Parkinson's Disease Alliance of WI

Parkinson's Disease Alliance of WI A world where advanced research & treatment eliminate disorders like Parkinson's Disease In 1996, Nebraska created the country's first PD registry.

Parkinson’s disease has a significant impact on individuals, families, and society. People living with Parkinson's often require caregivers as the disease progresses and hinders their ability to perform daily activities such as dressing, eating, and walking. As the fastest growing and 2nd most common neurodegenerative disease (behind Alzheimer's), the impact of Parkinson's disease is expected to g

row significantly. A Parkinson's disease registry is crucial for several reasons: it helps track the prevalence and progression of the disease, informs public health planning, facilitates research, and aids in clinical trial recruitment. By gathering comprehensive data on Parkinson's disease cases, registries can provide valuable insights into the disease's impact on different populations and potentially identify risk factors, ultimately leading to better treatment and care strategies. When Wisconsin passes it's own legislation, we will join 15 other states in collecting health information about people living with Parkinson's in a way that supports patients' privacy and dignity and advances science and healthcare.

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06/20/2026

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Our friends over at the UW-Madison Center for Interprofessional Practice and Education (CIPE) are hosting an opportunity for folks with chronic health conditions. Share your experiences with a diverse group of future health professionals so they can practice with the most empathy, care, and collaboration 🧡

Refreshments, parking, and honorary compensation provided!

Contact CIPE to register, or use the QR code below.
📧 [email protected]
🔗 https://bit.ly/UWCIPEPatients

Congratulations Vermont!!!
05/26/2026

Congratulations Vermont!!!

Lawmakers cite studies linking weedkiller to Parkinson’s as pressure mounts for a wider US ban

We are thrilled to join researchers and advocates at the 2026 World Parkinson's Congress, taking place May 23-28, 2026 i...
05/22/2026

We are thrilled to join researchers and advocates at the 2026 World Parkinson's Congress, taking place May 23-28, 2026 in Phoenix, AZ, to advance progress and create a brighter future for those in the Parkinson's community 🌷

Wisconsin has 14,000+ people living with Parkinson's disease — and no statewide registry to understand who they are, whe...
05/18/2026

Wisconsin has 14,000+ people living with Parkinson's disease — and no statewide registry to understand who they are, where they are, or what they need. We're changing that. 💙

This October, we're hosting Wisconsin's first-ever Parkinson's Disease Registry Planning Summit. But this work doesn't run on goodwill alone.

Will you make a gift today to help us get there? https://donate.mazloweb.com/donate/9fCV78WKE7kzQHE7nVAAoq

's

We care about you and your journey with Parkinson’s…you are not alone. 🌷💜🌷
05/15/2026

We care about you and your journey with Parkinson’s…you are not alone. 🌷💜🌷

Vermont passes the first in the nation ban on Paraquat, a pesticide linked to Parkinson's disease!! Paraquat is banned ...
05/14/2026

Vermont passes the first in the nation ban on Paraquat, a pesticide linked to Parkinson's disease!!

Paraquat is banned in 70 countries across the globe, including China and the EU. Yet, the EPA continues to allow this harmful chemical to be used in the US.

Please sign this petition calling for federal action:

We're beaming with pride! 🌟 Our founder and director, Stephanie Johnson, shone bright on today's WPR episode of Wisconsi...
04/23/2026

We're beaming with pride! 🌟
Our founder and director, Stephanie Johnson, shone bright on today's WPR episode of Wisconsin Today alongside Dr. Rachel Dolhun, Michael J Fox Foundation's Principal Medical Advisor.

Together, they sparked a vital conversation about the challenges and triumphs of being a care partner to a loved one living with Parkinson's disease.

Stephanie also shared her courageous journey toward passing the Rick Johnson Parkinson's Disease Registry bill, inspiring us all to take action! 💪

You can listen to the full interview here: https://www.wpr.org/shows/wisconsin-today-2/opioid-deaths-decline-parkinsons-caretakers-burden-earth-day-field-notes

“Wisconsin Today” explores the people, places and ideas shaping life in Wisconsin. Join hosts Rob Ferrett and Kate Archer Kent for news and in-depth conversations that you can’t find anywhere else. Don’t miss “Wisconsin Today: Morning News,” our weekday news podcast featuring Wisconsin.....

Tonight, the PD Alliance of WI is lighting up for World Parkinson's Day! 💙More than 12 million people worldwide live wit...
04/11/2026

Tonight, the PD Alliance of WI is lighting up for World Parkinson's Day! 💙

More than 12 million people worldwide live with Parkinson's Disease, the fastest-growing neurological condition in the world.

We are honored to stand with the global Parkinson's community, their families, and care partners and take part in Spark the Night for World Parkinson's Day, joining landmarks around the world to shine a light on Parkinson's disease. 💫

We invite you to take a moment to visit us at the Hoan Bridge on the Milwaukee lakefront or on the livestream and share photos using to support mission.

https://www.youtube.com/watch?v=3buGEGRqLCo

(Available in French, German, Spanish, Italian, Dutch, Portuguese and English)On April 11, 2026 (World Parkinson’s Day), we are organizing a worldwide initia...

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