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ERN RECONNET

ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases.

ERN ReCONNET is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern. The content on this page represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

24/06/2026

🎓 ERN ReCONNET Webinar TODAY | Sjögren’s Disease (SjD)

Don’t miss our webinar TODAY at 16 CET:
“Kidney involvement in Sjögren’s Disease (SjD)”
Event Details:
• Date: TODAY, 24th June 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals
• Dedicated to: Sjögren’s Disease (SjD)
• ✍️ Registration: rb.gy/s5r449

🎤 Speaker: Dr. Andreas Goules
🎙 Moderators: Prof. Gaetane Nocturne and the ePAG Ana Vieira

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on SjD are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-ss/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

20/06/2026

🎓 ERN ReCONNET Webinar | Sjögren’s Disease (SjD)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“Kidney involvement in Sjögren’s Disease (SjD)”

Did you know that kidney involvement in Sjögren's Disease can show up in surprisingly different ways and demand very different treatment approaches? And how do you tell SjD-related glomerulonephritis apart from lupus nephritis?
Join us for a deep dive into renal involvement in Sjögren's Disease, from interstitial nephritis and renal tubular acidosis to immune-complex mediated glomerulonephritis driven by type II IgMk cryoglobulins. We'll cover the underlying immunopathology, key diagnostic clues, therapeutic strategies, and the link with lymphoma.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 24th June 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals
• Dedicated to: Sjögren’s Disease (SjD)
• ✍️ Registration: rb.gy/s5r449

🎤 Speaker: Dr. Andreas Goules
🎙 Moderators: Prof. Gaetane Nocturne and the ePAG Ana Vieira

⚙️ ERN ReCONNET SjD Resources: https://reconnet.ern-net.eu/disease-ss/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

19/06/2026

Dr. Mojca Zajc Avramovič (Ljubljana, Slovenia) delivered an oral presentation at the EULAR 2026 Congress in London, presenting the work of the ERN ReCONNET Transition of Care Task Force "Consensus Development of the ERN ReCONNET Training Framework for Pediatric-to-Adult Healthcare Transition for Rare Connective Tissue Diseases", highlighting a collaborative effort led by Prof. Tadej Avčin and Prof. Gabriele Simonini to develop the first accredited educational course on Transition of Care in rare connective tissue diseases (rCTDs).

A significant milestone for ERN ReCONNET and an important step towards improving transition pathways for young people living with rCTDs across Europe.

Stay tuned—more information on the course launch will be available soon!

European Commission EULAR

17/06/2026

🎓 ERN ReCONNET Webinar TODAY | Systemic Sclerosis (SSc)

Don’t miss our webinar TODAY at 16 CET:
“Systemic sclerosis and pregnancy, a 2026 update”

Event Details:
• Date: TODAY, 17th June 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, but patients are welcome to attend
• Dedicated to: Systemic Sclerosis (SSc)
• ✍️ Registration: rb.gy/nvc7fk

🎤 Speakers: Dr. Benjamin Chaigne
🎙 Moderator: Prof. David Launay

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on SSc are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-ssc
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

12/06/2026

🎓 ERN ReCONNET Webinar | Systemic Sclerosis (SSc)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“Systemic sclerosis and pregnancy, a 2026 update”

Pregnancy and systemic sclerosis: what are the real risks, and how can they best be managed?
In our upcoming webinar, we'll explore the medical aspects of pregnancy in patients with systemic sclerosis. An unmissable opportunity to gain clarity with the guidance of leading experts.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 17th June 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, but patients are welcome to attend
• Dedicated to: Systemic Sclerosis (SSc)
• ✍️ Registration: rb.gy/nvc7fk

🎤 Speakers: Dr. Benjamin Chaigne
🎙 Moderator: Prof. David Launay

⚙️ ERN ReCONNET SSc Resources: https://reconnet.ern-net.eu/disease-ssc/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

10/06/2026

🎓 ERN ReCONNET Webinar TODAY | Antiphospholipid Syndrome (APS)

Don’t miss our webinar TODAY at 16 CET:
“How to find hidden Antiphospholipid Syndrome (APS).”
Event Details:
• Date: TODAY, 10th June 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals
• Dedicated to: Antiphospholipid Syndrome (APS)
• ✍️ Registration: rb.gy/ik0pjm

🎤 Speakers: Dr. Paola Triggianese and Prof. Angela Tincani
🎙 Moderator: Prof. Savino Sciascia

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on APS are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-aps
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

09/06/2026

🩷ERN ReCONNET stands with the global community on !🌍

What is ?🩸
Antiphospholipid Syndrome is a systemic autoimmune disease defined by thromboembolic events (arterial, venous, or small vessel) and/or obstetric morbidity, in the persistent presence of antiphospholipid (aPL) antibodies, detected through:
• Lupus anticoagulant
• Anticardiolipin antibodies
• Anti-beta-2 glycoprotein I antibodies

APS can occur on its own (Primary APS) or alongside other autoimmune conditions, most commonly systemic lupus erythematosus (SLE). Early diagnosis and access to expert care can make a real difference for patients and families living with this complex condition.

