Haemophilia Scotland

Haemophilia Scotland A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

14/09/2026

For some women, getting a bleeding disorder diagnosis can take years.

Along the way, symptoms can be minimised, concerns dismissed, and women left questioning whether they’re simply being “too anxious” about their health.

Living with unexplained heavy bleeding, anaemia, fatigue or fainting can mean constantly adapting your life around symptoms without understanding why they’re happening.

When a diagnosis finally comes, it can be a huge relief - but it can also bring frustration and anger at how long it took to be heard.

Watch our full video with Clinical Psychologist Gráinne to find out more.

11/09/2026

For women and girls living with bleeding disorders, the impact can go far beyond bleeding.

Heavy or long periods can contribute to anaemia and fatigue, affecting everything from mood and confidence to school, work and social life.

Support can also be important through different stages of life, including pregnancy, family planning and hormonal changes.

If you are struggling with any of these often-overlooked symptoms, please get in touch - we would love to highlight other avenues of support that are available within our network.

08/09/2026

Meet Naomi 👋

As part of our A Spotlight on Young Women Living with Bleeding Disorders campaign, we’re sharing Naomi’s story.

Diagnosed after her brother’s diagnosis led to family testing, Naomi grew up learning how to manage her bleeding disorder with the support of her mum.

In this video, she speaks about the importance of understanding your own health, advocating for yourself, and not being afraid to ask questions, particularly when navigating healthcare as a young woman.

Naomi also shares how connecting with others who understand her experiences helped her feel less alone, and inspired her to give back to the bleeding disorders community.

🎥 Watch Naomi’s story and hear why knowledge, confidence and connection matter.

Could your symptoms be more than “just one of those things”? 💬Bleeding disorders can often go undiagnosed in women, with...
04/09/2026

Could your symptoms be more than “just one of those things”? 💬

Bleeding disorders can often go undiagnosed in women, with symptoms dismissed as normal or simply part of everyday life.

Some signs to look out for include:

🩸 Heavy and/or long periods
🩸 Bleeding that’s difficult to stop after cuts or dental treatment
🩸 Frequent or long-lasting nosebleeds
🩸 Easy bruising
🩸 Low iron, low ferritin or anaemia
🩸 Excessive bleeding after childbirth
🩸 Needing a blood transfusion
🩸 A family history of bleeding disorders

If any of these sound familiar, it could be worth speaking to your GP or healthcare professional.

Find out more about bleeding disorders and support available through Haemophilia Scotland via our website 👇

https://haemophilia.scot/women/

A spotlight on young women living with bleeding disorders ♥️For too many women and girls, the signs of a bleeding disord...
02/09/2026

A spotlight on young women living with bleeding disorders ♥️

For too many women and girls, the signs of a bleeding disorder can go unnoticed, dismissed, or simply accepted as “normal”.

This month we are shining a light on the experiences of young women across Scotland, sharing real stories of diagnosis, navigating healthcare, and learning to advocate for their own health.

By starting conversations and challenging misconceptions, we want to help more women recognise the signs, seek answers, and feel confident speaking up about their health.

Because no symptom should be ignored, and no one should have to suffer in silence.

Follow along as we share stories, raise awareness, and put young women’s experiences at the heart of the conversation.

Join the Movement!Our six-week virtual physio classes are back and starting in the Autumn. These sessions are designed s...
31/08/2026

Join the Movement!

Our six-week virtual physio classes are back and starting in the Autumn. These sessions are designed specifically for anyone 18+ living with a bleeding disorder in Scotland, and you can take part from the comfort of home. No travel, no cost for members, just expert led physiotherapy that fits around your life.

We’re running male and female groups, each with up to 10 spaces, giving you a supportive, friendly environment to build strength, improve mobility, and feel more confident in your body.

If you’re ready to move more, feel better, and connect with others who get it, this is your moment.

Find out more and register via our website below:
https://haemophilia.scot/join-the-movement/

* Financial support has been provided to Haemophilia Scotland as a grant from Pfizer Ltd
* Financial support has been provided to Haemophilia Scotland as a grant from CSL Behring
* Roche Products Limited and Chugai Pharma UK Ltd have provided an arms-length grant for this programme but have had no involvement in the structure or content.

Reminder - our 2026 Members’ Day is tomorrow 📣A friendly reminder that our Members’ Day will take place tomorrow, from 1...
28/08/2026

Reminder - our 2026 Members’ Day is tomorrow 📣

A friendly reminder that our Members’ Day will take place tomorrow, from 10:30 am - 4:00 pm at The Studio in Glasgow.

The day will bring together our bleeding disorders community for a chance to connect, share experiences, and learn from one another. We’ll hear from healthcare professionals, listen to lived experiences from across Scotland, and create space for building a strong network of support.

Lunch will be provided, and children can enjoy a creative art workshop during the AGM.

We can’t wait to welcome our members and spend the day together!

24/08/2026

Meet Jo 👋

Jo is a parent of children with bleeding disorders and also a Board Member at Haemophilia Scotland.

In this video, she shares how she first became involved with the charity, what that journey has meant for her and her family, and why she would encourage anyone considering membership to get involved.

From support and information to community and connection, Jo highlights the real impact of being part of Haemophilia Scotland 💙

🎥 Watch her story to find out more.

Only 5 days to go until our 2026 Members’ Day & AGM! We can’t wait to welcome you on Saturday 29th August, 10:30am-4:00...
24/08/2026

Only 5 days to go until our 2026 Members’ Day & AGM!

We can’t wait to welcome you on Saturday 29th August, 10:30am-4:00pm at The Studio, Glasgow for a day of updates, connection and community. Lunch is provided and there will be a children’s arts workshop with Josey‑ann and Niamh from GoMA for the duration of the AGM.

If you haven’t registered yet, there’s still time. We’d love to see you there. 💙
👉 Register: haemophilia.scot/agm2026

If you can’t make it, please appoint a proxy so your vote still counts. Achieving quoracy is essential, and your proxy genuinely helps us move forward as a charity.
You can appoint a proxy via the link above.

Whether you join us in person or by proxy, your voice matters. Register now!

Something exciting is on the way 👀💙We’re bringing our 2026 Events Programme to more communities across Scotland, with lo...
21/08/2026

Something exciting is on the way 👀💙

We’re bringing our 2026 Events Programme to more communities across Scotland, with local meet-ups taking place in Inverness and Aberdeen this autumn.

📍 Inverness Local Meet-Up
📅 Saturday 3rd October
⏰ 10:30am–2:30pm
📌 Inverness Creative Academy

📍 Aberdeen Local Meet-Up
📅 Saturday 7th November
⏰ 10:30am–2:30pm
📌 Aberdeen Science Centre

These events are a chance for people living with bleeding disorders, as well as parents, siblings, partners, and supporters, to connect with others, share experiences, and build a stronger support network.

All events are free to attend. If you’d like to join us, simply register via the events section on our website www.haemophilia.scot/events

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday 9:30am - 5:30pm
Tuesday 9:30am - 5:30pm
Wednesday 9:30am - 5:30pm
Thursday 9:30am - 5:30pm
Friday 9:30am - 5:30pm

Telephone

+448458744004

Website

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