04/07/2026
There are moments in life that split your world into before and after.
For us, it began the day Caysen was born.
What should have been a joyful moment quickly turned into fear as his oxygen levels dropped dangerously low… and our newborn was rushed away, fighting to breathe. That was only the beginning.
At just a few months old, Caysen was in and out of the hospital battling infections that wouldn’t go away. Eventually, we learned he was living with a rare genetic condition — Primary Ciliary Dyskinesia — making even something as simple as breathing a daily challenge.
Then came the seizures.
Then the MRI.
Then the words no parent is ever prepared to hear…
Brain malformation.
Hydrocephalus.
Emergency surgery.
At just 1 year old, we handed our baby over for brain surgery — not once, but three times.
We lived in the PICU.
We watched him endure unimaginable pain.
We faced complications, feeding tubes, and diagnoses we had never even heard of.
And yet…
Through it all, Caysen smiled.
He fought.
He showed us what true strength looks like.
Today, Caysen continues to face challenges — from a VP shunt to feeding struggles to Eosinophilic Esophagitis — but he keeps pushing forward with a resilience that inspires everyone who meets him.
And it’s because of him… that Caysen’s Crew was born.
We created this nonprofit so no family walking a complex medical journey feels alone the way we once did. We provide support, financial assistance, and hope to families who are in the fight of their lives for their children.
Because we know what it feels like to sit in that hospital room.
We know the weight of medical bills, fear, and exhaustion.
And we know how much it means when someone shows up for you.
This Arizona Gives Day, we’re asking you to stand with families like ours.
💛 Help us continue supporting children like Caysen
💛 Help us ease the burden for families in crisis
💛 Help us turn pain into purpose
If Caysen’s story touched your heart, please consider donating or sharing:
https://square.link/u/K8Cx2sSV
Together, we can remind families that they are not alone — and that even in the hardest moments, there is still hope.
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