JJ's Journey

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JJ's Journey JJ got Hypoxic Ischemic Encephalopathy at birth. He has a G/J Feeding Tube, and a Trach, & and is ventilator dependent .

He has Dystonia, Lennox Gastau Syndrome, and Epilepsy, as well as spastic quadriplegic CP, Dysautonomia, and several other diagnosis’.

10/14/2026

Trach Tie Change/Trach Cares

All cozy in a towel after his bath!🛀 💙😘
10/13/2026

All cozy in a towel after his bath!🛀 💙😘

JJ had a good day today!
10/13/2026

JJ had a good day today!

I’m late , ( it was actually yesterday)
10/12/2026

I’m late , ( it was actually yesterday)

10/10/2026
🤒Yesterday JJ had several seizures and he’s been running fevers and vomiting, as well as having quite a bit of extra muc...
10/08/2026

🤒Yesterday JJ had several seizures and he’s been running fevers and vomiting, as well as having quite a bit of extra mucus .Hoping we can get him through this soon. ❤️‍🩹 

JJ is doing good this week so far! Just praying for a good rest of the week. Check out this Gift List I created.
10/07/2026

JJ is doing good this week so far!
Just praying for a good rest of the week.

Check out this Gift List I created.

10/06/2026

JJ says Good Morning! 💙🥰

The most handsome boy ever 🥰💙
10/05/2026

The most handsome boy ever 🥰💙

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Temple, TX

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