. I think he is finally at an age where he is starting to understand what all of these tests entail. Over the past 3 years Ollie has spent a lot of time being poked, tested, and doing things most toddlers will never have to do. While I am extremely grateful that he is able to receive this amazing care it can be heartbreaking at times. Today was hard seeing him so scared.

This afternoon he enjoyed happy time in the garden shooting footage for a super special project! 🎥 ⭐️ Ollie then headed down for an echocardiogram and clinic visit with his cardiologist.

His CT and Nuc Med imaging results have remained stable! Ollie has now been off Sirolimus for one year - the “miracle” medication that halted the progression of his disease - so it was great to hear that the stent in Ollie’s left pulmonary vein still looks pretty good! We will keep an eye on his right pulmonary vein and possibly stent it down the road. It was a great cardiology visit to close out a long exhausting day!

Ollie will be back for another cardiology visit in 3 months and we will go from there! 🩵🩵🩵

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One Children’s Place
St. Louis, MO
63110

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