National Organization for Disorders of the Corpus Callosum

National Organization for Disorders of the Corpus Callosum Leading nonprofit dedicated to enhancing the lives and promoting opportunities for individuals livin

09/11/2026

As we look ahead to the rest of 2026, one of our biggest development priorities is also one of the simplest: helping more people know NODCC exists!

Awareness and fundraising are more connected than they may seem. Before someone becomes a donor, corporate partner, volunteer, or advocate, they first have to know who we are, understand why our work matters, and feel connected to the people we serve.

And that is where you can make an enormous difference.

You already have connections NODCC may never be able to reach through a mailing list or a cold email. Your employer may have a charitable giving program. A business you frequent may support local or national nonprofits. Your civic group, school, healthcare provider, professional association, or community foundation may be looking for organizations to support. Sometimes all it takes to open that door is someone saying, “I know an organization you should meet.”

Over the coming months, we’ll be working to increase awareness of Disorders of the Corpus Callosum while building relationships with individuals, foundations, businesses, and organizations that can help NODCC grow.

You can help right now by doing one simple thing: make a connection.

Introduce NODCC to someone in your network. Share an NODCC post. Tell your employer why this organization matters to your family. Ask whether your company offers matching gifts or community grants. Share your family's story. Invite someone new to learn about DCC.

You don't have to be a fundraiser to help NODCC fundraise.

You just have to help us open the next door.

Have a connection, idea, or potential partner we should know? We'd love to hear from you. Contact Naomi ([email protected]) and help us make sure more people discover NODCC! This helps more families discover a community where they belong.

Thank you!

As you settle into the new school year, our next webinar will focus on another important part of your child’s learning j...
09/08/2026

As you settle into the new school year, our next webinar will focus on another important part of your child’s learning journey: reading. 📖

📚Teaching Reading: From Word Skills to Comprehension
Presenter: Lauri White, MEd, NODCC Board Member (2025–2028)
September 22
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST

If you are a parent that is helping your child with homework or homeschooling your child, then this will give an overview of how to tackle reading acquisition, more complex reading tasks, and comprehension. I will show how to learn new words, break words down, spell and then comprehend written passages. We will explore predicting, inference, cause and effect and more.

Click here to register: https://us02web.zoom.us/meeting/register/fVjcAbcEQrqfEQvbMvXgaA

💙 REGION 7 GATHERING 💙IA • KS • MO • NE📆 Saturday, October 3, 2026🕐 10 AM–5 PM📍 Hope Elim Church2500 University Ave, Des...
09/05/2026

💙 REGION 7 GATHERING 💙
IA • KS • MO • NE

📆 Saturday, October 3, 2026
🕐 10 AM–5 PM
📍 Hope Elim Church
2500 University Ave, Des Moines, IA 50311

Join us for a day of connection, learning, and community with DCC families from across Region 7!

➡️ What to expect:
• 2–3 informative lecture topics
• Open discussion and Q&A
• Time to connect and share with other DCC families
• Snacks, drinks & lunch provided
• Child care available
• $10/person

Whether you’re looking to learn something new, meet other families in your region, or simply connect with people who understand, we’d love to have you join us!

📩 RSVP to Lynn Lindberg: [email protected]

📣 Your Voice Matters 📣 The NODCC and our Governance Committee are looking for input from our members to help guide the f...
09/02/2026

📣 Your Voice Matters 📣

The NODCC and our Governance Committee are looking for input from our members to help guide the future of our advocacy efforts. Your voice can help us better understand where and how you’d like to see NODCC’s advocacy work evolve as an organization.

💬 Take a few minutes to share your thoughts by completing the survey linked here: https://forms.gle/4FHHofVRgU9TwDXy9

We’ll share the findings and what we learn through an upcoming newsletter.

Thank you for helping shape the future of NODCC’s advocacy efforts!

✨ Board Member Spotlight: Lexy Smith ✨As a young girl at the NODCC Conference in the early aughts, Lexy's dream was to b...
08/30/2026

✨ Board Member Spotlight: Lexy Smith ✨

As a young girl at the NODCC Conference in the early aughts, Lexy's dream was to be part of the coveted "Adults with DCCs" group. Now she is not only an incredible adult, college student, and homeowner, but she's a new addition to the NODCC board of directors! Please join us in welcoming Lexy Smith to the NODCC Board! Lexy’s connection to the NODCC began more than two decades ago, when she attended her first conference with her mom in 2002. Since then, the organization has played an important role in her life, from making lifelong friendships in Kids Camp, (including one friendship that has now lasted nearly 19 years!) to watching adult participants gain knowledge and support around their DCCs.

