Jett Foundation

Jett Foundation Empowering families. Fighting Duchenne. Check out our Stronger Stories blog at jettfoundation.org/blog.

📍 Little Rock, we're coming your way!Registration is now open for Jett Foundation's Family Workshop in Little Rock, Arka...
06/18/2026

📍 Little Rock, we're coming your way!

Registration is now open for Jett Foundation's Family Workshop in Little Rock, Arkansas this August. Join us for a day of connection, education, and community designed for individuals living with Duchenne, their families, and caregivers.

Register today and reserve your spot: www.jettfoundation.org/family-workshops

✨ Honoring 25 years of impact, community, and hope! ✨An evening like our 25th Anniversary Silver Soirée is only possible...
06/17/2026

✨ Honoring 25 years of impact, community, and hope! ✨

An evening like our 25th Anniversary Silver Soirée is only possible because of you. Because of our community's incredible generosity, we raised over $290,000 to ensure we can continue providing life-changing camp programs, financial assistance, and vital support networks to our families for years to come.

A massive thank you to our incredible sponsors, including our presenting sponsors, the Emilson Family and the Zack Heger Foundation. Your unwavering support continues to be the cornerstone of our success. We also extend our deepest gratitude to our founding family and honorees, the McSherry Family, and everyone who joined us in celebrating a quarter-century of dedication to our families.

Take a look through our event photo album to see all the love, reflection, community, and amazing western attire that filled the room. Tag yourself and your friends!

Read our full event recap at https://www.jettfoundation.org/blog/25-years-of-mission-milestones-and-memories-our-silver-soiree-recap/.

Silver Soirée Photo Album: https://www.facebook.com/media/set/?vanity=jettfoundation&set=a.1416024333895345

06/17/2026
Jett Staff at the Silver Soirée!
06/17/2026

Jett Staff at the Silver Soirée!

06/17/2026
That’s a wrap on the National Challenge 5K! 🏁✨A big thank you to everyone who brought their energy and joined us in maki...
06/17/2026

That’s a wrap on the National Challenge 5K! 🏁✨

A big thank you to everyone who brought their energy and joined us in making this year’s nationwide challenge an incredible success.

We also want to extend our deepest gratitude to our amazing participating industry partners—Dyne Therapeutics, NS Pharma, ITF Therapeutics, and REGENXBIO—whose generous support fuels our mission and makes this entire event possible. We are so grateful for your partnership!

Check out all the amazing participant photos in our Facebook album and read the full event recap on our blog at https://www.jettfoundation.org/blog/moving-for-duchenne-jett-foundations-national-challenge-5k-unites-communities-across-the-country/.

Thank you for running, walking, rolling, and championing our mission with us!

On June 10, 2026, Italfarmaco S.p.A. announced that Health Canada has accepted for review the New Drug Submission (NDS) ...
06/17/2026

On June 10, 2026, Italfarmaco S.p.A. announced that Health Canada has accepted for review the New Drug Submission (NDS) for givinostat (Duvyzat®) for the treatment of Duchenne muscular dystrophy (DMD). Health Canada has granted givinostat Priority Review status, a designation reserved for drugs that may provide a significant improvement in the benefit-risk profile over existing therapies.

View their full press release: https://www.jettfoundation.org/duchenne-news/italfarmaco-announces-health-canada-acceptance-and-priority-review-of-new-drug-submission-for-givinostat-as-a-duchenne-muscular-dystrophy-treatment/

Welcoming Jessie Hancox to our team of Community Ambassadors! ❤️🤝Jessie is a Duchenne mom from Colorado excited to assis...
06/16/2026

Welcoming Jessie Hancox to our team of Community Ambassadors! ❤️🤝

Jessie is a Duchenne mom from Colorado excited to assist other families in navigating local and statewide resources, in addition to serving as a voice for Jett Foundation in the community.

Read about Jessie and all ambassadors: www.jettfoundation.org/community-ambassadors

Navigating the transition from pediatric to adult care can feel overwhelming, but you don't have to do it alone. ❤️💻Join...
06/16/2026

Navigating the transition from pediatric to adult care can feel overwhelming, but you don't have to do it alone. ❤️💻

Join Jett Foundation's upcoming Community Webinar: Transition of Care to learn more about preparing for this important milestone, building your care team, and accessing resources to support a successful transition.

📅 Register today and join us for this important discussion: www.jettfoundation.org/event/community-webinar-transition-of-care

Ambassador Highlight! ⭐❤️ Jett Community Ambassador Jack Wolf recently served as one of the keynote speakers during Cure...
06/15/2026

Ambassador Highlight! ⭐❤️ Jett Community Ambassador Jack Wolf recently served as one of the keynote speakers during CureDuchenne's FUTURES conference last month in Orlando, FL!

Keep up the great work, Jack!

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390 Circuit Street
Norwell, MA
02061

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