10/09/2026
The Bits We Skip When We Only Share the Good Stuff
Hope, Realism and Pollyanna 💭
I've been thinking about how you balance positivity and realism in ageing and health.
Darcy's story is inspirational: remission from stage-four sarcoidosis, and going from a cocktail of 26 pharmaceuticals down to three 💊➡️🌱. So are his VO2 Max numbers, which he has lifted from 16 into the mid-forties even with COPD.
When he was at his sickest, he was on a massive dose of prednisone to stay alive. At one stage it was 1,000 mg a day (50 mg a day is considered high). He knew that same dose was harming him. Steroids have side effects of high blood pressure, insomnia, osteoporosis, a suppressed immune system and weight gain, and long-term use can damage your organs. Darcy calls them "Devil's Tic-Tacs" 😈. At the time, they were a necessary evil.
He made changes, but steadily and in order of urgency. He learned about his disease and how to listen to his body. Day by day and week by week, he stacked up small lifestyle changes until his health began to shift 🧱. He also worked with his doctor to reduce his pharmaceutical intake.
At Zestt, we regularly hear inspiring stories like this: people reversing metabolic issues like Type 2 diabetes, people improving their VO2 Max while living with COPD. So it's easy to come across a little Pollyanna-ish, because when we celebrate those stories, we can gloss over the challenges along the way.
Darcy has a dreadful story of when he was undergoing chemotherapy for his sarcoidosis. He was stuck, lying on the bathroom floor "going from every end." He also shares stories of the mind games and mental challenges of being hospitalised after a heart attack, just when he thought he was recovering. I remember one day at Zestt, Darcy came in after being told his sarcoidosis was worsening again. It was hard to know what to do or say; his despair was seeping from every pore.
So yes, Darcy is officially in remission from sarcoidosis and has improved his cardiovascular health hugely – that's the inspiring stuff we share ✨. But we are under no illusions.
Dealing with chronic diseases like sarcoidosis, Type 2 diabetes, cardiovascular disease and autoimmune conditions is a game of snakes and ladders 🐍🪜. Hope matters; so does recognising how hard it can be. To those of you out there navigating the map of hope and despair, we see you, and we cheer you on as flamboyantly as we can, without being di*****ds 💜.