Just a Girl with Spots

Just a Girl with Spots Psoriasis Blog Hello, I’m Joni and I’m a girl with spots. Being a teenager with psoriasis made me feel secluded and incredibly self-conscious.

I was diagnosed with guttate psoriasis when I was 15 and recently diagnosed with psoriatic arthritis at 38. Growing up with this disease has impacted my confidence and relationship with my body. I refuse to let psoriasis define who I am, but it has given me a new purpose and community. It has helped me become more aware of what my body + mind need in order to live a happier, healthier life. I neve

r want to let my diagnosis’s stop me from doing the things that bring me happiness. This blog is for sharing my personal experiences living with psoriasis and now psoriatic arthritis. I ask you to keep in mind that we are all different. Something that may work for me, may not be the best approach to take for you. I am not a health care professional, so I highly recommend that before starting any treatment you talk to your health care team.

06/03/2026

My DNA would be all over that crime scene 🦹‍♀️☠️🥷

05/20/2026

May is PsA Action Month. And most people still don’t know what it actually does to your body.

It’s not just joint pain. It’s waking up exhausted after a full night of sleep. It’s inflammation working through your system while you’re just trying to get through the day. It’s a disease that can quietly raise your risk for heart disease and depression while everyone’s focused on your joints.

It also takes years to diagnose for a lot of people. Because it doesn’t look the same twice.

If you have psoriasis and something feels off in your joints, say something. To your dermatologist, your rheumatologist, anyone who will listen. Catching it early matters.

Save this. Share it. Send it to someone who needs to see it.

05/11/2026

As a teenager living with PsO, I felt so confused and isolated, but today I get to help create the kind of community and resources I wish I had back then. I'm so excited to be a and reach even more people who need to hear that they're not alone in this. 🙌

See full Prescribing Information at https://bit.ly/44R6o2W.

TREMFYA® (guselkumab) is a prescription medicine used to treat adults and children 6 years and older who also weigh at least 88 pounds (40 kg) with moderate to severe plaque psoriasis or active psoriatic arthritis. I am an actual patient.

SELECT IMPORTANT SAFETY INFORMATION: TREMFYA is not for everyone; only your healthcare provider can decide if it’s right for you. Do not use if you are allergic to TREMFYA. TREMFYA is a prescription medicine that may cause serious side effects, including serious allergic reactions, infections, and liver problems. TREMFYA affects your immune system. It may increase your risk of infections and lower your ability to fight them. Please read the Important Safety Information and the Medication Guide for TREMFYA to learn more about these and other risks for TREMFYA. Discuss any questions you have with your healthcare provider.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088. Remember, this content is not intended to be a substitute for medical advice, diagnosis or treatment. Please talk to your healthcare provider if you have any questions. They are always your best resource for medical information.

In consideration of the time Joni spent, an honorarium was provided by Johnson & Johnson.

© Johnson & Johnson and its affiliates 2026 04/26 cp-547077v1

05/07/2026

When barometric pressure drops before rain, inflamed joints can swell and tighten. Science calls it a theory but tell that to my hips.

05/06/2026

Spicy dinner 🌶️ Spicy joints 🔥

Thanks to inflammation, I feel every single stir. PsA shows up differently for everyone. How does it show up for you?

05/02/2026

May is PsA Action Month 💜

Consider this your warning ‼️ I’m going to be in your feed a lot this month with psoriatic arthritis facts, real talk, and the stuff nobody puts in a pamphlet. I’ve been living with PsA since 2020 and I have lots things to share 😁

04/10/2026

Every 8 weeks since January 2021, I take my shot of Tremfya at home to treat my psoriasis and psoriatic arthritis. There were 4 takes before I actually followed through on my countdown but it’s done!!

04/07/2026

Reminding myself to choose love, even on the hard days 🩷

04/02/2026

Nobody had a better Spring Break than Sonny ☀️💛✨

04/01/2026

Just when you think you’re hot🔥🔥 because you’ve mastered one diagnosis, your immune system decides to expand its portfolio 😂

27 years of psoriasis research and I genuinely thought I understood my body. Then psoriatic arthritis showed up and introduced me to a whole new world of flare fun and all new things to Google around the clock.

If you’re newly diagnosed with PsA and deep in the research spiral right now, you are not being dramatic and you’re not alone. This is genuinely complicated and stress and confusion is completely normal.

Drop your diagnosis below, psoriasis, PsA, or the whole combo deal. I love to connect with others who are also down the rabbit hole 🐰

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