Young People Affected by Huntington's Disease

Young People Affected by Huntington's Disease Young People Affected by Huntington’s Disease YPAHD Day is a one-day conference designed specifically for youth affected by HD (14-35 years of age).

Young People Affected by Huntington disease (YPAHD) is the youth chapter of The Huntington Society of Canada (HSC). Youth from across the country gather regionally to learn about genetic testing, family planning, caring for someone with HD, navigating relationships, think about event planning during the round table discussions and more! YPAHD Day will be educational, fun and interactive. It will h

elp forge new friendships and strengthen those support systems that mean everything to YPAHD members. For more information about YPAHD, click here! To see photos from previous YPAHD Days, visit our page here. Have questions about YPAHD or future YPAHD Days? Contact [email protected]!

🎉 Game Night Hangout! 🎉Looking for a fun way to connect with others in the HD community? Join us for a relaxed evening o...
06/12/2026

🎉 Game Night Hangout! 🎉

Looking for a fun way to connect with others in the HD community? Join us for a relaxed evening of games, laughs, and great conversation!

🗓 Tuesday, June 23
🕕 6:00 PM CST
🕖 7:00 PM EST

Bring your favorite snack, get comfortable, and come hang out with us. Whether you’re joining for the games, the chats, or both, we’d love to see you there!

🔗 Join here: https://tr.ee/VRooak8YH_

Tag a friend and spread the word! 🎲✨

05/28/2026

Check out Diane Campbell talking about Huntington’s Disease while on her 10 km run. She shares some important facts about HD for each kilometre. 🧬🏃‍♀️

Meet Winnie Diverlus! She is a Child and Youth Practitioner with the Huntington Society of Canada, supporting children, ...
05/27/2026

Meet Winnie Diverlus! She is a Child and Youth Practitioner with the Huntington Society of Canada, supporting children, youth, and young adults impacted by Huntington’s disease.
Winnie coordinates the Youth Mentorship Program and provides one‑to‑one support services, working in collaboration with local Resource Centre Directors to help ensure families are connected to appropriate supports within their communities.
She is also supporting the gradual development of peer connection spaces for youth and young adults, with the goal of offering age‑responsive support in different forms as needs and opportunities evolve.
An in‑person youth and young adult support group in Hamilton is currently running and will wrap up in June, with additional opportunities anticipated in Fall 2026 — stay tuned.
To connect about youth mentorship or one‑to‑one support:
1-800-998-7398, ext. 212
Availability: Monday to Friday 8:30 a.m. to 4:30 p.m. ET

05/27/2026

Have you ever wondered what a day in the life of our ceo Shelly Redman looks like? Now you don’t have to wonder! Happy May Awareness Month! 💙

This month we wanted to highlight some important resources available within the Huntington Society of Canada and also re...
05/21/2026

This month we wanted to highlight some important resources available within the Huntington Society of Canada and also resources provided outside of the organization for anyone needing a little bit of extra support. You are NOT alone and we want to make sure you feel loved and supported. 🫶🏻

Self-care isn’t selfish—it’s necessary. Taking time to rest, recharge, and check in with yourself helps you stay balance...
05/13/2026

Self-care isn’t selfish—it’s necessary. Taking time to rest, recharge, and check in with yourself helps you stay balanced and strong. Whether it’s slowing down, breathing deeply, or doing something you enjoy, small moments of care make a big difference for your mind and body. 💙

It’s okay to slow down and take care of your mind. Rest, talk to someone, and do things that help you feel better. Small...
05/11/2026

It’s okay to slow down and take care of your mind. Rest, talk to someone, and do things that help you feel better. Small steps can make a big difference. 💙

You are not alone! Support is available through HSC.

https://huntingtonsociety.ca/get-support/

Happy Mother’s Day to all the incredible moms, grandmothers, stepmoms, and mother figures 💐Your love, strength, patience...
05/10/2026

Happy Mother’s Day to all the incredible moms, grandmothers, stepmoms, and mother figures 💐

Your love, strength, patience, and care shape lives in ways words can’t always express. Today is a reminder of how deeply appreciated you are—not just today, but every day.

Thank you for all the little things and all the big sacrifices. You are seen, you are valued, and you are loved.

Wishing you a day filled with rest, joy, and the appreciation you truly deserve. 💛

Did you know that there are community walks / runs all across Canada during the month of May?! Interested in participati...
05/07/2026

Did you know that there are community walks / runs all across Canada during the month of May?! Interested in participating in one? 💙

Sarnia, ON has moved their walk date to May 24th to avoid the long weekend.

Register using the link in our bio or the link below:

p2p.onecause.com/hscnationalwalk

Know a young person living with rare disease who is pursuing post-secondary education? The Canadian Rare Disease Network...
05/06/2026

Know a young person living with rare disease who is pursuing post-secondary education? The Canadian Rare Disease Network (CRDN) RAREvolution Scholarship is now open and accepting applications by June 12. The scholarship exists to recognize resilience, leadership, and lived experience within the rare disease community for people pursing secondary education aged 17-29 years old.

More Details & Application: https://canadianrdn.ca/scholarship/

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Kitchener, ON
N2H2M2

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