IgA Nephropathy Foundation

05/26/2026

Join us on Thursday, June 18, 2026, at 7:00 PM ET for a special educational webinar with Lauren Levy, MS, RDN, CSR, an IgAN and CKD nutrition specialist, as she explores the science behind plant-based nutrition and shares practical ways to build a kidney-friendly lifestyle.

From simple meal strategies to affordable nutrition tips, this session will provide realistic guidance you can start using right away, whether you are new to plant-based eating or looking to strengthen your current approach.

Register today and learn how nutrition can become a meaningful part of your kidney health journey.

https://igan.org/events/

05/18/2026

Living with IgA Nephropathy can feel overwhelming, but you are not alone.

is proud to provide FREE resources and support programs for patients, caregivers, and families around the world. From education and mental health support to clinical trial information and patient connection, our goal is to ensure every member of the IgAN community has access to trusted resources and hope.

Available FREE resources include:

• Patient Guides & Worksheets https://igan.org/iga-nephropathy-guide/

• IGAN+ App https://igan.org/iganplusapp/

• IgAN Hope Patient Registry https://igan.org/patient-registry/

• Clinical Trial Information https://igan.org/clinical-trials/

• Patient Support Groups https://igan.org/support-options/

• Educational Webinars & Conferences https://igan.org/events/

• Financial Assistance Programs https://igan.org/apply-for-patient-aid/

• Free 1:1 licensed therapy through Talkspace https://www.talkspace.com/iganfoundation

• Free Mental Health & Wellness Support through Calm https://www.calm.com/b2b/iga-nephropathy-foundation/subscribe

• Nutrition Resources https://igan.org/nutrition/

• SPARK Conference Resources and Patient Support https://iganspark.org/

Whether you are newly diagnosed or years into your journey, the Foundation is here to walk beside you every step of the way.

Visit IGAN.org to explore all available resources, upcoming events, and ways to get connected with the community. ❤️💙

05/15/2026

When Jeff and his family first heard the words “IgA nephropathy,” they had never heard of the disease before. Like so many individuals facing a rare kidney disease diagnosis, their journey began with uncertainty, questions, and the need to adapt to a new reality.

In this powerful 12-minute Medical Stories feature aired on PBS stations nationwide, Jeff and his wife and care partner, Joy, share an honest look into life with — from the emotional impact of diagnosis to the everyday challenges of protecting kidney health and navigating the unknown together.

The segment also features expert insight from Jai Radhakrishnan, M.D. of Columbia University Medical Center, who explains the disease and why early awareness and kidney protection are so important.

We invite you to watch Jeff’s story and help raise awareness for everyone living with IgAN

Because of their lack of obvious symptoms and low public awareness, rare kidney diseases or RKD, like immunoglobulin A (IgA) nephropathy, make it difficult f...

05/15/2026

The future of IgAN research will be built by all of us together.

Every patient story, every shared experience, and every data point helps move research forward and brings us closer to better treatments and ultimately, a cure.

Today, we invite our global community to join the IgAN Hope Patient Registry and help shape the future of IgA Nephropathy research.

Getting started is simple, secure, and confidential.

Join in 4 easy steps:
STEP 1 Request access
STEP 2 Create your password
STEP 3 Complete the consent process
STEP 4 Complete your survey

You can enter your lab results, connect your Electronic Health Record (EHR), and save your progress at any time.

The survey takes approximately 15–20 minutes to complete and is fully HIPAA compliant.

Your voice matters. Your experience matters. You are helping build hope for generations to come.

Please Share Your Voice: https://igan.org/patient-registry/

You Are Not Alone. ❤️💙

05/14/2026

May 14 is not just another day. Today, we celebrate IgAN Aware Day and the anniversary of a Foundation built on hope, advocacy, research, and the strength of this incredible community.

As the only nonprofit organization 100% dedicated to IgA Nephropathy, we remain committed to one mission: finding a cure. And because of supporters like you, 100% of every donation goes directly toward IgAN research.

Today, we ask you to celebrate with us. Share your story. Share your hopes. Share your fears. Every voice matters, and every story brings us one step closer to greater awareness, better treatments, and ultimately, a cure.

Together, we are building a future where no one faces IgAN alone — and where IgAN has a cure. ❤️💙

05/13/2026

We are deeply grateful to every patient, care partner, family member, advocate, and supporter who has trusted us with their IgA Nephropathy journey by sharing their story.

Together, we’ve seen incredible progress, including 5 FDA-approved IgAN treatments in the U.S. and a growing number of clinical trials bringing hope to our community.

But IgAN does not stop at borders, and neither will we.

We remain committed to making sure every patient voice is heard and to fighting for true equity in IgAN treatment and care worldwide.

No matter where you are in your journey, you are not alone. ❤️💙

05/12/2026

When someone hears “IgA Nephropathy” for the first time, it can feel overwhelming, confusing, and isolating. Many patients and caregivers tell us they didn’t know what IgAN was until diagnosis changed everything.

That’s why education matters.

we believe education drives access — to answers, support, earlier diagnosis, and better outcomes.

We’re committed to making trusted resources accessible to our global community through:

• Our FREE IgAN Patient Guide — now available in English, Spanish, French, Tagalog, and Hindi, with additional languages currently in development
EXPLORE https://igan.org/iga-nephropathy-guide/

• The IgAN+ App — FREE for all Foundation members — offering community connection, lab tracking, educational tools, recipes, resources, and support in one place https://igan.org/iganplusapp/

• Educational webinars featuring leading experts and patient voices

• Animated educational videos and disease-specific resources
https://www.youtube.com/playlist?list=PLMu80_abtA46y4WDJ_yHMbygn7k7rb5GB

• Clinical trial alerts and advocacy updates

• Community support programs for patients and caregivers

If you’re a friend or family member, we encourage you to take the risk quiz and consider a kidney screening. Early detection matters.

Education leads to answers.
Answers can change outcomes.
You are not alone. ❤️💙

What has helped you learn the most about your IgAN diagnosis? Share below and help others feel less alone. Let us know in the comments👇️

05/11/2026

Kick Off IgAN Aware Spirit Week with Us

Yesterday, we proudly launch IgAN Aware Spirit Week — a time to celebrate the strength, resilience, and heart of the IgA Nephropathy community. Throughout the week, we invite patients, care partners, families, advocates, and supporters to share their stories, raise awareness, and stand together in support of everyone impacted by IgAN.

Every journey with IgA Nephropathy is unique, but one thing remains constant: no one should face this disease alone. is honored to walk beside this incredible community every step of the way.

Today’s Spirit Week theme is: Share Your Story

Post a photo from a meaningful moment in your IgAN journey and tell us:
• What this moment means to you
• How the IgAN community has supported you
• What message you want others living with IgAN to hear

Together, we raise awareness. Together, we build hope. Together, we are stronger. You Are Not Alone ❤️💙

Tag and use to join the movement.

05/08/2026

In this special conversation, MaryKate and Eddie reflect on how their parents, Ed and Bonnie Schneider, turned a personal journey into a movement that has changed lives across the IgAN community. From the earliest days of to where it stands today, they share what they witnessed growing up, the impact they continue to see, and the pride they carry in the legacy their parents built.⁠
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What started with love, determination, and a commitment to helping others has become a global community dedicated to support, advocacy, research, and hope.⁠
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As we officially kick off IgAN Aware Day on May 14, we celebrate not only awareness, but the families, caregivers, and mothers whose strength continues to move this mission forward every single day.⁠
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You are not alone. ❤️💙⁠
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Learn more about our mission, the significance of May 14th and our community at https://igan.org/iganday/
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