The Mast Cell Disease Society, Inc.

The Mast Cell Disease Society, Inc. If you are having any medical emergency such as anaphylaxis, chest pain, difficulty breathing, severe abdominal pain, you must call 911.

We are dedicated to providing multi-faceted support to patients, families and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy and collaboration. The Mast Cell Disease Society, Inc (TMS) volunteers are not doctors and not on call 24/7. TMS is not liable for emergency posts on this FB page. The Mast Cel

l Disease Society, Inc. is a nonprofit organization dedicated to supporting patients affected by Mast Cell Disorders as well as their families, caregivers, and physicians through research, education, and advocacy. We are here on this forum to support you and give you a safe place to find information and communicate with others in similar situations. We are not liable for any posting from our membership. TMS does not accept responsibility for content of any external links posted on this FB page. We are unable to monitor the content of third-party websites.

06/18/2026

RARE Revolution Magazine is honoured to have Shawna Hull joining its panel for this month's

Shawna, who lives in Georgia, USA, navigates life with both cutaneous and systemic mastocytosis. Following a 12-year diagnostic odyssey, she has become a dedicated advocate, volunteering as a group leader for The Mast Cell Disease Society, Inc. Work Life Support Group.

Join as Shawna shares her powerful story and her experience in driving understanding within the rare disease community.

đź”— Register for the webinar here: https://bit.ly/Mastocytosis-REV-inar2

We’re excited to announce that MastCellCon 2026 is going on tour!We’re hosting our in-person conference in two locations...
06/17/2026

We’re excited to announce that MastCellCon 2026 is going on tour!

We’re hosting our in-person conference in two locations this fall to help make it more accessible for our community. Each event will feature the same programming, allowing attendees to choose what works best for them.

Phoenix, AZ • October 9–10
Raleigh, NC • November 13–14

Registration will be opening soon. In the meantime, we want to hear from you! Please take a moment to fill out our attendee interest survey:
https://buff.ly/sA13nqO

Calling all Facebook connoisseurs! If you’re passionate about connection and making a difference, email Isabelle.Charlot...
06/16/2026

Calling all Facebook connoisseurs! If you’re passionate about connection and making a difference, email [email protected] or [email protected] with the subject line “Facebook Moderator Interest.”

From our partner, NORD:Want to become a more effective advocate for the rare disease community? Join NORD on June 17 at ...
06/15/2026

From our partner, NORD:

Want to become a more effective advocate for the rare disease community? Join NORD on June 17 at 1:00 PM ET for a webinar on effective lawmaker engagement and learn strategies for building meaningful relationships with elected officials and advancing rare disease policy.

Register here: https://buff.ly/VmXIuUA

06/13/2026

This month, we’re asking our community: What do you enjoy doing for fun or relaxation?

Living with mast cell disease can be challenging, and finding activities that bring joy and comfort can make a meaningful difference. We'd love to hear what helps you relax!

Stay informed by signing up for our newsletter: https://buff.ly/qKS0uY8

A diagnosis can be a critical step toward understanding and managing systemic mastocytosis.Join us for our upcoming webi...
06/12/2026

A diagnosis can be a critical step toward understanding and managing systemic mastocytosis.

Join us for our upcoming webinar, Systemic Mastocytosis Screening and Diagnosis Tools for Patients and Caregivers, presented by Dr. Nathan Boggs. Learn more about the screening and diagnostic process and gain practical information to help you navigate your healthcare journey.

June 30, 2026 at 1:00 PM EST

Register today: https://buff.ly/uPdXGzw

Register here: https://bit.ly/4wyaZUO. Cogent Biosciences invites you to join Understanding Compassionate Use / Expanded...
06/09/2026

Register here: https://bit.ly/4wyaZUO. Cogent Biosciences invites you to join Understanding Compassionate Use / Expanded Access Programs for Investigational Products, a virtual webinar on June 17, 2026 at 6:30 PM ET. This session will help you understand what an expanded access program is, how the process works and will provide additional resources.

Sign Up Today: https://bit.ly/4wyaZUO

TMS support groups create a space where patients and caregivers can connect. Whether you’re newly diagnosed or have been...
06/07/2026

TMS support groups create a space where patients and caregivers can connect.
Whether you’re newly diagnosed or have been on this journey, there’s a community here for you.

View the full schedule and find a group that fits you: https://buff.ly/iPS3BQo

Address

PO Box 416
Sterling, MA

Opening Hours

Monday 8am - 5am
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

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