💪 The ERN ReCONNET APS Disease Group continues to build and share a dedicated collection of resources for healthcare professionals, patients, and caregivers, led by our chairs:
🔹Maria Tektonidou
🔹Savino Sciascia
🔹Silvia Aguilera
🔹Jamy Scheerhoorn-Pullen

🌐 Resources & more information on APS: https://reconnet.ern-net.eu/disease-aps/
🎥 ERN ReCONNET webinars on APS: https://bit.ly/4ofjoZG
🗞 Stay updated on our activities — subscribe to our newsletter: bit.ly/44wk7La

08/06/2026

🎓 ERN ReCONNET Webinar | Antiphospholipid Syndrome (APS)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“How to find hidden Antiphospholipid Syndrome (APS)”

APS is hiding. Can you recognize it?
APS is one of the most elusive autoimmune diseases: heterogeneous presentation, multi-organ involvement, and variable laboratory test results. Cases that seem unexplained, concealing a hidden diagnosis behind unusual clinical and laboratory pictures.
How do you avoid missing it? How do you navigate the complexity when the clinical picture isn't the classic one?
In this webinar, we'll tackle the most challenging cases, the ones where APS disguises itself, to learn how to uncover it even where you least expect it.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 10th June 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals
• Dedicated to: Antiphospholipid Syndrome (APS)
• ✍️ Registration: rb.gy/ik0pjm

🎤 Speakers: Dr. Paola Triggianese and Prof. Angela Tincani
🎙 Moderator: Prof. Savino Sciascia

⚙️ ERN ReCONNET APS Resources: https://reconnet.ern-net.eu/disease-aps/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

06/06/2026

🇬🇧 From London to Berlin 🇩🇪 — Day 4 at

As draws to a close, we reflect on four extraordinary days of science, collaboration, and shared vision at the heart of the European rheumatology community.
The level of engagement around ERN ReCONNET's work, from the TogethERN ReCONNET Registry and CPMS 2.0 to our ongoing research initiatives, webinars and educational programmes, has been remarkable.
We leave London with new collaborations on the horizon and a stronger network behind us. 💙

🙏 A sincere thank you to:
- Our member centres across Europe, for their unwavering scientific and clinical commitment
- The clinicians and researchers who dedicate their expertise to advancing the understanding and management of rCTDs
- The patients and patient organisations, whose active participation is the cornerstone of meaningful, patient-centred research
Your collective effort is what drives progress forward every single day.

Now Stay Tuned!
🌐 Website: https://reconnet.ern-net.eu
📩 Newsletter: https://reconnet.ern-net.eu/event-and-media-newsletter/

See you in Berlin at ! 🇩🇪
The science continues. Together.

05/06/2026

🇬🇧 Day 3 at – London 🇬🇧
The congress is in full swing and we are making the most of every moment here at Booth O13!
Before the curtain falls tomorrow, don't miss the chance to contribute to science and stay connected with ERN ReCONNET beyond London!

✅TWO SURVEYS OPEN — YOUR INPUT MATTERS
➡️Transition Survey
Are you a patient or clinician involved in the transition from paediatric to adult care in rCTDs?
- Available in 20 European languages
- Takes only 15 minutes
👉 https://bit.ly/4g28K6m

➡️ Survey on Digital Lesions
A survey on the self-management of digital lesions and ulcers, a frequent and challenging complication of Systemic Sclerosis (SSc).
- Available in 9 languages
- Takes only a few minutes
👉 https://bit.ly/48cJPsy

🎓 STAY CONNECTED — LEARN WITH US
Webinars 👉 https://reconnet.ern-net.eu/webinar/
e-Learning Course on rCTDs — UEMS accredited 👉 https://reconnet.ern-net.eu/ern-reconnet-e-learning-accredited-course-on-rctds/
Course on Transition of Care in rCTDs — Registration opening soon! 👉 https://reconnet.ern-net.eu/transition-of-care-course/

One more day to go — come find us tomorrow at Booth O13! 💙

Indirizzo

Pisa

Sito Web

https://reconnet.ern-net.eu/

Notifiche

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