The Mast Cell Disease Society, Inc.

The Mast Cell Disease Society, Inc. If you are having any medical emergency such as anaphylaxis, chest pain, difficulty breathing, severe abdominal pain, you must call 911.

We are dedicated to providing multi-faceted support to patients, families and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy and collaboration. The Mast Cell Disease Society, Inc (TMS) volunteers are not doctors and not on call 24/7. TMS is not liable for emergency posts on this FB page. The Mast Cel

l Disease Society, Inc. is a nonprofit organization dedicated to supporting patients affected by Mast Cell Disorders as well as their families, caregivers, and physicians through research, education, and advocacy. We are here on this forum to support you and give you a safe place to find information and communicate with others in similar situations. We are not liable for any posting from our membership. TMS does not accept responsibility for content of any external links posted on this FB page. We are unable to monitor the content of third-party websites.

09/02/2026

What happens when patients help shape rare cancer research?

Join NORD’s Rare Cancer Coalition on Thursday, Sept. 17, at noon ET for a webinar exploring how patient perspectives can strengthen rare cancer research in recognition of Rare Cancer Day.

Experts and patients will discuss:
- Opportunities and challenges rare cancer patients face when participating in research
- Why incorporating patient perspectives is essential to advancing future studies

Together, we can help shape the future of rare cancer research. Register today and be part of the conversation.
https://bit.ly/4y8UGxQ

09/02/2026

Today is the final day to register for the Precision Medicine in Genetically Defined Ehlers-Danlos Syndromes event, taking place September 3-4.⁠ Join this event in Ghent, Belgium, or watch virtually worldwide in over 60 languages.⁠

This global networking event will bring together clinicians, established and early-career scientists, patient representatives, policymakers, and other key stakeholders to advance collective understanding and action in genetically defined types of EDS.⁠

Health professionals can claim up to 11 Continuing Education credits for live sessions.⁠ Learn more and register today at https://www.ehlers-danlos.com/precision-medicine-for-genetically-defined-ehlers-danlos-syndromes/

The Mast Cell Disease Society is pleased to share an upcoming educational opportunity from the Florida Society of Clinic...
09/02/2026

The Mast Cell Disease Society is pleased to share an upcoming educational opportunity from the Florida Society of Clinical Oncology (FLASCO), in partnership with Blueprint Medicines.

Living With Systemic Mastocytosis is a free patient education webinar taking place September 9 from 5:30–7:00 PM EST. The program will provide an overview of Systemic Mastocytosis and current standards of care, along with information on treatment options and patient and caregiver resources.

Register here: https://buff.ly/m6DA3VH

09/01/2026

Join FARE on September 8, 2026, from 5:00 to 9:00 p.m. ET for a unique evening that brings together expert food allergy education, community, and the excitement of a Red Sox vs. Angels game. Bring a guest, whether it’s a friend, partner, sibling, or supporter.

The evening begins with an engaging panel discussion featuring renowned food allergy experts Dr. Michael Pistiner and Dr. Wayne Shreffler from Mass General Hospital, moderated by FARE's Medical Director, Dr. Kelly Cleary. Together, they'll explore the real-life challenges young adults with food allergies face, from navigating social situations, dating, dining out, and increasing independence to managing mental health, transitioning to adult care, and the latest advances in food allergy treatment and management. Throughout the discussion, attendees will have the opportunity to ask questions and receive practical advice from leaders in the field.

Following the panel, attendees will enjoy the Red Sox vs. Angels game while networking and building connections with other young adults in the food allergy community. Attendees will enjoy top-9 allergen-free dinner, drinks, and game-day snacks in a welcoming, food-allergy-friendly environment, demonstrating that living with food allergies doesn't mean missing out on iconic experiences.

Play ball!
September 8, 2026
5:00-9:00 p.m. ET
21+ Event
Cost: This one's on us

Register here: https://bit.ly/46wJrTU

Event made possible through the generous support of DBV Technologies and Genentech, a member of the Roche Group.

09/01/2026

No matter where you are on your journey, finding community can make all the difference. Join thousands of people living with Lung Cancer in our Lung Cancer Survivors community, created in partnership with the American Lung Association to bring people from all over together to support each other through the good days, the hard days, and everything in between.

Connect with your community on Inspire: https://www.inspire.com/groups/american-lung-association-lung-cancer-survivors/

09/01/2026

TMS Book Club is tomorrow!

Join us as we discuss Immune: A Journey into the Mysterious System That Keeps You Alive by Philipp Dettmer and explore the fascinating world of the human immune system.

Register to join us: https://buff.ly/UOkE4mS

TMS support groups provide a welcoming space for patients and caregivers to connect, share experiences, and feel support...
08/30/2026

TMS support groups provide a welcoming space for patients and caregivers to connect, share experiences, and feel supported.

Explore the full schedule and learn more: https://buff.ly/iPS3BQo

Please note: time zone is EST

08/28/2026

If you’ve been dealing with ongoing congestion, sinus pressure, drainage or other sinus symptoms for 12 weeks or longer, it could be chronic rhinosinusitis (CRS), even if you don’t have nasal polyps.

In fact, most people with chronic rhinosinusitis do not have nasal polyps. CRS without nasal polyps can affect more than your nose. Ongoing symptoms may interfere with sleep, energy, work and everyday life.

The good news? Understanding what’s behind your symptoms can help you have a better conversation with your healthcare provider and find a management plan that works for you.
💡 Learn about symptoms, diagnosis, treatment options and when it may be time to see a specialist.

👉 Explore our Chronic Rhinosinusitis resources: SinusInfo.org

Early bird pricing for MastCellCon ON TOUR ends soon! Join us this fall in Phoenix or Raleigh and secure your spot befor...
08/28/2026

Early bird pricing for MastCellCon ON TOUR ends soon! Join us this fall in Phoenix or Raleigh and secure your spot before early bird pricing ends. Phoenix early bird pricing ends September 9, and Raleigh early bird pricing ends October 13.

Register today: https://buff.ly/3GCuZqz

08/27/2026

A message from our Executive Director, Jessica Fraser: Team TMS is so close to the top spot in the Rocket Community Challenge. First place means an additional $22,000 for TMS, and matching funds are still available. Watch Jessica’s message and help us finish strong before August 28 at 5 p.m. ET.

Donate now! https://www.rocketcommunitychallenge.com/organization/Tmsforacure

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Sterling, MA

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