Team Ryver: Crmo/cno Awareness

08/15/2026

A big thank you to the Arthritis Foundation and Alpha Omicron Pi Sorority! 🥹

We are so incredibly grateful for Ryver’s Power Pack! As a 4 year old living with JA and CRMO, having this kind of support and encouragement means so much to Ryver and our entire family.

Thank you for thinking of our sweet boy and reminding us we are not alone. We appreciate you more than you know! 💙

08/14/2026

Not everyday do you get to take a shot at your therapist 🤣🏹

Happy birthday to the BEST pt, Mrs. Lauren!! 🥳

We love you so much and are so thankful for everything you do for our boy 💙

07/23/2026

Hey, Team Ryver! 💙

We had a really encouraging rheumatology appointment yesterday, and we wanted to share an update with everyone who has been praying for our sweet boy.

Dr. Rammel is very pleased with how Ryver is responding to Humira. While it’s definitely helping, we’ve noticed he starts having more pain during the second week after each injection. To help keep his symptoms under better control, she has decided to double his Humira dose. We learned how to give the new injection, and then headed over to Wolfson for routine bloodwork.

For now, Ryver will continue taking his prednisone and famotidine while we work toward getting his pain and inflammation better controlled. He will also continue physical therapy once a week.

And now for the news that made this mama’s heart so happy… 💙

Ryver has gained weight! 🎉
Back in March, he was in the 41st percentile for weight. Now, he climbed all the way to the 69th percentile! After everything his little body has been through, seeing him grow and gain weight is such a blessing.

His blood work also gave us some encouraging news. His anemia has improved - his hemoglobin went from 10.7 in March to 12.5, and his hematocrit improved from 31.6 to 38.2!! His white blood cells are NORMAL!!! These are such positive changes and we are so thankful.
His platelets and monocytes are still elevated, which can happen when the body is still dealing with inflammation, and it reminds us that we are still working toward getting his CRMO fully under control. The hope is that this increased Humira dose will continue calming that inflammation and bring him lasting relief.

The rheumatology nurses will check in with us in about a month to see how he’s doing with the increased dose, and we’ll be back for another follow-up in three months.

Please continue praying that this increased dose gives Ryver lasting relief, keeps his inflammation under control, and that we are eventually able to taper off the steroid. We are so grateful for each and every one of you who continues to pray, encourage, and love our boy.

God is SO good. 💙
We are 💜

06/25/2026

Ryver's therapy goals:

✅ Work hard
✅ Have fun

In this video, he’s making kinetic sand balls and quietly stacking them on Ms. Katie’s desk to see how many he can get there before she catches on. 😜😂

Therapy is going well, and Ryv never misses an opportunity to add a little mischief and a lot of smiles to everyone's day 💙

06/10/2026

Grateful for this amazing CRMO community 💜

So many strong people - both children and adults - fighting a battle most people can’t see. We stand together to support, advocate, and raise awareness - for Ryver and for every CRMO warrior out there.

05/20/2026

Ryver got to tour the fire station today and had the best time 🚒❤️

Watching him chase his dreams while fighting CRMO makes us so proud of our strong little boy. Thank you to the firefighters for making his day so special.

05/13/2026

Started our morning with a full on 4 year old crisis… we were out of applesauce 😅🍎 Ryver made sure to let Dr. Lauren know all about our “bad morning.” After physical therapy, we stopped to see Uncle J Adam Gray at Murray Ford of Starke and he saved the day by getting Ryver his applesauce 💙

Watching this video fills our heart in ways we can’t even explain. Just a few months ago, Ryver was struggling too walk, run, and jump because of CRMO. Today, he’s jumping and showing us just how strong and resilient he is. We still have a long road ahead, but God has carried us this far and I truly believe Ryver’s story is going to become a powerful testimony someday.

Please keep Ryver in your prayers as we start his new medication this weekend. We’re praying for no side effects, healing in his body, and that we can successfully taper him off steroids. Thank you all for loving, supporting, and praying for our sweet boy through this journey 💜🙏

We are 💙

05/06/2026

We love seeing this community come together to raise awareness and support our CRMO warriors. Can’t wait for this year’s 5K!

We have a WINNER!!!

We are excited to share this year's CRMO Awareness 5K logo, which was designed by CRMO Warrior and Advocate, Lauren. Lauren has shared her talents with this community over the years, and we feel so honored to have her design as this year’s 5K logo. Congratulations, Lauren! We will soon share a mock-up of this year's event shirts with her amazing logo. And we are excited to bring the worldwide CRMO community together to show support and spread awareness throughout the month of October, which is CRMO Awareness Month! More information on the 5K will be shared soon.

Our Kaila's Komfort Board selected the winning logo this year, which was not an easy task because we had so many awesome designs to choose from (we will be sharing those separately so you can see the talent we have in our group)! Thank you to everyone that took the time to design a logo!!

05/05/2026

Thank you Taylor-Made Tees & More 💜💙

Shirts we completed for a family who are near and dear to our hearts!!!
💜

05/04/2026

Today was a big day for Ryver- he had his very first physical therapy appointment, and it went really well! 💪

Dr. Lauren was amazing with him. The plan is to have him come back once a week for an hour to focus on building strength in his lower body and improving his overall stability and mobility.

Ryver said he’s “a wittle sore”, but still wants to go back- which feels like a big win. We’re so proud of him for pushing through and staying positive.

Thank you all for continuing to support Team Ryver 💙