Team Boogy - Fighting B-cell ALL

Team Boogy - Fighting B-cell ALL Visalia "Boogy" is a 6 year old girl who was diagnosed with B-cell ALL.

Boogy started Maintenance phase 4 on Friday! She didn't have her normal lumbar puncture that happens on day 1 of each ph...
06/14/2026

Boogy started Maintenance phase 4 on Friday! She didn't have her normal lumbar puncture that happens on day 1 of each phase, instead she will have it in 4 weeks (day 29) she did however start the normal steroid pulse that happens at the start of each Maintenance phase. Steroids suck and I hate them so much but it is a big reminder of how far she's come. Now instead of feeling this way most days, its just one week every three months, which I'm thankful for. I just wish she didn't have to feel it at all. Luckily she understands and knows things should be back to normal in a week or so. Her numbers are decent for what they want them at so keeping her at 50% chemo may be the trick. So for this week its pills, pills, more pills, insulin, injections, feeling crummy and lots of naps.

Look at how amazing all of you are at collecting tabs for Ronald Mcdonald house!! We filled more than two of their totes...
05/13/2026

Look at how amazing all of you are at collecting tabs for Ronald Mcdonald house!! We filled more than two of their totes! Also for everyone worried that their small ziplocs aren't much, the gray tote is filled mostly with everyone's "small" contributions. It all adds up! We're so appreciative of everyone's hard work on collecting these, we love being able to do this for our home away from home!

Boogy had her checkup today, we're bumping her chemo to 75% but will check her numbers in two weeks. Since she's had so many ups and downs with her numbers, her doctor is thinking 75% might be where we have to stay for the rest of treatment.

We have appointments this next week and will be staying at Ronald Mcdonald house if anyone has tabs for us to pick up! M...
05/08/2026

We have appointments this next week and will be staying at Ronald Mcdonald house if anyone has tabs for us to pick up! Message me and I can swing by!
Thank you everyone!!!

Boogy had her labs checked today, she's doing excellent! They bumped up her chemo a little to start working her back up ...
04/16/2026

Boogy had her labs checked today, she's doing excellent! They bumped up her chemo a little to start working her back up to being at 100% dose.

Panther wanted to sit with her while Pedro the Port was accessed! Panther is the bestest boy!!

Boogy had her Lumbar puncture today. Her numbers have tanked to 540, she was 3050 in tge ER on Sunday. They figured its ...
03/20/2026

Boogy had her Lumbar puncture today. Her numbers have tanked to 540, she was 3050 in tge ER on Sunday. They figured its probably from whatever caused her fever on Sunday. The allergies bugging her could be contributing too. She will have labs next week to check if we need to do a chemo hold since she was barely above the minimum today. In the meantime, she'll have steroids and insulin all week. So we're on the routine of checking insulin every three hours 😓 I'm excited that they'll let her try a Dexcom, it is attached to her arm and at least if her numbers are ok at midnight and 3am, I won't have to wake her up for insulinšŸ¤ž

We attempted a small family trip this week. Derek was in a wedding on Saturday in Laguna Beach, so we figured we'd stay ...
03/18/2026

We attempted a small family trip this week. Derek was in a wedding on Saturday in Laguna Beach, so we figured we'd stay a couple extra days and try to do a few fun things. It unfortunately didn't go as we'd hoped BUT we did get to go to and thanks to the passport gives to all the kids who visit. That was a really neat treat.

Unfortunately Boogy and I had to visit the Emergency Room in the middle of the night while there. Luckily, they have an amazing children's hospital. If you're ever in the San Diego area, is top notch! They got her in immediately, even with a line out the door, which we felt terrible jumping past. They isolated us very quickly due to Boogy having a high temperature. They got in touch with our team immediately and once again, the entire staff absolutely adored Boogy. She told them all about Pedro her Port and all about her doctors, nurses and child life specialists. She chatted about the zoo and they gave us all kinds of fun tips for visiting there. They told her how incredibly brave she is and she told them she has friends in clinic that are more brave than her.

We're grateful we got to knock some things off our bucket lists and see some new areas. Plus get to add to our list of hospitals we've visited, Boogy and I have decided we could start a review page for hospitals at this point šŸ˜‚

kickcancer

When a child is seriously ill, the focus is rightly on saving that child’s life. But behind every hospital bed is a brot...
03/13/2026

When a child is seriously ill, the focus is rightly on saving that child’s life. But behind every hospital bed is a brother or sister or both, whose world has changed too.

They watch their parents disappear into hospital corridors. They feel the worry in the house. They miss the normal life they once knew. Their life becomes full of sacrifice.

Often they try to be brave, and understanding, because they know their parents are carrying so much. But siblings carry the weight as well. They are often the ā€œforgotten childrenā€

Our children have certainly been forced to take on too much in their young lives. They do it for their sister that they love so much and I know they'd choose to over and over again.



šŸ“ø

Boogy finally made counts this week. So she's back on chemo. She'll take 50% and we'll go up gradually over the next sev...
03/12/2026

Boogy finally made counts this week. So she's back on chemo. She'll take 50% and we'll go up gradually over the next several weeks until she's back to 100%

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