Rare Strides

07/17/2026

A quiet moment of listening can change the course of care. At Rare STRIDES, we combine clinician expertise with intelligent tools to help healthcare teams spot rare disease signals earlier and respond with confidence and compassion. Join the conversation to make rare visible in healthcare. Why? Because families battling rare diseases deserve excellent care! https://wix.to/UZK1Fyd

Learn more and connect with our team.

07/13/2026

Every day, families wait too long and experience unimaginable hardships. We build meaningful relationships with the rare community and clinical care teams to change that - rare families, nurses, physicians, rare experts, first responders, geneticists, researchers, academic and nonprofit leaders are joining the conversation to make rare visible in every exam room, expedite access to the right next step in care and restore hope. Learn how your partnership accelerates the path to answers: https://wix.to/cXByGby 🦓🚑💙

07/12/2026

As clinicians and leaders who’ve lived the rare disease journey, we know every moment of delay costs families time, money and peace of mind. At Rare STRIDES, we are building infrastructure - together we can move care from uncertainty to the right next step faster. The result: fewer missed opportunities, clearer care plans, and better outcomes for patients. Learn more about Code Rare: https://wix.to/kRPZ4kP 🦓🤝

07/04/2026

Today we gather to celebrate the incredible freedom and unity of the rare disease community. Rare STRIDES stands tall with every individual and family, honoring the unbreakable strength that connects us all. Together, we are an unstoppable force for change. Join us as we celebrate our shared journey and the power of our collective voice. https://wix.to/Uaf62ih

07/03/2026

Earlier diagnosis could have changed Maria’s path -if connected systems flagged a rare condition weeks sooner, speeding referrals, expanding access to specialists, and unlocking community resources that eased care coordination. At Rare STRIDES we reinvest every partnership dollar back into the rare disease community, building infrastructure - not another app - that creates measurable benefits: faster diagnosis, better access, and stronger support networks. Caregivers, providers, and investors: join us in scaling solutions that make a real difference. Learn more: https://wix.to/ZBodTZk 🚀💙

06/26/2026

Building technology that makes rare diseases visible in healthcare. Watch a 30-45s demo showing a patient, caregiver, and provider linked through Rare STRIDES’ Code Rare ecosystem - then see the proof point: faster, coordinated next steps powered by connected data. Providers, caregivers, EMTs, and investors - comment with your role and perspective below. Learn more: https://wix.to/usVaiuq 🔗💙

04/29/2026

Technology that makes rare diseases visible in healthcare!
We are pleased to announce the launch of our new website!

Rare STRIDES® is building the first integrated clinical decision support ecosystem for rare disease — combining human oversight with AI to accelerate rare disease identification and care navigation to end the 5-year diagnostic odyssey that millions of patients face every day. It's like having a rare disease specialist in every clinic; it is the first mobile rare center of excellence to serve as a connector between rare centers of excellence-Built by a nurse with rare to empower patients, caregivers, and medical teams. Learn more and contact us here: https://www.rarestrides.com


https://youtu.be/YB8C8XPZjTU?si=2Il6Lv162lpF3Zb3

What is Code Rare anchor video

03/01/2026

We celebrate Rare Disease Day in honor of more than 300 million people living with rare diseases worldwide! We stand with you, fight beside you, and strive to embrace each day as a new opportunity to make rare visible in healthcare to support the rare community we love.

"If opportunity doesn't knock, build a door". Anonymous
Nothing extraordinary or of great value is ever produced in a comfort zone.
Life's tests build the testimony; step out in faith willing to make a positive difference for others...that is a life well lived." --Beth Nguyen, RN Founder

02/28/2026

1 in 10 Americans live with a rare disease — yet 95% have no approved treatment. Today, we showed up to change that. 🖤🦓

02/18/2026

EveryLife Foundation for Rare Diseases