ERN RECONNET

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ERN RECONNET

ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases.

ERN ReCONNET is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern. The content on this page represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

01/06/2026

🎓 ERN ReCONNET Webinar | Antiphospholipid Syndrome (APS)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“How to find hidden Antiphospholipid Syndrome (APS)”

APS is hiding. Can you recognize it?
APS is one of the most elusive autoimmune diseases: heterogeneous presentation, multi-organ involvement, and variable laboratory test results. Cases that seem unexplained, concealing a hidden diagnosis behind unusual clinical and laboratory pictures.
How do you avoid missing it? How do you navigate the complexity when the clinical picture isn't the classic one?
In this webinar, we'll tackle the most challenging cases, the ones where APS disguises itself, to learn how to uncover it even where you least expect it.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 10th June 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals
• Dedicated to: Antiphospholipid Syndrome (APS)
• ✍️ Registration: rb.gy/ik0pjm

🎤 Speakers: Dr. Paola Triggianese and Prof. Angela Tincani
🎙 Moderator: Prof. Savino Sciascia

⚙️ ERN ReCONNET APS Resources: https://reconnet.ern-net.eu/disease-aps/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

27/05/2026

🌍 Attending in London?

We'd like to meet you at Booth O13 – NPO Area! 👋
Come visit us and learn more about ERN ReCONNET. 💙

📅 3–6 June 2026 | 📍 London, UK

See you there!

27/05/2026

🎓 ERN ReCONNET Webinar TODAY
Rare Connective Tissue and Musculoskeletal Diseases (rCTDs)

Don’t miss our webinar TODAY at 16 CET: “Pulmonary Function Tests: A Practical Guide for Rheumatologists”

Event Details:
- Date: TODAY, 27th May 2026
- Time: 16:00 CET
- Target Audience: healthcare professionals
- Dedicated to: Rare Connective Tissue and Musculoskeletal Diseases (rCTDs)
- ✍️ Registration: rb.gy/wj9kh1

🎤 Speaker: Dr. Geert Van Pottelberge
🎙 Moderator: Prof. Vanessa Smith

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET Resources: https://reconnet.ern-net.eu/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

21/05/2026

Two productive days in Luxembourg for the ERN ReCONNET Coordination Team at the ERN Coordinators Meeting with the European Commission -DG SANTE.

Together with fellow ERNs, the ERN Board of Member States, DG SANTE and the Hospital Managers, we continue working towards stronger collaboration and better care for people living with rare and low prevalence conditions across Europe.

20/05/2026

🎓 ERN ReCONNET Webinar TODAY
Rare Connective Tissue and Musculoskeletal Diseases (rCTDs)

Don’t miss our webinar TODAY at 16 CET:
“Why morning joint stiffness and swelling in rheumatic diseases? Role of Circadian Rhythms”

Event Details:
• Date: TODAY, 20th May 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, patients, caregivers, and family members
• Dedicated to: Rare Connective Tissue and Musculoskeletal Diseases (rCTDs)
• ✍️ Registration: rb.gy/8444ez

🎤 Speakers: Prof. Maurizio Cutolo and Dr. Rosanna Campitiello
🎙 Moderators: Prof. Rainer Straub

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET Resources: https://reconnet.ern-net.eu/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

14/05/2026

🎓 ERN ReCONNET Webinar
Rare Connective Tissue and Musculoskeletal Diseases (rCTDs)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“Why morning joint stiffness and swelling in rheumatic diseases? Role of Circadian Rhythms”

Why do rheumatic symptoms peak at waking, and how does our internal clock drive inflammation? This ERN ReCONNET webinar dives into the link between morning stiffness and circadian rhythms, exploring how hormonal and immune cycles shape patient symptoms.
Join us to discover how chronobiology can refine clinical assessments and optimize treatment timing for more personalized, effective care.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 20th May 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, patients, caregivers, and family members
• Dedicated to: Rare Connective Tissue and Musculoskeletal Diseases (rCTDs)
• ✍️ Registration: rb.gy/8444ez

