Kayden's Journey

Home
United States
Wilmington, DE
Kayden's Journey

Kayden's Journey to a New Heart ❣️
Welcome to our little family's crazy adventure! Thank you so much for your support! We're happy you're here!

06/08/2026

Took FULL advantage of the weather this weekend!! 🌞🌴🏖️😎

05/04/2026

To all of the nurses Kayden has had throughout his tiny lifetime, how do we ever properly thank you? How do you thank someone for leaving their family to come take care of yours? Spending 12 hours bedside making sure your baby is as well taken care of as you would do yourself. The nurses at Nemours not only took care of Kayden during his admission - they took care of me. They looked after me, they became my friends. They became Kayden's family.

To each and every one of you, from the bottom of my heart and both of Kayden's hearts - THANK YOU for getting my boy from point A to point B safely. ❤ I watched so many of you help me advocate for my son, fight certain decisions on my behalf in my absence, celebrate the wins with me and comfort me during the lows. You guys learned the schedule I set up and the routine we had good enough to perform it on your own on days I couldn't. I hope each of you know how big of a difference you made in my stay navigating heart failure and being on the waitlist for 1 and 1/2 years. This week we celebrate each and every single one of you! Happy Nurses Week from the happiest little boy who will go the rest of his life knowing how big of the part you each played in his story!

04/01/2026

So . . . NOT to put my boys' business out there (i kno he probably won't appreciate this post when he's older) BUT . . .

just want to pat the both of us on the back for navigating nonverbal potty training and doing our first ever potty on the big boy potty! 💩

❤

02/26/2026

Enjoy the show!! 🥁
Kayden's first time experiencing the of 'pots & pans'!! 🍳
●
●
p.s. (PT friends - I KNOW I KNOW!! 🧎‍♂️ we're working on it 😩) lol 🧘‍♂️

02/17/2026

Went on our first walk NOT to/in the hospital!! It was lovely!! ❄️

02/08/2026

🏡 Mommy & Kayden Life Update:

Sooooo . . . due to some unforeseen circumstances, concerns & technical difficulties at our house in Vineland, we have regrouped and relocated Kayden's first new "big boy home" outside of the hispital world up to Hamilton, New Jersey in with my parents (Kayden's Nana & Pop!)

Although this is not how I had pictured "going home" to look after a 2 year hiatus from my home in Vineland ... such is life 🤷🏽‍♀️ With the help of my village that I am SO insanely grateful to have, we are all moved out of the Ronald McDonald House with both Kayden and my 23 months worth of stuff -- and today we're starting to work on getting our new normal figured out here, our new routine established and of course the first thing on the agenda is getting Kayden's second new big boy bedroom decorated 🤦🏽‍♀️ lol

Stay tuned for the video of Kayden ringing the good news bell before we officially walked out the doors of the Ronald McDonald House for the final time!¡ 🔔

01/13/2026

We had our 6 month check-up today!!!

🫶🏽 6 whole months! His echo looked great, his EKG looked great, his labs looked phenomenal and if his antibody values come back lower then last month, he gets to start weaning off the steroids!!! One very happy mama, one very happy jumping bean (aka Kayden) and one very happy, healthy heart! ❤ 3 more days until our actual 6-month 💝

01/10/2026

. . . . . just omg . . . . . . . . need I say more?!? 😍

Kids Kuts of Wilmington -- SO highly recommend! ⭐️⭐️⭐️⭐️⭐️
Last time Kayden sat in the red car for his haircut 🏎, and this time he got to drive the Batmobile! 💈💇🏼‍♂️

01/06/2026

Kidnapped this guy from 2B last night (jk, he was discharged). Mirulax on hand to take care of his very backed up little belly and a stronger antibiotic to try and officially kick this ear infection that he's had since the beginning of December.

(pictured) 📸 A very relieved Kayden to see that Mommy was getting us dinner (and a banana 🍌) and holding my car keys meaning he was coming with me ❤ The joy on his face when we walked back into his room and he saw all his toys and things was priceless.
⬇️
⬇️
2️⃣🅱️
((whenever I mention 2B, I'm referring to the cardiac step-down unit where Kayden will likely go for ANY type of hospitalization, no matter the reason, due to them knowing him best pre & post transplant))

01/05/2026

4am yesterday morning, sweet baby boy woke up and pretty much immediately I could tell something wasn't right. He wasn't himself and in between breathing that seemed "off", he was whimpering and crying in pain which is not like him.

I haven't been very vocal about the difficult parts of navigating day to day life right now. I REALLY really do try my hardest to find the positive in every situation and not harp on the blah parts of all this - but yesterday morning, I couldn't see the silver lining and I sat there almost frozen while my brain tried to decide if I could/should try to troubleshoot what was going on at home, or take him into the ED. I was hit right then with the reality that having a child with medical needs requires you to have doctor level knowledge and you're asked/required to do doctor-like things on a regular basis -- but in that moment, I was not his doctor, not his nurse . . . I was just Kayden's mom. My brain couldn't do the caregiver thing while I held him crying in agony for some reason and so to the hospital we went. The panic, PTSD, etc. that sets in when he's not acting himself is paralyzing and the frustration of him not being able to verbalize what is hurting or what is wrong is frustrating beyong words. How quickly my nervous system slipped right back into survival mode and how the fear never truly leaves, no matter how long of a good stretch you've had. Our reality is that hospital runs and admissions will be a regular part of our future. Luckily, this one resulted in a pretty nasty double ear infection along with a very constipated belly needing some intervention. But our heart, that thing is just ticking away healthy as ever 🙏 VERY grateful this admission was just for monitoring while we got him back to baseline before discharge, which should happen this afternoon.

So over the last few months I have learned to give myself grace. Yes I am asked to do doctor-like things and carry doctor level knowledge to take care of my son at home, but sometimes it's okay if I am just Kayden's Mom and need to ask for help.

Address

1901 Rockland Road ROOM 320
Wilmington, DE
19803

Website

https://gofund.me/8338dd60

Alerts

Be the first to know and let us send you an email when Kayden's Journey posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Kayden's Journey:

Shortcuts

Want your business to be the top-listed Health & Beauty Business in Wilmington?