Cholangiocarcinoma Foundation

Cholangiocarcinoma Foundation Our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.
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CCF supports basic & translational research and raises awareness in the cholangiocarcinoma community through advocacy, education, collaboration, and research. For more information, please visit our website at cholangiocarcinoma.org.

"This program gave me a community of people who have gone through or are going through the same thing as I am. As a Ment...
06/14/2026

"This program gave me a community of people who have gone through or are going through the same thing as I am. As a Mentee, this program is so important! And as a Mentor, I can't think of anything I'd rather do than give back to the community."

CholangioConnect partners you with a mentor so you can get the support you need from someone experienced with this disease. Request a mentor today at curecca.link/cc.

🌍What began as a CholangioConnect mentor-mentee match in 2022 has become a friendship spanning continents.Living thousan...
06/13/2026

🌍What began as a CholangioConnect mentor-mentee match in 2022 has become a friendship spanning continents.

Living thousands of miles apart in Kenya and New York, Irungu and his mentor Erica supported one another through life’s challenges. Over the years, they stayed connected through video calls, texts, family photos, and shared milestones.

After several missed opportunities to meet, they finally connected in person while Irungu was in New York City for the Tribeca Film Festival, where the film he performs in was selected for screening.

From brunch near Grand Central to a walk through Bryant Park, their conversation flowed as naturally as it had for years. Their story is a reminder that the connections formed through this community can grow beyond mentorship into lasting friendship. Mentorship is available for patients, caregivers, and bereaved caregivers. Please learn more and request a mentor or volunteer to be one here: curecca.org/get-one-on-one-support/

Be the reason someone finds support sooner. One simple action can make a difference.Community Awareness Volunteers help ...
06/12/2026

Be the reason someone finds support sooner. One simple action can make a difference.

Community Awareness Volunteers help connect patients and families to trusted CCF resources — often through small but meaningful acts of outreach.

That could look like:
• Sharing a CCF flyer with a local clinic or cancer library
• Posting a newly diagnosed resource on social media
• Connecting with a nurse navigator or healthcare team
• Bringing awareness materials to a community event
• Helping someone discover support they may not have found otherwise

You do not need medical experience to help someone feel more informed, supported, or less alone.
Every conversation matters. Every connection matters.

Already an active CCF volunteer?
Register for the June 17 Community Awareness Volunteer Kickoff & Training here: curecca.link/june17

New to volunteering with CCF?
Start your volunteer journey here: curecca.link/volunteerapplication
One small action could help someone find hope, answers, and support sooner.

06/11/2026

"The basis of our hope is investment in research."

Teresa continues to honor her husband Steve's memory through her work on CCF's board, where she is a powerful advocate for collaborative and innovative research advancements. The key: funding.

You can be part of this incredible hope. Your gift to Campaign for the Cure today fuels the next discovery, supports patients and families, and brings us closer to a future where cholangiocarcinoma is no longer a life-threatening disease.

Together, we're not just imagining a cure—we're actively building it.

Give today at curecca.link/c4c26

Join our upcoming Webinar: A trial of next-generation immunotherapy (Rilvegostomig) plus chemotherapy in advanced biliar...
06/11/2026

Join our upcoming Webinar: A trial of next-generation immunotherapy (Rilvegostomig) plus chemotherapy in advanced biliary tract cancer (ARTEMIDE-Biliary02) on June 16, 2026, at 4:00 p.m. ET with Dr. Lipika Goyal.

Patients with newly diagnosed advanced biliary tract cancer are often treated with immunotherapy plus chemotherapy. This webinar will discuss a new ongoing clinical trial in biliary tract cancer investigating a new immunotherapy drug called rilvegostomig in combination with standard chemotherapy. The study called ARTEMIDE-Biliary02 is a phase III randomized global study of rilvegostomig or durvalumab in combination with chemotherapy in first-line treatment of advanced biliary tract cancer.

This webinar is sponsored by AstraZeneca. Register today at curecca.link/june16th.

The 2026 Los Angeles Cholangiocarcinoma Symposium is set to convene in Los Angeles, drawing together leading experts, re...
06/10/2026

The 2026 Los Angeles Cholangiocarcinoma Symposium is set to convene in Los Angeles, drawing together leading experts, researchers, healthcare professionals, patients, and advocates.

This event promises to be a crucial platform for sharing the latest advancements and addressing the challenges in cholangiocarcinoma research and treatment.

🗓️ September 19, 2026
⏱️ 8:00am – 4:00pm
đź“ŤUniversity of Southern California

Snacks, Beverages, and Lunch will be served

Register today at curecca.link/la2026.

"I’m asking you to support the Cholangiocarcinoma Foundation’s Campaign for the Cure today, so that families, like mine,...
06/09/2026

"I’m asking you to support the Cholangiocarcinoma Foundation’s Campaign for the Cure today, so that families, like mine, facing cholangiocarcinoma can have more time together to enjoy the fun stuff." -Keaton Herzer, CCA Survivor

"Since my diagnosis, I’ve tried to make the most of the time we have: hiking fourteen-thousand-foot mountains here in Colorado, spending more time in the outdoors, and making memories with my family. Cancer has changed my life, but it hasn’t changed what matters most to me.

Just one month after my liver transplant, I had the opportunity to share my story at CCF’s Annual Conference in hopes of letting others know they are not alone on this journey and that it doesn’t have to be an isolating experience. CCF has helped provide a path forward during some of the hardest moments my family and I have faced. "

Your gift to the Campaign for the Cure can help fund vital research, connect patients to lifesaving resources, and give families more time together.

Give today at curecca.link/c4c26.

06/09/2026

"Science is progressing rapidly. There's hope, and there's a path forward."

Derek, a survivor, shares his advice for those newly diagnosed with cholangiocarcinoma.

If you or someone you know is just beginning their journey and in need of support, visit curecca.org/newly-diagnosed to get connected to a patient advocate today. đź’š

📢 Join us for the 2026 Cleveland Cholangiocarcinoma Symposium! We are honored to welcome Dr. Haley Ellis as our keynote ...
06/08/2026

📢 Join us for the 2026 Cleveland Cholangiocarcinoma Symposium! We are honored to welcome Dr. Haley Ellis as our keynote speaker. 🗣️

On June 26, 2026, leading experts, researchers, healthcare professionals, patients, and advocates will gather in Cleveland for an important day dedicated to advancing cholangiocarcinoma research, treatment, and patient care.

đź—“ Date: June 26, 2026
🕚 Time: 11:00 AM – 4:30 PM
đź“Ť Location: Cleveland Clinic, Taussig Cancer Institute (Building CA)

This symposium will serve as a vital platform for collaboration, education, and innovation as we work together to address the challenges of cholangiocarcinoma.

âś… Register today at http://curecca.link/cleveland.

Understanding biomarker test results can feel overwhelming for many patients and caregivers. Join this free webinar to l...
06/08/2026

Understanding biomarker test results can feel overwhelming for many patients and caregivers. Join this free webinar to learn more about biomarker testing, what results may mean, how to use an AI tool to understand your results, and how they can help guide treatment decisions.

đź“… June 15
đź”— Register here: https://shorturl.at/0PGJU

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5526 W 13400 S, # 510
Herriman, UT
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