https://aspire.care/featured/new-jersey-pans-pandas-updates/

PANS Pandas ACT NJ, Paramus, NJ (2026)

06/08/2026

Wow. Did you know?

In the same timeframe that we’ve been working (hard!) to get bill S598 (insurance coverage for the diagnosis and treatment of PANS/PANDAS) posted to Senate Commerce Committee (to move onto the next step), Connecticut:
→ Introduced
→ Passed
→ Signed ✍🏻
similar legislation (HB 5374) into law —within three months! 📜 🏛️🖋️ ⚡️💨

Yes, you read that right!

From introduction on February 26th to Public Act 26-33 — signed May 28, 2026 (coverage starting January 1, 2027) Total: ~3 months from filing to signed legislation.

↑ THIS is what’s possible when lawmakers move with urgency for our kids.

While New Jersey families remain stuck in limbo (thank you to everyone who has reached out to your legislators — those calls and emails are tracked!), Connecticut families just gained real hope and made such progress: insurance coverage for the diagnosis and treatment of PANS/PANDAS. 🩺🧠🔥🙏🏻

No more fighting denials for lifesaving care like IVIG.

No more choosing between treatment or financial hardship.

Delayed care in PANS/PANDAS can cause lasting harm.

New Jersey legislators: our kids have waited long enough‼️

Every day of delay is another day of suffering for children and their families who didn’t choose this.

Congratulations👏🏻, Connecticut for becoming the 17th state to pass legislation to mandate insurance coverage for PANS/PANDAS and for showing what strong advocacy and legislative focus can achieve.👏

Like, Share and Repost this if you believe NJ kids deserve the same urgency Connecticut showed. ❤️‍🔥🙏🏻📣

❤️💙🩺

braininflammation Autoimmune basal ganglia encephalitis, strep autoimmune encephalitis
Neuro immune brain on fire

04/12/2026

NJ friends, please help — this is urgent! 📣🚨🙏🏻

Assembly Bill A3246 and Senate Bill S598 — which would require insurance coverage for PANS and PANDAS treatment — are pending right now.

We need you to pls. contact Speaker Assemblyman Coughlin and Senate President Scutari immediately (by Wednesday 15th) to ask that these bills get posted for committee -to move forward!

☎️ Every call or email matters (they track them!)
🔗 Ready-to-use email templates linked in bio — copy, personalize & send today! ✍️💻

📞 Assemblyman Coughlin: 732-855-7441 | [email protected]
📞 Senate President Scutari: 732-827-7480 | [email protected]

Let’s push these bills through before more kids are denied the treatment they desperately need.

❤️💙🩺

04/12/2026

🚨 When UnitedHealthcare says no to IVIG for PANS/PANDAS….Families Fight Back!

Repost:

Emily’s parents, Justin and refused to accept “no” when their daughter’s IVIG treatment for PANS/PANDAS was denied by UnitedHealthcare.

Months of appeals, expert-backed evidence, and relentless advocacy—including help from , an AI-driven platform—finally led to approval just before Christmas. 👏🏻

But the delays took a toll. This fight shouldn’t be necessary. Families shouldn’t have to battle insurers for doctor-prescribed care.

NJ Assembly Bill (A3246) and Senate Bill 598 (S598) to require insurance coverage for the diagnosis and treatment of PANS and PANDAS are pending in the Assembly Financial Institutions and Insurance (AFI) Committee and the Senate Commerce Committee, respectively.

Thank you to & for exposing this reality. Change is overdue.
❤️💙🩺

04/10/2026

Meanwhile, in Nebraska …

100% yes. Unanimous!🗳️🎉 👏🏻
Nebraska bill LB762 for PANS/PANDAS is advancing!
We LOVE this for them!
Let’s go NJ! 🩺 🙏🏻

NJ Assembly Bill (A3246) and Senate Bill 598 (S598) to require insurance coverage for the diagnosis and treatment of PANS and PANDAS are pending in the Assembly Financial Institutions and Insurance (AFI) Committee and the Senate Commerce Committee, respectively.
.gopal

Congratulations to Violet and Belle, and to your proud parents, Matthew and Grace. Your courage, persistence, and love are creating change that will impact families far beyond your own. 💚

👏 Kudos to on the unanimous 45–0 vote supporting PANS and PANDAS coverage. This is an inspiring and meaningful step forward for access to care and recognition for so many children and families. 🩺

Stories like this remind us that advocacy works and that progress is possible when voices are heard.

As we head into Capitol Hill Advocacy Day tomorrow, April 8, we carry this momentum forward, continuing the push for awareness, research, and compassionate care for those living with PANS and PANDAS.
Stronger together. Moving forward. 💚
Repost: .coalition

❤️💙🩺

04/10/2026

Meanwhile, in Nebraska …

100% yes. Unanimous!🗳️🎉 👏🏻
Nebraska bill LB762 for PANS/PANDAS is advancing!
We LOVE this for them!
Let’s go NJ! 🩺 🙏🏻

NJ Assembly Bill (A3246) and Senate Bill 598 (S598) to require insurance coverage for the diagnosis and treatment of PANS and PANDAS are pending in the Assembly Financial Institutions and Insurance (AFI) Committee and the Senate Commerce Committee, respectively.
.gopal

Repost .coalition:
Congratulations to Violet and Belle, and to your proud parents, Matthew and Grace. Your courage, persistence, and love are creating change that will impact families far beyond your own. 💚

👏 Kudos to on the unanimous 45–0 vote supporting PANS and PANDAS coverage. This is an inspiring and meaningful step forward for access to care and recognition for so many children and families. 🩺

Stories like this remind us that advocacy works and that progress is possible when voices are heard.

