Totallyfunkless

Totallyfunkless Steff Di Pardo is an advocate for Ankylosing Spondylitis, Fibromyalgia, and living with a dynamic disability. She creates content around these subjects. ♿️

I checked my bloodwork from my infusion a few weeks back and was SHOCKED. My CRP (C-Reactive Protein — which checks for ...
09/01/2026

I checked my bloodwork from my infusion a few weeks back and was SHOCKED.

My CRP (C-Reactive Protein — which checks for inflammation in your body) was the lowest it’s been since I started Remicade back in 2022 (the bloodwork results go back to April 2023). All of my other counts were in normal range too!

This is so great! I’m so happy! Exactly a year ago was the highest it’s ever been, and now one year later it’s the lowest it’s ever been.

Things can get better 🫶 back in April I moved my infusions to every 4 weeks because of a giant flare, and I guess it’s really done its job in terms of inflammation!

This also makes me suspect even more that the fatigue I experience is ME/CFS related, but that’s another story.

For now, I’m taking this huge win for myself and my body 💖

✌️🫂💖

Thanks for this ↟ CRYW✿LF ↟↟ Steph & Rose ✌️
08/31/2026

Thanks for this ↟ CRYW✿LF ↟↟ Steph & Rose ✌️

CNE day ✌️🎡🎠
08/30/2026

CNE day ✌️🎡🎠

The fatigue queen is here 😴👑✌️
08/26/2026

The fatigue queen is here 😴👑✌️

Reminding myself of these things because sometimes it’s hard 🫶 but all of these are COMPLETELY normal. You’re doing grea...
08/25/2026

Reminding myself of these things because sometimes it’s hard 🫶 but all of these are COMPLETELY normal.

You’re doing great. You look great. Keep killin’ it 💖

I wanted to post a little update on my health stuff! 1. I saw the Breast Reduction surgeon a week and a bit ago and I wi...
08/24/2026

I wanted to post a little update on my health stuff!

1. I saw the Breast Reduction surgeon a week and a bit ago and I will say that my first impression was not good. I won’t go into too much detail but I’ve decided that I will not be going forward with surgery from this doctor. Bummer, but we move. ✌️

2. I saw my neurologist for my migraines and since the Candesartan is working well, I won’t have to see her for close to a year! Unless something comes up.

3. About 6 or so months ago my family doctor removed me from my birth control I’d used for years because of stroke risk due to my migraines. This was upsetting to me because I really liked it and it helped me in more ways than one. I was put on the mini pill and quickly noticed that I was experiencing hair thinning and it’s gotten worse over the months.

I asked my neurologist at the appointment if this was the move, and she said that this was old fashioned thinking and I was perfectly fine to go back on my combination birth control pill.

So I will be continuing it ASAP! Thank god. It’s a little frustrating that this didn’t need to happen, I didn’t need to lose this much hair and experience 18 day periods, but I can’t change what was done.

That’s my update! Thanks if you read this 🫂💖

💖✨✌️
08/23/2026

💖✨✌️

Spent the day at the CNE! 🎡🎠🎟️I used my Roamate (video to come) and loved it! I was able to walk with it as a walker, an...
08/22/2026

Spent the day at the CNE! 🎡🎠🎟️

I used my Roamate (video to come) and loved it! I was able to walk with it as a walker, and use it as a power chair when I got too tired 🫶

I love this time of year every year, and spending today with my mom and brother was so lovely! 💖

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