Nysi with FND

Directions Website

Nysi with FND Living with Functional Neurologic Disorder (FND) one centimeter at a time. Making the invisible a little more visible. Authentic. Honest and held.

10/07/2026

Made with Restream Studio. Livestream on 30+ platforms at once with Restream

10/06/2026

Hey y'all ๐ŸŒป

๐Ÿฝ๏ธ Functional & Fancy: FN Dining | Episode 4: Routines

Sometimes taking care of yourself isn't about doing something big. Sometimes it's just making the tea. ๐Ÿซ–โ˜•๏ธ

Routines can be funny when you're living in a body that doesn't always do the same thing from one day to the next. ๐Ÿ˜‚๐Ÿ”๐Ÿชฉ

But maybe that's the point.

A routine doesn't have to be rigid. It doesn't have to happen perfectly, at the exact same time, in the exact same way every day. Sometimes it's just a familiar little touchstone that helps you find your way back to yourself.

Make the tea. ๐Ÿซ–
Take the meds.
Eat the thing.
Sit for a minute.
Start again.

And give yourself some grace when the routine needs to change right along with you. ๐Ÿ’›

And apparently, have a little maCHHHron... macaroon... mac-a-whatever-we're-calling-it with your tea because why pronounce a French pastry normally when you can make it unnecessarily Fancรฉ? ๐Ÿ˜ญ๐Ÿ˜‚๐Ÿ‡ซ๐Ÿ‡ท๐Ÿ’…๐Ÿฝ

Listen, we can be Fancรฉ without actually knowing how to pronounce all the Fancรฉ snacks. ๐Ÿ˜‚

Functional. Fancรฉ. Flexible.

One centimeter at a time. ๐ŸŒฑ



09/29/2026

Hey y'all ๐ŸŒป

Okay, so apparently my birthday celebration needed the whole weekend because here we are on Monday. ๐Ÿ˜ญ๐Ÿ˜‚

But 42 years old. 43rd revolution around the sun. โ˜€๏ธ๐Ÿฅ‚

And after one hell of a tough revolution, I knew exactly how I wanted to start this one:

JOY.

Meds. Breathing treatment because apparently these lungs still have opinions. ๐Ÿ˜ฎโ€๐Ÿ’จ Breath as Prayer. Ch*****ne, plums, dark chocolate almonds, puppies, and birds.

Were any of these choices congruent?

Who the hell knows? ๐Ÿ˜‚

Was I happy as a damn clam?

Absa-FN-lutely. ๐Ÿ’…๐Ÿฝ๐Ÿ˜‚

Then I hit the beach with Disco Mami and a new friend with absolutely NO plan. ๐ŸŒŠโ˜€๏ธ

And for once, my body gave ME the reins.

I danced with abandon. ๐Ÿ’ƒ๐Ÿฝ Made new friends. Met new dogs, obviously. ๐Ÿถ๐Ÿ˜‚ My phone stayed in the car all day, except for one gratuitous photo shoot because I'm still the FNDiva and we have standards. ๐Ÿ’…๐Ÿฝ๐Ÿ“ธ

Most of my pictures came from everybody else's phones, and somehow the night ended with impromptu karaoke at a bar. ๐ŸŽค๐Ÿ˜‚

No itinerary. No expectations. No trying to make myself fit into anybody else's idea of what life is supposed to look like.

Just letting the day become whatever the hell it wanted to be.

And you know what?

We're not being small anymore.

I'm living BIG. I'm taking up space. I'm dancing when my body lets me dance. I'm changing the plan when it doesn't. I'm saying yes to the unexpected. I'm letting joy be loud.

And whatever about me feels too big for somebody else?

They can choke on it. ๐Ÿ’…๐Ÿฝ๐Ÿ˜‚

I'm not making myself smaller so somebody else can swallow me easier.

Because apparently one centimeter at a time can eventually teach you how to live really FN big. ๐Ÿ’…๐Ÿฝ๐Ÿ˜‚

I'm choosing joy. I'm choosing my Creator. I'm choosing Nysi. I'm choosing peace. And I'm really damn excited to see what this 43rd revolution has waiting for me. ๐ŸŒปโ˜€๏ธ

And THAT is how I wanted to start 42. ๐Ÿ’›

So yes, the birthday post is late.

Apparently I was too busy actually living the birthday to post about it. ๐Ÿ˜ญ๐Ÿ˜‚

And I'm pretty damn okay with that.

Cheers to 42, y'all. ๐Ÿฅ‚

One centimeter at a time. ๐ŸŒฑ



09/10/2026

Hey y'all ๐ŸŒป

๐Ÿน Shaken, Not Stirred | Socialization

Sometimes the thing you need most is the thing you really don't feel like doing.

Getting out of the house. Being around people. Socializing. ๐Ÿ˜ฉ๐Ÿ˜‚

And sometimes your family just needs to come steal you away for the day.

This one was chaotic in the absolute best way. Big Mexican family energy, everybody talking, everybody laughing, somebody stealing my cane and giving me s**t, an Astros game on, and me somehow getting lime directly in my eye. ๐Ÿ˜ญ๐Ÿ˜‚

I didn't even shake the drink this time. Apparently the family provided enough shaking for everybody. ๐Ÿคฃ๐Ÿ”๐Ÿชฉ

And it was exactly what I needed.

