JJ's Journey

06/05/2026

06/05/2026

Please teach your children about special needs. 💙

Not because my child needs pity.

Not because he needs to be treated differently.

But because one day he may roll into a park, a church, a store, or a playground without me right beside him.

And I don’t want him to be stared at like he’s a spectacle.

I don’t want him to be whispered about.

I don’t want him to feel like he doesn’t belong.

I want him to be included.

I want him to be greeted with kindness.

I want him to be seen as a child first.

Children are naturally curious, and that’s okay. But those moments are opportunities to teach compassion, respect, and inclusion.

Teach your children that some kids talk differently.

Some move differently.

Some learn differently.

And some use wheelchairs, walkers, or communication devices.

But every child deserves the same thing:

A chance to play.
A chance to belong.
A chance to be accepted.

The world can be hard enough.

Let’s raise children who make it a little softer for others. 💙

Because inclusion isn’t just important for children with disabilities.

It’s important for everyone.

06/02/2026

I’ve been organizing JJ’s medical supplies

06/02/2026

Some of JJ’s medical supply shipment for the month came in today!

05/29/2026

JJ is happy to be home!

05/28/2026

Look who is getting ready to be discharged! He’s excited! I’m looking forward to being home as well. I’m so emotionally and physically exhausted.

05/28/2026

We still don’t have a discharge time yet or all the results back from the cultures. We’re really hoping they come back this afternoon and we can get JJ home as soon as possible. He seems to be feeling somewhat better and he’s eager to get home! It’s been quite stressful the last several days with everything going on please continue to pray for JJ and all of us.

05/27/2026

JJ seems to be doing a little better. Some of his cultures came back, but they are still waiting on the antibiotic sensitivities before they can determine which one they need to send him home. They just restarted his feeds again about an hour ago. They also had to remove his IV because it infiltrated and caused his arm to get all puffy and swollen and hurt.  That also means he will need to get a new IV. 😢 I just hope we can get the answers we need soon and get him home.

05/26/2026

Got admitted to the hospital at 4 AM this morning so we did not get much sleep! They are monitoring JJ and he is on IV fluids and IV antibiotics to try to get him better. No big updates yet.