As we head into Capitol Hill Advocacy Day tomorrow, April 8, we carry this momentum forward, continuing the push for awareness, research, and compassionate care for those living with PANS and PANDAS.
Stronger together. Moving forward. 💚

❤️💙🩺

04/07/2026

100% yes. Unanimous!🗳️🎉 👏🏻
Nebraska did it! We LOVE this for them…!
Let’s go NJ! 🩺 🙏🏻

Congratulations to Violet and Belle, and to your proud parents, Matthew and Grace. Your courage, persistence, and love are creating change that will impact families far beyond your own. 💚

👏 Kudos to George Dungan on the unanimous 45–0 vote supporting PANS and PANDAS coverage. This is an inspiring and meaningful step forward for access to care and recognition for so many children and families. 🩺

Stories like this remind us that advocacy works and that progress is possible when voices are heard.

As we head into Capitol Hill Advocacy Day tomorrow, April 8, we carry this momentum forward, continuing the push for awareness, research, and compassionate care for those living with PANS and PANDAS.
Stronger together. Moving forward. 💚 Repost from .coalition

❤️💙🩺

03/31/2026

New Jersey residents, please help children and families in our state affected by PANS and PANDAS with an urgent 📣Action Alert.

Assembly Bill 3246 (A3246) and Senate Bill 598 (S598) to require insurance coverage for the treatment of PANS and PANDAS are pending in the Assembly Financial Institutions and Insurance (AFI) Committee and the Senate Commerce Committee, respectively. We are asking New Jersey residents to please contact the offices of Speaker, Assemblyman Coughlin and Senate President Scutari to request that A3246 and S598 be posted to committee for their consideration so that the bills can move forward in the legislative process

☎️A phone call or email to the two offices as soon as possible would be much appreciated.

✅You can easily help our cause by visiting The Louisa Adelynn Johnson Fund for Complex Disease, which will provide information to share over the phone and an email template to personalize if you prefer to write to the office of Speaker, Assemblyman Coughlin, and the Senate President, Senator Scutari. Email address and phone numbers for the offices are also available at https://tlajfundforcomplexdisease.com/advocacy-in-nj

Helpful, ready-to-use email templates for each legislator’s bill are linked in our bio 🔗— just copy/paste and personalize into a new email or call their office.✍️💻☎️
Thank you for joining our advocacy efforts! The PANS and PANDAS community is extremely grateful.

03/25/2026

Maddy’s Story💕 👧🏼 🧠🔥 via .foundation

At just 8 years old, Maddy was misdiagnosed with OCD, anxiety, and an eating disorder.

After a strep infection, followed by a sinus infection, her symptoms gradually escalated — OCD, anxiety, school refusal, and restricted eating driven by fear of choking. An anti-anxiety medication only made things worse.

A school nurse suggested PANDAS. Her parents found a PANS/PANDAS specialist. And everything changed.

Today, at age 9, Maddy is 80% back to baseline, back in school, eating normally, and continuing treatment — on a clear path toward full recovery.

✨ Healing is possible.

Bills S598 and A3246 would require insurance coverage for diagnosis and prescribed treatment of PANS and PANDAS in New Jersey and would provide MUCH needed relief to affected New Jersey children, young adults and their families.

Link in bio for Bill language

❤️💙🩺

03/12/2026

For decades, families affected by PANS/PANDAS have said the same thing:
Something happened after strep.

Now, National Geographic is highlighting new research showing how strep infections can disrupt immune signaling and, in some cases, trigger autoimmune reactions that affect the brain.

The article explains that Group A Streptococcus can trigger immune responses that do not always resolve when the sore throat goes away (and we know one doesn’t even need acute signs of infection). Sometimes, through a process called molecular mimicry, the immune system can become confused and start attacking healthy tissue, including parts of the nervous system.

The article specifically mentions PANDAS as a post-streptococcal autoimmune condition marked by the onset of OCD, tics, or both.

Science is starting to confirm what many families have known for years.
As we learn more about how infections affect the immune system and the brain, we have a better chance of recognizing these problems early and treating them properly.

When we understand how infections can affect both immune and brain health, we get closer to preventing years of misdiagnosis, wrong psychiatric placements, and needless suffering.

The conversation is changing, and that is a sign of progress.
Repost from

https://www.nationalgeographic.com/health/article/strep-throat-autoimmune-disease-chronic-fatigue

03/12/2026

This is what hope looks like. 🧡

At age 4, everything changed.
OCD. Separation anxiety. School refusal. Rage.

He was labeled with OCD, anxiety, and ADHD at age 5.
But his parents knew something wasn’t right.

After a long history of strep and ear infections, they asked questions. They pushed. They requested a throat swab and strep titers. The pediatrician listened.

Positive swab. Extremely elevated titers.
Proper diagnosis: PANDAS.

Today:
70% back to baseline.
Back in school.
Continuing to improve.
On the path to full recovery. 🧡

This is why listening to caregivers matters.
This is why stigma around mental health symptoms is dangerous.
When psychiatric symptoms are automatically labeled behavioral or primary mental illness, children can be missed.

Caregivers often have to fight for testing, referrals, and recognition. Access to diagnosis and treatment should not depend on how loudly a parent can advocate.

Mental health symptoms can have medical causes.
Infection-triggered neuroinflammation is real.
Healing is possible when we Look. for root causes. 🧡
Repost: .foundation

Children and young adults with PANS/PANDAS can heal with early diagnosis and treatment, but inaccessibility to proper diagnosis and available treatments have created a crisis situation for affected NJ children and their families.🚨

Bills S598 and A3246 would require insurance coverage for the diagnosis and prescribed treatment of PANS and PANDAS in New Jersey and would provide MUCH needed relief to affected New Jersey children, young adults and their families.

🔗Link in bio for Bill language.

❤️💙🩺

PANS Pandas ACT NJ

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