Victory for Vera

Victory for Vera Spreading awareness for Alternating Hemiplegia of Childhood (AHC)

Oh sweet girl, breaks my heart every time she endures a seizure, this will never get easy. This one was wicked, as she w...
07/26/2026

Oh sweet girl, breaks my heart every time she endures a seizure, this will never get easy.
This one was wicked, as she was in the bathtub. This is x2 for July😢

He will cover you
with his feathers
and his faithfulness
will be your shield
Psalm 91:4

07/15/2026

V is for VERA💜

07/07/2026
06/21/2026

Happy Father’s Day 💙🧡🤍

To the fathers who finish a long day at work only to come home and put on their advocate hat, diving into research, making calls, attending appointments, and doing whatever it takes to fight for their child.

To the dads who stay calm in the middle of a crisis, who carry their children through episodes, comfort them through the unknown, and provide unwavering strength when their families need it most.

To the fathers who have become caregivers, protectors, problem-solvers, therapists, researchers, and relentless champions for better treatments and brighter futures.

To the dads who celebrate every milestone, no matter how small. A successful therapy session, a peaceful day, a laugh, a step forward—because you understand that every victory is hard-earned and worth celebrating.

To the bereaved fathers carrying both immense love and immeasurable loss, we honor your children and stand with you today and always.

And to every father figure walking this AHC journey with quiet determination, steadfast courage, and unconditional love: we see you.

Your strength steadies your families. Your advocacy drives progress. And your dedication gives hope to an entire community.

06/10/2026

After having a very intense seizure last night she wakes to hum.

I’ve never heard Vera hum before, until this morning. 🙏🥹
What a beautiful thing to hear.

06/04/2026

Vera’s burnin!!🌬️
She’s usually doing this at school, keeping the teachers on their toes😉

05/30/2026

Address

Waukon, IA
52172

Telephone

+15633797980

Website

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