Rare Strides

04/29/2026

Technology that makes rare diseases visible in healthcare!
We are pleased to announce the launch of our new website!

Rare STRIDES® is building the first integrated clinical decision support ecosystem for rare disease — combining human oversight with AI to accelerate rare disease identification and care navigation to end the 5-year diagnostic odyssey that millions of patients face every day. It's like having a rare disease specialist in every clinic; it is the first mobile rare center of excellence to serve as a connector between rare centers of excellence-Built by a nurse with rare to empower patients, caregivers, and medical teams. Learn more and contact us here: https://www.rarestrides.com


https://youtu.be/YB8C8XPZjTU?si=2Il6Lv162lpF3Zb3

What is Code Rare anchor video

03/01/2026

We celebrate Rare Disease Day in honor of more than 300 million people living with rare diseases worldwide! We stand with you, fight beside you, and strive to embrace each day as a new opportunity to make rare visible in healthcare to support the rare community we love.

"If opportunity doesn't knock, build a door". Anonymous
Nothing extraordinary or of great value is ever produced in a comfort zone.
Life's tests build the testimony; step out in faith willing to make a positive difference for others...that is a life well lived." --Beth Nguyen, RN Founder

02/28/2026

1 in 10 Americans live with a rare disease — yet 95% have no approved treatment. Today, we showed up to change that. 🖤🦓

02/18/2026

EveryLife Foundation for Rare Diseases

02/14/2026

Love comes in many forms…
It’s the hug from a hospital bed.
The courage in a diagnosis.
The strength of a family that refuses to give up.

This Valentine’s Day, we’re celebrating the bravest hearts we know — our rare warriors. 💙

Through the mission of Rare Wish and the innovation of Rare STRIDES, we continue to make rare visible, fund life-changing wishes, and create pathways to hope, healing, and community.

And of course… delivering love one hug at a time is our favorite ambassador — 🧸 Sunny the Rare Bear.

Because every rare patient deserves to feel seen, supported, and deeply loved.

💙 Happy Valentine’s Day from all of us at Rare Wish & Rare STRIDES

01/01/2026

✨ Happy New Year from Rare Wish & Rare STRIDES ✨

As we welcome a new year, we’re filled with hope, gratitude, and purpose. Thank you for standing with us as we uplift rare families, advocate for awareness, and create pathways to brighter futures.

Here’s to new milestones, stronger communities, and continued impact in the year ahead. Together, we make rare visible. 💙🦓

12/26/2025

This Christmas, we celebrate the rare moments that make life extraordinary--and the rare individuals who make the world a better place.

At Rare STRIDES, we believe every step you take is powerful, no matter how big or small. Each challenge is a chance to grow and shine. At Rare Wish, we know that every dream, every wish, is worth believing in and we strive to make each wish come true.

Together, we are here to Make Rare Visible---to spread kindness, hope, and empower each other to step boldly into the future. This season, let's continue to lift one another up, share our stories, and build a world where every rare moment matters and each rare journey begins with access to vetted resources and comprehensive personalized care.

Wishing you a Christmas filled with hope, love, and endless possibilities. Let your rare light shine brighter than ever in the year ahead because we care about you!

11/13/2025

Two days. Countless connections. Endless impact. 💙
Advocating at Georgia Tech’s Pediatric Innovations Summit with Portal Innovations — helping in pediatrics! 🌈

11/11/2025

Sunny the Rare Bear and 🦓 Hope the Zebra are sending love, gratitude, and joy to all who have served this Veterans Day!

At Rare Wish and Rare STRIDES, we honor the strength, courage, and sacrifice of our Veterans—true warriors who inspire us to keep fighting for visibility, understanding, and hope in the rare disease community. 💜

Let’s salute every hero, both seen and unseen, who helps every day.
👉 Follow, share, and tag a Veteran you’re thankful for today!

11/08/2025

What an inspiring experience at the Pediatric Healthcare Innovation Summit 2025! We were truly honored to sponsor and attend this year. We were surrounded by incredible leaders and brilliant innovators who share our passion for advancing children’s health and rare disease care.

Every connection filled us with hope for the future.
A heartfelt thank you to Leanne West for inviting us to join this important conversation to empower the voice of the rare community!

We are so grateful for all of the leaders and visionaries driving meaningful change in pediatric healthcare. Together, we can make rare strides — and turn rare wishes into reality.

Let’s continue building meaningful partnerships that create impact and hope for rare families and children worldwide!