Rarely Familiar

06/13/2026

We had a great time meeting so many awesome families at the first DODS Days!

05/28/2026

Save the date for this fantastic event!

67th Annual Firefighter’s Carnival

05/24/2026

🎤New Episode Alert 🎤
Meet whose journey from hospital stays to self-advocacy has paved the way for a groundbreaking consulting firm, Access 2 Advocacy. If you are the parent or caregiver of a child with medical complexity and disabilities live in Minnesota and are reaching your breaking point navigating the system, you’ll want to have Sophie’s contact info at the ready. She is very accommodating in terms rates and gives a complimentary consultation session. All the Rarely Familiar mamas use Sophie, she’s a Godsend!

Dive into her story of resilience and empowerment on the latest episode of Rarely Familiar. Go to rarelyfamiliar.com to watch the full episode on YouTube, Spotify or Apple Podcasts

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05/24/2026

🎙️ New Podcast Episode Alert! 🎙️
Discover the power of lived experience with , a courageous advocate transforming challenges into opportunities. Join us on Rarely Familiar as we explore her path to founding a groundbreaking disability consulting firm, Access 2 Advocacy. It’s all about helping navigate the complexities of living life successfully with rare medical complexities. Go to rarelyfamiliar.com to watch the full episode on YouTube, Spotify or Apple Podcasts

05/14/2026

Mark your calendars and join us for DODS Days June 11th!

https://www.instagram.com/reel/DYVAmgdOAZT/?igsh=MXY0MWdkankyOHVxMA==

05/10/2026

This Mother's Day, we're not just celebrating one kind of mom. 🌿

We're celebrating every person who has shown up for a child with rare disease or medical complexity — not because they had to, but because they chose to, again and again.

The birth mom who fights tirelessly for answers.
The foster mom who loves fiercely in the in-between.
The grandmother, sister, aunt or friend who became the primary caregiver overnight.
The aunt, the neighbor, the chosen family member who said: I'm here.
The adoptive mom who chose this path with her whole heart.
The kinship caregiver who stepped in without hesitation.

In our community, family is built in a thousand different ways. Every single one matters. 💚

Happy Mother's Day to all of you.

05/09/2026

Nurses have been the backbone of healthcare since Florence Nightingale lit the way. This week, we say THANK YOU! 🕯️