New Liver, New Kidney, New Natalie

04/17/2026

Stay in the loop on all upcoming PKD Foundation events. Our online event calendar features upcoming community meetings, Centers of Excellence events, and virtual educational opportunities all in one place.

📌 Bookmark this page to stay in the know: https://pkdcure.org/events/list/page/3/

04/07/2026

Join us for our upcoming community meeting via video conference!Share your journey and hear from others within the PKD community who understand what you are experiencing. We'll share resources to help you manage living with PKD.

02/28/2026

Autosomal recessive polycystic kidney disease (ARPKD) is one of more than 6,000 identified rare diseases. Affecting approximately 1 in 20,000 children, ARPKD is a genetic condition that causes cysts to grow on the kidneys. About one-third of children with ARPKD may need a transplant or dialysis within their first 10 years of life.

Today, on Rare Disease Day, we’re helping give a voice to the 5% of the world’s population affected by a rare disease like ARPKD.

Learn more about ARPKD ⬇️
https://pkdcure.org/about-the-disease/arpkd/

07/30/2025

Join us on Wednesday, August 6 as we continue our four-part webinar series, “Confidently Navigating ADPKD: Understanding the New KDIGO Guidelines.” In this third session, we’ll explore how ADPKD impacts the heart, liver, bones, and metabolic health.

Register today ⬇️
https://pkdcure-org.zoom.us/webinar/register/6817462150704/WN_0DJZRqkpRp---ASzXdbJ1w #/registration

*The Kidney Disease: Improving Global Outcomes (KDIGO) 2024 Guidelines for ADPKD provide the latest evidence-based recommendations to help patients, caregivers, and healthcare providers navigate the complexities of autosomal dominant polycystic kidney disease (ADPKD). Our 4-part educational series is designed to help patients and families better understand the latest KDIGO recommendations for ADPKD management.

This webinar is supported by a sponsorship from Otsuka. The PKD Foundation retains full control over the content and speaker selection to ensure unbiased, high-quality education for our community.

05/14/2025

Check out the PKD Foundation Podcast on May 15th, 2025.

Introducing our first-ever podcast series brought to you by the PKD Foundation and provided with generous support from Otsuka Pharmaceuticals. Each episode of PKD Chronicles: Navigating Life with Polycystic Kidney Disease will explore stories, science, support, and resources for families impacted by PKD.

We can’t wait to share this new resource with you this Thursday, May 15!

04/21/2025

Spring on over to talk with us at our virtual NJ monthly PKD meeting. Join us on Tuesday, May 6th, 2025 at 6:30pm

Don’t miss this opportunity to learn, ask questions, share thoughts and connect with others.

Click on the link below to register if you haven’t already. We look forward to seeing you there.

https://support.pkdcure.org/event/new-jersey-community-meeting-05-06-2025/e680555

04/21/2025

04/09/2024

10/28/2023

Woohoo!!! Today’s my 6 month Anniversary, blessed with the gift of life, from God and my donor❤️. I am so humbled by my friends and family for the prayers and love sent my way! Keep those prayers coming, still have recovery to go❤️🙏🏻 but made it to a smooth huge hump in 6 months! My friends that are still waiting, keep the faith. I will forever pray for those on the transplant list❣️. Hugs and love to all of you🙏🏻❤️🥰

06/09/2023

So I debated posting this picture, since I hid my belly for years and no one knew how unwell I really was. So to bring awareness to the disease. This is what a Polycystic Liver looks like at 10 pounds, which they removed. It was like carrying a baby. I also have Polycystic Kidney’s but they were drained and left in and will eventually just be there with no function and the new kidney will take over completely. There are so many people that suffer with this horrible disease that affects so much more than just those organs. I’m so very grateful and blessed, that the Lord and a Donor has given me a new lease on this beautiful life!!💚💚