Neuroendocrine Cancer Foundation

08/27/2026

Join us for the next episode of "Luncheon with the Experts!" Our featured guest will be NET expert J. Randolph Hecht, MD!

If you have any non-case-specific questions, you are welcome to pose them during the presentation, and Dr. Hecht will try to answer them LIVE!

08/22/2026

Join us for When Hormones Interfere With Quality of Life in Neuroendocrine Cancers, a virtual event with Jaydira Del Rivero, MD, endocrinologist and medical oncologist at the National Institutes of Health.

Neuroendocrine cancers can sometimes produce hormones that affect daily life. This webinar will explore hormone-related symptoms, how they may impact quality of life, and what patients and caregivers can discuss with their healthcare team.

📅 Thursday, August 27, 2026
⏰ 1:30–3:00 PM Pacific
💻 Virtual Event
🔗 Register: NCF.net/events/Aug2026

08/15/2026

New podcast episode: NEN Treatments: Focus on Cabozantinib

In Episode 54 of the Neuroendocrine Cancer Foundation Podcast, host Lisa Yen speaks with Dr. Namrata “Neena” Vijayvergia, a medical oncologist and clinical trialist, about cabozantinib and what patients and caregivers may want to know.

Since its FDA approval on March 26, 2025, cabozantinib has emerged as the newest treatment option for neuroendocrine tumor (NET) patients—adding another valuable tool to the treatment toolbox. It’s become a hot topic in support groups and forums, with many patients wondering what to expect. In this episode, Fox Chase Cancer Center medical oncologist Dr. Namrata (“Neena”) Vijayvergia answers the most frequently asked questions about cabozantinib. She explains how it works, how it differs from other therapies, what patients should know about dosing and side effects, and shares insights on a new clinical trial exploring the next generation of cabozantinib.

Listen now: https://www.ncf.net/podcast/54

07/29/2026

Join us for Living With Neuroendocrine Cancer: The Caregiver/Co-Survivor Perspective on Thursday, July 30, 2026.

This virtual webinar will feature an open and honest conversation with four individuals who support loved ones living with neuroendocrine cancer. Together, they will share the realities of navigating a parallel journey as caregivers and co-survivors.

📅 Thursday, July 30, 2026
⏰ 12–1 PM Pacific
💻 Virtual webinar
🤝 For caregivers, patients, families, and the broader neuroendocrine cancer community

Register here: https://www.ncf.net/events/july2026

07/24/2026

We are honoring the life and legacy of Tom Bajoras — beloved husband of Lisa Yen, NCF’s Director of Programs & Outreach, and a cherished member of the neuroendocrine cancer community.

Tom lived with neuroendocrine cancer for more than eleven years and shared his music, creativity, kindness, and service with so many. From performing original piano pieces at the 2023 NET Cancer Day Symposium to composing and editing music for the NCF podcast, Tom’s contributions touched our community in ways both seen and unseen.

In 2023, Tom received the Giovanna Joyce Imbesi Above & Beyond Award, recognizing his dedication to the NET community and the meaningful connection he created through music.

We are grateful for the beauty Tom shared, the journey he offered, and the love he brought into this community.

Read our tribute: https://www.ncf.net/post/honoring-tom-bajoras-and-the-music-he-shared-with-our-community

The Neuroendocrine Cancer Foundation ("NCF") is deeply saddened by the passing of Tom Bajoras, a beloved member of our community, a neuroendocrine cancer patient, musician, composer, advocate, and friend whose music and spirit touched so many.Tom passed away peacefully after living with neuroendocri...

07/22/2026

Join us for Luncheon With The Experts featuring Jonathan Strosberg, MD, Professor in the Department of Gastrointestinal Oncology and Section Head of the Neuroendocrine Tumor Division at Moffitt Cancer Center.

Dr. Strosberg specializes in the management of neuroendocrine malignancies and has contributed extensively to the field through research, publications, leadership with NANETS, and service on the NCCN Neuroendocrine Guidelines Committee.

📅 Thursday, July 23, 2026
⏰ Noon Eastern / 9 AM Pacific
💻 Watch live on Facebook Live or YouTube Live
📝 No registration needed
❓ Submit your general questions live in the Facebook comments or YouTube chat

Hosted by Rain Bennett, Luncheon With The Experts is a recurring educational series for patients, caregivers, and the broader neuroendocrine cancer community.

Learn more: https://www.ncf.net/lwte/july2026

07/19/2026

Neuroendocrine Cancer Foundation is partnering with Triage Cancer on their upcoming webinar "Managing Health Insurance Transitions" on July 22, 2026. Learn how to stay covered when moving, changing jobs, or switching between Medicaid, Medicare, and Marketplace plans. + Free CE for professionals.

Register: https://triagehealth.org/webinars/

07/14/2026

In case you missed it: the Virtual 2026 Neuroendocrine Cancer Patient Conference is now available to watch here: https://www.ncf.net/events/2026conference

Watch the Virtual 2026 Neuroendocrine Cancer Patient Conference, a free online event designed for individuals living with neuroendocrine cancer, as well as caregivers and families seeking trusted, expert-led information.

The conference featured expert-led education on key topics in neuroendocrine cancer care, including:

- Understanding your neuroendocrine tumor diagnosis
- Overview of treatment options, including systemic and liver-directed therapies
- Managing treatment side effects
- The role of imaging and scans in monitoring disease
- When and how to consider surgery and clinical trials

Key insights to help you navigate complex care decisions
The program features:

✅ 19 leading NET experts sharing practical, patient-centered insights
✅ Real patient stories offering perspective and connection
✅ Expert panel discussions on supportive care and treatment decision-making
✅ Q & A sessions where specialists answered questions from the community
✅ A virtual format you can pause, rewind, and replay

Watch now on the NCF website or YouTube, and help us improve future programs by completing our short anonymous survey: https://forms.gle/tgt5n4tPeiZTvik96