Hazel Rose's Journey

Hazel Rose's Journey Welcome to our page to keep family and friends updated on our little fighter, Hazel Rose.

02/08/2026

Hi friends 🤍

We’ll be taking this page down soon and moving to a private account. When we first created this page, we were in the thick of everything and I didn’t realize I had set it up as a business profile. Because of that, anything posted here is public and can be shared beyond our control.

We are so incredibly grateful to everyone who has followed Hazel’s journey. We’ll continue sharing milestones on her private account as we feel comfortable.
If you’d like to continue following along, you’re more than welcome to do so. You will need to search for her private page and request to be verified.

Thank you for all the love and support during such a difficult time. It has truly meant the world to us. From family and friends who stood by us through the darkest days, to complete strangers who showed up with kindness, you’ve helped us see what really matters and how powerful it is to show up for others.

We are so deeply grateful for all of you!

I'll make sure to let everyone know when we create the private account. Thank you everyone!

She is 32 months now and still fighting! So proud of our little girl for all she's done in 979 days, after spending 378 ...
01/13/2026

She is 32 months now and still fighting! So proud of our little girl for all she's done in 979 days, after spending 378 of those fighting for her life in the NICU.

Mommy and daddy are so proud of you!

We are so proud of all the things Hazel has achieved in her short time here in earth, and this is another to add to the ...
12/09/2025

We are so proud of all the things Hazel has achieved in her short time here in earth, and this is another to add to the books.

Shortly after Hazel was born she developed Necrotizing Enterocolitis (NEC) causing us to be transferred to Children's Mercy. NEC is one of the most serious gastrointestinal diseases affecting preterm babies. It is a devastating illness where the tissue lining the intestine becomes inflamed and it often dies.

Typically the smallest and most fragile preemies are often the most vulnerable. More than 90% of NEC cases happen in preemies, just like Hazel who are born with very low birth-weight and mortality remains heartbreakingly high for many.

While in the NICU we allowed Hazel to take part in genetic-testing research while under the care of Dr. Sampath, one of her regular doctors.

Because of Hazel’s participation, researchers are gaining crucial data. We are confident that her participation will help amazing doctors continue to uncover more answers to the cause, how to intervene and hopefully one day prevent this all together.

We are so thankful, and so proud of to know her participating in this testing will help another little fighter one day.

Read the full article at the link below! đź’™

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Topeka, KS

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