02/05/2026
🧬 May is Neurofibromatosis (NF) Awareness Month 🧬
This May, we come together to raise awareness, spark conversations, and support individuals and families living with Neurofibromatosis (NF). 💙💚
NF and rare diseases are more than just medical conditions — they are lifelong journeys that affect each person differently. Through awareness, we can promote early recognition, reduce stigma, and build a more supportive community.
✨ Join us this month at Prangin Mall! ✨
We’re excited to announce a series of upcoming events aimed at educating the public, empowering families, and strengthening rare diseases community.
📍 NF1 Awareness Day 2026
🧬 Beyond the Spots: Understanding NF1
Engage with interactive booths, learn to recognise early signs, reduce stigma, and build a more supportive community.
📍 1st Northern Region Rare Disease Symposium 2026
A platform bringing together healthcare professionals, researchers, and patient advocates to share knowledge, enhance collaboration, and improve care for individuals affected by rare diseases.
📍 NF1 Dinner Symposium
🧬 Beyond the Spots: Optimizing Outcomes through Early Referral and Integrated MDT Care in NF1
An evening of deeper discussion, collaboration, and shared commitment towards improving care and management for NF1.
❣️ Whether you are a healthcare professional, caregiver, patient, or member of the public — your presence matters.
💬 Together, we can:
• Increase awareness
• Encourage early and integrated medical advice
• Support the rare disease community
