PiNSA Primary Immunodeficiency Network of South Africa

Please donate blood or plasma at your nearest South African National Blood Service or Western Cape Blood Service branch ...
01/06/2026

Please donate blood or plasma at your nearest South African National Blood Service or Western Cape Blood Service branch 🙏

Every donation helps secure lifesaving treatment for patients with a primary immunodeficiency. 💗

18/05/2026

For people living with Primary Immunodeficiency (PI), their immune systems can't produce enough antibodies to fight off infections — a condition they are born with and live with every day.

The life-saving treatment? Immunoglobulin therapy (Ig therapy) — and it comes entirely from donated human plasma.



11/05/2026

*This is a reminder to donate plasma at your nearest South African National Blood Service or Western Cape Blood Services.*
Plasma is incredibly important in the production of immunoglobulin products for patients with a range of conditions, including Primary Immunodeficiency.

To the moms carrying more than most people will ever see.The appointments.The worry.The medications.The late nights.The ...
10/05/2026

To the moms carrying more than most people will ever see.

The appointments.
The worry.
The medications.
The late nights.
The strength it takes to keep showing up, even when your own health is part of the battle too.

Today we celebrate the mothers raising children with Primary Immunodeficiencies while often navigating their own health journeys at the same time.

You are caregivers, advocates, protectors and the steady hand through uncertainty.

Most of all, you are not alone.

From all of us at PiNSA, Happy Mother’s Day to the women holding families together with courage, resilience and love. 💙

08/05/2026
📢 This World PID Month, we're calling on healthcare professionals, policymakers, and advocates to act.Primary Immunodefi...
28/04/2026

📢 This World PID Month, we're calling on healthcare professionals, policymakers, and advocates to act.
Primary Immunodeficiency affects millions worldwide — yet diagnosis is often delayed by years. Without timely treatment, PI patients face life-threatening complications that could be prevented.
The message is simple: PI patients cannot wait any longer.
✅ Learn the signs ✅ Champion early testing ✅ Advocate for access to treatment
Join the conversation this World PID Week and help make change happen. 💙

Every person living with a Primary Immunodeficiency deserves more than awareness. They deserve a clear diagnosis, access...
24/04/2026

Every person living with a Primary Immunodeficiency deserves more than awareness. They deserve a clear diagnosis, access to care, and a future defined not by their condition, but by their potential.

Let’s close the gap between knowing and doing. Let’s turn powerful stories into policy, compassion into clinical confidence, and insight into impact.

Let's arm our changemakers with the tools they need to build a better future.

Imagine being sick for years… and no one can tell you why.For many people living with Primary Immunodeficiency, diagnosi...
23/04/2026

Imagine being sick for years… and no one can tell you why.

For many people living with Primary Immunodeficiency, diagnosis doesn’t come quickly.
It takes years. Sometimes decades.

• Repeat infections
• Endless doctor visits
• No clear answers

That delay isn’t just frustrating. It’s dangerous.

This World PID Week, we’re calling it out.

Faster diagnosis matters.
Access to treatment matters.
Listening to patients matters.

Because waiting has a cost. And patients have already waited long enough.

Watch and share: https://youtu.be/usWZzNt1LXc

Who in your world needs to understand this better?

World PI Week Video: We Can Transform Lives, Together

Address

Glen Austin

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