Little Steve vs BA

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Page to support Stephen in his fight against Biliary Atresia and PTLD
PTLD Diagnosis 3/16/2024
Liver Transplant (from Mom) on 8/2/2023
Kasai Procedure (at 5 weeks old) 11/12/2021

06/17/2026

A milestone we’ve been dreaming about for two years. 💚💛 Today was Steve’s final follow-up appointment with The Jimmy Fund after completing treatment for PTLD.

When we received his diagnosis we were scared, overwhelmed, and uncertain about what the future would hold. Hearing that he no longer needs to be followed by his cancer team is something we will never take for granted.

We are endlessly grateful to the doctors, nurses, and staff that helped Steve beat this. Most of all, we’re proud of Steve for his strength, courage, and resilience every step of the way.

06/11/2026

We hope to see everyone on July 2nd!! It is going to be a great night!!

06/02/2026

Scooper Bowl! 🍦🍨

It was a great day! Stevie tried a ton of ice cream, met Brock Holt, and even was on channel 5 giving a thumbs up!

05/16/2026

Last night we were honored to attend the Falmouth Police Gala. It is so amazing seeing so many people come together to support pediatric cancer patients and their families. We want to thank Officer Julia Massi for always thinking of us and Stevie and inviting us to this event!

04/20/2026

Congrats and all the incredible runners who ran the Boston Marathon today!!

Steve was lucky enough to get matched with Ben who ran for the Miles for Miracles team to support Hospital. Ben was also born with Biliary Atresia and had his liver transplant at 13. It was wonderful to meet him and see him thriving!!

We also got to see Steve’s transplant dietician Leanna who ran for , and his Uncle Kells who ran for which Steve was grant recipient from. We also cheered on another BA mom .every.run who ran in honor of her daughter for the Miles for Miracles team.

It’s such a great day in Boston. So many inspiring runners 💙💛

03/20/2026

Yesterday we had an amazing time headquarters in Canton where we got to go in and record us talking about for their Northeast Gala video! We cannot thank for all their support over the last three years to help Tiny Transplant Titans and all our initiatives. Steve had such a fun day! He got to meet Cooper the Dunkin Dog, have as many donuts as he wanted (which was a lot!), and try so many different flavors of Baskin-Robbins ice cream! It was such a cool office and experience!

02/10/2026

Steve had his routine check up at Jimmy Fund today and everything looked great! His next appointment will be two years since his PTLD diagnosis post transplant. Crazy how quick the time went. Since we were in Boston early we were lucky to get some free passes to the from staff. Stevie loved the aquarium and was especially excited to see “Nemo” and “Dory” at the aquarium!

02/08/2026

Thank you Weymouth Firefighters Local 1616 and Fred Happel for putting on an amazing contest for the Weymouth community!! Stevie helped shovel and measure 3 feet around a fire hydrant during the recent snowstorms and was entered into the contest. We are happy to say Stevie was one of the lucky winners and will get a ride to school in a fire truck this spring! He is so excited and over the moon!! We can’t get the smile off his face 🚒🧯

01/19/2026

The best trip to Florida!! Steve got to spend time with his grandparents, go to Disney, and be outside!

We had a blast at Disney!! His favorite things were definitely the rollercoasters, meeting characters, and the amazing experience at Chef Mickey’s. Because of his transplant he is not supped to eat at buffets but Chef TJ went out of his way to prepare food in the back for Stevie. He didn’t just bring food out but rather made an amazing display and made Stevie feel like a star!

Steve’s love for first responders continues even on vacation. The Reedy Creek Fire Department gave Stevie two patches to add to his patch collection and members of the Wildwood Police Department came over to say hi to Stevie while he was watching them at work and even put on his bracelet!

It has been such a fun trip to get out of the cold and it is never lost on us on how truly lucky we are to be able to make these memories with Stevie!

11/25/2025

Busy day of appointments today for Steve!

First was his three month appointment at Jimmy Fund to monitor PTLD. Next we headed across the street for an IVIG infusion at Boston Children’s Hospital to help his immune system. Hoping this helps him through the winter.

The hardest part was getting him to take his premeds, but he always handles these long days so well!

Address

Weymouth, MA
02189

Website

https://www.tinytransplanttitans.com/

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