Just a Girl with Spots

Just a Girl with Spots Psoriasis Blog Hello, I’m Joni and I’m a girl with spots. Being a teenager with psoriasis made me feel secluded and incredibly self-conscious.

I was diagnosed with guttate psoriasis when I was 15 and recently diagnosed with psoriatic arthritis at 38. Growing up with this disease has impacted my confidence and relationship with my body. I refuse to let psoriasis define who I am, but it has given me a new purpose and community. It has helped me become more aware of what my body + mind need in order to live a happier, healthier life. I neve

r want to let my diagnosis’s stop me from doing the things that bring me happiness. This blog is for sharing my personal experiences living with psoriasis and now psoriatic arthritis. I ask you to keep in mind that we are all different. Something that may work for me, may not be the best approach to take for you. I am not a health care professional, so I highly recommend that before starting any treatment you talk to your health care team.

09/03/2026

As someone who’s lived with psoriasis for a long time, I know how much everyday choices, like what I wear and use on laundry day, can affect my skin’s comfort.

For Psoriasis Awareness Month in August, all Laundry sent me a thoughtful box of products, laundry accessories, and such a kind note recognizing my work in the psoriasis community. 💜🧡

all® free clear is free of dyes and perfumes, which matters when your skin treats fragrance and dye like a personal attack, and carries the NPF Seal of Recognition. Knowing a product has been reviewed as safe and non-irritating for people living with psoriasis brings real peace of mind, especially after years of reading every ingredient label in the laundry aisle💧

They also included a journal called “For All Your Thoughts,” which is a bold choice for someone like me who has never had a small number of thoughts. 😂

Thank you, all Laundry, for showing the psoriasis community so much care. Go give them some love!

08/28/2026

The comments and DMs I get about my psoriasis and PsA are wild, magic potions, $99 cures from Dr. WhatsApp, blaming my treatment plan, all of it. I’m not going anywhere here, but I’ve recently joined Drops, a new social health platform designed for people living with chronic, rare, and serious health conditions to have safe and vulnerable conversations. I feel like I’m able to be more myself there without the negative responses, so I’ll be sharing things there I don’t usually post here. Link in bio if you want to join me there 🩵

08/20/2026

Had some fun today with the J&J team on National Patient Advocacy Day🎥❤️

Huge thanks to Dr. Crowley for her excellent insights and guidance to the PsA community. Angela Crowley

Lots of love for making me shine so beautifully Jai Dee

Johnson & Johnson has paid for my time, travel and expenses. All opinions expressed are my own.

08/20/2026

This is obviously NOT legit. Stay safe out there, the internet is a wild place full of scams.

08/10/2026

We’ve all had the unmentionable spots where a flare creates miserable chaos, what’s been the worst spot for you? Share in the comments 👇

08/04/2026

August is Psoriasis Action Month 🧡🩷 As much as I despise it, I am incredibly grateful to this community for their beautiful support and openness to let us share our experiences, stories, and annoyances of living with this disease. All month long (and forever+) don’t forget to moisturize and take care of yourself!

07/31/2026

Incorporating good habits into my daily routine has been an important part of my journey with psoriatic disease.

See full Prescribing Information at https://bit.ly/44R6o2W.
TREMFYA® (guselkumab) is a prescription medicine used to treat adults and children 6 years and older who also weigh at least 88 pounds (40 kg) with moderate to severe plaque psoriasis or active psoriatic arthritis. I am an actual patient.

SELECT IMPORTANT SAFETY INFORMATION: TREMFYA is not for everyone; only your healthcare provider can decide if it’s right for you. Do not use if you are allergic to TREMFYA. TREMFYA is a prescription medicine that may cause serious side effects, including serious allergic reactions, infections, and liver problems. TREMFYA affects your immune system. It may increase your risk of infections and lower your ability to fight them. Please read the Important Safety Information and the Medication Guide for TREMFYA to learn more about these and other risks for TREMFYA. Discuss any questions you have with your healthcare provider.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088. Remember, this content is not intended to be a substitute for medical advice, diagnosis or treatment. Please talk to your healthcare provider if you have any questions. They are always your best resource for medical information.
In consideration of the time Joni spent, an honorarium was provided by Johnson & Johnson.

© Johnson & Johnson and its affiliates 2026 03/26 cp-546615v1

07/30/2026

New expansion pack just dropped: Step Therapy.
Rule 1, you don’t get the medicine your doctor prescribed. Rule 2, you fail two others first.
Rule 3, insurance still decides if you win. No refunds, no skips, replay it every time you switch plans.

06/18/2026

I like to do things and pretend I don’t have psoriatic arthritis but my back and knees love to remind me.

06/18/2026

GRWM as I share my morning skincare routine while living with moderate to severe plaque psoriasis. ✨My mornings stay simple with gentle products, a moment to pause, and a routine that helps me start the day.

See full Prescribing Information at https://bit.ly/44R6o2W.

TREMFYA® (guselkumab) is a prescription medicine used to treat adults and children 6 years and older who also weigh at least 88 pounds (40 kg) with moderate to severe plaque psoriasis. I am an actual patient.

SELECT IMPORTANT SAFETY INFORMATION: TREMFYA is not for everyone; only your healthcare provider can decide if it’s right for you. Do not use if you are allergic to TREMFYA. TREMFYA is a prescription medicine that may cause serious side effects, including serious allergic reactions, infections, and liver problems. TREMFYA affects your immune system. It may increase your risk of infections and lower your ability to fight them. Please read the Important Safety Information and the Medication Guide for TREMFYA to learn more about these and other risks for TREMFYA. Discuss any questions you have with your healthcare provider.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088. Remember, this content is not intended to be a substitute for medical advice, diagnosis or treatment. Please talk to your healthcare provider if you have any questions. They are always your best resource for medical information.

In consideration of the time Joni spent, an honorarium was provided by Johnson & Johnson.

© Johnson & Johnson and its affiliates 2026 03/26 cp-547384v1

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