🎤 Speakers: Prof. Maurizio Cutolo and Dr. Rosanna Campitello
🎙 Moderators: Prof. Rainer Straub

⚙️ ERN ReCONNET Resources: https://reconnet.ern-net.eu/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

13/05/2026

🎓 ERN ReCONNET Webinar TODAY | Systemic Lupus Erythematosus (SLE)

Don’t miss our webinar TODAY at 16 CET:
“CAR-T Therapy in Systemic Lupus Erythematosus (SLE): Explained to the Patient”

Event Details:
• Date: TODAY, 13th May 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, patients, caregivers, and family members
• Dedicated to: Systemic Lupus Erythematosus (SLE)
• ✍️ Registration: rb.gy/s18q03

🎤 Speaker: Prof. Georg Schett
🎙 Moderator: Prof. Marta Mosca and the ePAG Jeanette Andersen

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on SLE are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-sle/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

12/05/2026

Heading to EULAR 2026?

We are excited to announce that ERN ReCONNET will be attending the European Congress of Rheumatology in London from June 3rd to 6th, 2026!

We invite you to visit us at our dedicated space in the NPO area (Booth 013). This is a fantastic opportunity to dive deeper into our work focused on rare and complex connective tissue and musculoskeletal diseases.

Stop by our booth to learn more about:
• 📌 Our Mission and the strategic activities of our Network.
• 💻 The CPMS (Clinical Patient Management System) and how it facilitates cross-border clinical consultations.
• 📊 The TogethERN registry, our key initiative for advancing research and increasing real-world evidence.
• 🎓 Our Educational Activities and specialized resources for healthcare professionals and patients.
• 🤝🏻Joint-Action JARDIN: Paving the way for the future of ERN integration.

We look forward to networking, sharing knowledge, and working together to improve the future of rare disease care in Europe.

See you in London!

10/05/2026

💜 World Lupus Day 🌍

🩺 Systemic Lupus Erythematosus (SLE) is a complex, chronic autoimmune disease that can affect various parts of the body, including joints, skin, kidneys, heart, lungs, and the nervous system. Due to its "heterogeneous" nature, symptoms vary greatly from person to person, making diagnosis and management a daily challenge.

At , we are profoundly committed to supporting the lupus community. Systemic Lupus Erythematosus (SLE) is a core focus of our Network, where we work to bridge gaps in care and research across Europe.

💡 The ERN ReCONNET SLE Disease Group is led by:
• Prof. Marta Mosca (Azienda Ospedaliero Universitaria Pisana, Pisa, Italy)
• Prof. Matthias Schneider (Universitätsklinikum Düsseldorf, Germany)
• ePAG representative Mrs. Zoe Karakikla-Mitsakou (Lupus Europe)
• ePAG representative Mrs. Jeanette Andersen (Lupus Europe)

🤝 Thanks to the close collaboration between clinicians and patient associations, this group has developed essential resources to support healthcare professionals and improve the quality of life for patients living with Lupus.

For resources and more information, visit:
https://reconnet.ern-net.eu/disease-sle/
https://bit.ly/3QYK8Rx
https://www.lupus-europe.org/

🗞 Stay updated on our activities by subscribing to our newsletter: bit.ly/44wk7La

Together, let’s by raising awareness and sharing knowledge.

07/05/2026

🎓 ERN ReCONNET Webinar | Systemic Lupus Erythematosus (SLE)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“CAR-T Therapy in Systemic Lupus Erythematosus (SLE): Explained to the Patient”

How could re-engineering your own immune cells transform the future of lupus treatment?
This webinar breaks down the latest clinical results and real-world patient experiences, translating complex molecular science into clear, life-changing insights for the systemic lupus erythematosus (SLE) community.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 13th May 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, patients, caregivers, and family members
• Dedicated to: Systemic Lupus Erythematosus (SLE)
• ✍️ Registration: rb.gy/s18q03

🎤 Speaker: Prof. Georg Schett
🎙 Moderators: Prof. Marta Mosca and the ePAG Jeanette Andersen

⚙️ ERN ReCONNET SLE Resources: https://reconnet.ern-net.eu/disease-sle/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

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