💙 Read Lexy’s full spotlight at https://nodcc.org/lexy-smith/

Tap to see a snippet from Lexy’s 2024 NODCC Conference interview, also featured in the spotlight and on our YouTube channel: https://youtu.be/2o2_XiCpwOM 🎥

✏ Back-to-School: Tools to Support Your Child’s Success ✏As families get ready for a new school year, the NODCC’s webina...
08/28/2026

✏ Back-to-School: Tools to Support Your Child’s Success ✏

As families get ready for a new school year, the NODCC’s webinar series is here to help parents and caregivers feel informed, prepared, and empowered to support their children at school and at home.

📝 Start the School Year Strong: Understanding the IEP

Our latest webinar, “IEP Process…Don’t Be Afraid! Be an Integral Part of Constructing Your Child’s IEP,” with Lauri White, MEd, NODCC Board Member (2025–2028), focused on one of the most important tools for supporting students with disabilities: the Individualized Education Plan.

Lauri walked through each area of the IEP and explained how present levels of performance should help shape goals, accommodations, and services. She also discussed the importance of parental input and shared strategies to help parents effectively communicate with their child’s educational team and advocate for the support their child needs to succeed.

If you're heading into a new school year with an IEP, or simply want to better understand how to be an effective member of your child’s educational team, this recording is a great resource.

Watch the webinar recording here: https://youtu.be/N7RigI4hINc

📚 Next Up: Teaching Reading

As you settle into the new school year, our next webinar will focus on another important part of your child’s learning journey: reading.

Teaching Reading: From Word Skills to Comprehension
Presenter: Lauri White, MEd, NODCC Board Member (2025–2028)
September 22
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST

If you are a parent that is helping your child with homework or homeschooling your child, then this will give an overview of how to tackle reading acquisition, more complex reading tasks, and comprehension. I will show how to learn new words, break words down, spell and then comprehend written passages. We will explore predicting, inference, cause and effect and more.

Click here to register: https://us02web.zoom.us/meeting/register/fVjcAbcEQrqfEQvbMvXgaA

Start the school year with practical tools, helpful information, and greater confidence in supporting your child’s learning!

Check out this week's community calls schedule! Register today using the links below. We hope to see you soon! 😁Moms' Ci...
08/25/2026

Check out this week's community calls schedule! Register today using the links below. We hope to see you soon! 😁

Moms' Circle: Support and Sharing for Children Living with DCC
August 25
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Jana Shaffner, Mom of C-ACCer, Career Advisor
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA

Adults Connect: Living with DCC
August 26
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
Conference may be over, but the connections don't have to end! Join us as we reflect on our favorite moments, share our biggest takeaways, and continue the conversations from the 2026 conference.

Whether you attended or not, all adults in the DCC community are welcome. Come reconnect, meet new friends, and stay connected beyond the conference!
Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA

‼️ Save the Date ‼️Region 7 (IA, KS, MO, NE) Gathering📆  Saturday, October 3, 2026🕐  10 AM - 5 PM📍 Hope Elim Church, 250...
08/23/2026

‼️ Save the Date ‼️

Region 7 (IA, KS, MO, NE) Gathering
📆 Saturday, October 3, 2026
🕐 10 AM - 5 PM
📍 Hope Elim Church, 2500 University Ave, Des Moines, IA 50311

$10/Person • Snacks, Drinks & Lunch Provided • Child Care Available

Come connect, build community, and spend the day with DCC families in your area! More details coming soon—stay tuned!

🍳 Support the NODCC through this Pampered Chef Fundraiser 🥄It’s Double Donation Month, and Pampered Chef is donating DOU...
08/21/2026

🍳 Support the NODCC through this Pampered Chef Fundraiser 🥄

It’s Double Donation Month, and Pampered Chef is donating DOUBLE for every dollar raised!

💻 Shop your Pampered Chef favorites and enjoy:
- FREE gift when you spend $90
- FREE shipping when you spend $150

➡️ For more information about the fundraiser and to start shopping, click here: www.pamperedchef.com/party/nodccfundraiser.

📲 Register Today 📲Teen Talk: Self-Advocacy 101: How to Ask for What You NeedAugust 2212:00 pm PST / 1:00 pm MST / 2:00 p...
08/18/2026

📲 Register Today 📲

Teen Talk: Self-Advocacy 101: How to Ask for What You Need
August 22
12:00 pm PST / 1:00 pm MST / 2:00 pm CST / 3:00 pm EST
Facilitator: Lexy Smith and Allie Calverley, Social Work Students & Adults Living with DCC, Michael Guaimas, Undergraduate Student and Research Assistant at Washington University in St. Louis, Class of 2027

Speaking up for yourself can feel challenging, but it's an important skill. Join us as we talk about self-advocacy, building confidence, and practical ways to ask for the support, accommodations, and understanding you need at school, at home, and in everyday life.

Register Here: https://us02web.zoom.us/meeting/register/k-PoO9QQQ8elIxrDn6-imA

Address

Yorba Linda, CA

Opening Hours

Tuesday 7am - 3pm
Wednesday 7am - 3pm
Thursday 7am - 3pm

Telephone

+17147470063

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