๐Ÿ‹ Keep-It-Simple Bubbly

โ€ข 2 shots vodka
โ€ข Fresh lime
โ€ข Topo Chico
โ€ข A little sweetener if yours tries to take the enamel off your teeth like mine did ๐Ÿ˜‚

โœจ Spirit-free but spirit-filled? Choose your own adventure!

Skip the vodka and grab whatever sounds good:

โ€ข Sparkling water or your favorite soda
โ€ข Fresh fruit or citrus
โ€ข A little sweetener if you want it

Throw it over ice, put it in a coupรฉ, and make it Fancรฉ. โœจ

Sometimes taking care of yourself looks like resting.

And sometimes it looks like letting the people who love you drag you out of the house when you'd rather stay home. ๐Ÿ’›

So here's your reminder: call the friend. Go sit with your family. Step outside. Touch some grass. ๐Ÿ˜‚๐ŸŒฑ You don't have to do anything elaborate.

Just connect with somebody.

Sometimes that's medicine too. ๐Ÿ’›

One centimeter at a time. ๐ŸŒฑ



Hey y'all ๐ŸŒปSix months.  One centimeter at a time. ๐ŸŒฑSwipe to read what this moment, and this tattoo, mean to me. โžก๏ธ๐Ÿ’›As al...
09/07/2026

Hey y'all ๐ŸŒป

Six months. One centimeter at a time. ๐ŸŒฑ

Swipe to read what this moment, and this tattoo, mean to me. โžก๏ธ๐Ÿ’›

As always, thank you to my tattoo boo๐Ÿ’• Julia Sanchez for the 10/10 experience. ๐ŸคŒ๐Ÿฝโœจ๏ธ๐Ÿซ‚



09/04/2026

Hey y'all ๐ŸŒป

๐Ÿ’ช๐Ÿฝ FN Do It! #3 | Progress Isn't Linear

From my very first day in neurological rehab through about the first four months of neurological physical therapy, this is what progress looked like.

Good days. Bad days. In-between days. Some days my body cooperated. Some days it had completely different plans. ๐Ÿ”๐Ÿชฉ๐Ÿ˜‚

I'm six months into this journey now, and looking back at where I started is a reminder that progress doesn't always look like getting better every single day.

Sometimes it's doing something you couldn't do before. Sometimes it's trying again on a harder day. Sometimes it's adapting. Sometimes it's simply showing up.

That's FN Do It! ๐Ÿ’ช๐Ÿฝ

Keep trying. Keep getting curious. Keep finding out what's possible.

Some days it's a big step.

Some days it's one centimeter.

They both count. ๐Ÿ’›

One centimeter at a time. ๐ŸŒฑ

09/03/2026

Hey y'all ๐ŸŒป

Just a little dinner with the girls where I was apparently officially designated a splash zone. ๐Ÿ˜ญ๐Ÿคฃ

Sis really put up a whole BARRIER to protect the white vest. Like ma'am??? ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

The disrespect. The discrimination. The completely reasonable concern based on available evidence. ๐Ÿ˜ญ๐Ÿ”๐Ÿชฉ

And yes, I may have jokingly threatened to report this blatant abuse of the whimsically disabled. ๐Ÿคฃ

Nothing deep here. Just sisters joshing, talking trash, protecting expensive clothing, and laughing way too hard over dinner. ๐Ÿ˜‚๐Ÿ’›

One centimeter at a time. ๐ŸŒฑ

08/31/2026

Hey y'all ๐ŸŒป

When you're feeling a little off, a little nauseous, and your body is craving fresh things, sometimes you just keep it simple.

Some fruit. Some veggies. A little protein. And a whole lot of listening to what your body is asking for. ๐Ÿ“๐Ÿฅ’๐Ÿซ

But this ended up being about a little more than food.

Stress matters. Rest matters. Breathing matters. And for me, so does remembering that I belong to my Creator and giving myself enough grace to not have all my s**t together every damn day. ๐Ÿ™๐Ÿฝ๐Ÿ˜‚

Apparently we can talk about the Creator and say s**t in the same video. Welcome to the Coop. ๐Ÿคฃ๐Ÿ”

Sometimes taking care of yourself really is just doing the next thing your body needs.

Nothing elaborate. Nothing perfect. Just nourishment, grace, and whatever we can manage in that moment.

One centimeter at a time. ๐ŸŒฑ

08/22/2026

Hey y'all ๐ŸŒป

Before the tears, there were shenanigans. ๐Ÿ˜‚๐ŸŒŠ

My body was doing whatever the hell it wanted, my family was talking trash while it happened, and apparently everybody decided the appropriate response was to just come along for the ride. ๐Ÿ”๐Ÿชฉ๐Ÿคฃ

No inspirational lesson here.

Just involuntary choreography, completely unnecessary family commentary, and the kind of s**t that happens behind the sunshine. โ˜€๏ธ๐Ÿ’ฉ๐Ÿ˜‚

Because sometimes life with FND is hard.

And sometimes it's just ridiculous.

Either way, sometimes you just gotta let the FNDiva Disco Chicken disco. ๐Ÿ”๐Ÿชฉ๐Ÿ’ƒ๐Ÿฝ

One centimeter at a time. ๐ŸŒฑ



Address

19325 Gulf Fwy
Webster, TX
77598

Alerts

Be the first to know and let us send you an email when Nysi with FND posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share