ALK Positive

05/30/2026

We’re kicking off ALK-positive Awareness Month in a big way - and we want you there.
Join us for a special ALKtALK with Christine Lovly, MD, PhD - ALK Positive Scientific Advisory Board member, fierce advocate, and leading researcher for the ALK-positive community. We will be broadcasting live and in person from the American Society of Clinical Oncology (ASCO) Annual Meeting, where some of the biggest advances in cancer research are unveiled.

📅 Saturday, May 31, 2026
🕖 7:00 PM ET
📍 Live on Zoom, straight from ASCO
Dr. Lovly will break down the most exciting updates from ASCO and what they mean for the ALK-positive community, giving you a front-row seat to the latest science right as it’s happening.

This is your chance to hear cutting-edge research translated directly for patients, carepartners, advocates, and supporters - and to launch ALK Positive Awareness Month together, empowered and informed.

Whether you’re newly diagnosed, a longtime advocate, or somewhere in between - this one’s for you.

This session will be recorded and made available on the ALK Positive, Inc. YouTube channel for those unable to attend live.

05/29/2026

The 7-year CROWN data just dropped live at . 💥

So what does this mean for the ALK+ community?

Some members of our organization share the standout moments from the new lorlatinib data — from long-term progression-free survival and brain protection to why biomarker testing matters.

For our community, research matters. 💙

Be sure to save the date and join us this Sunday, 31 May at 7pm ET, when Dr. Christine Lovly joins us live from to dive deeper into the CROWN results and other important updates.

05/29/2026

🔬 ALK Positive is heading to the ASCO Annual Meeting 2026 in Chicago!

The American Society of Clinical Oncology Annual Meeting is one of the world’s premier oncology conferences — bringing together researchers, clinicians, advocates, and industry leaders to share groundbreaking science, discuss the latest clinical advances, and help shape the future of cancer care.

Our ALK Positive team will be in Chicago this week, excited to learn from the latest developments in ALK-positive cancer research, connect with the global oncology community, and continue advocating for patients and families affected by ALK-positive cancers.

We’re especially looking forward to the exciting new data and discussions emerging from this year’s lung cancer sessions, along with the meaningful conversations and collaborations that continue to move precision medicine forward and bring hope to our community.
If you’re attending , we’d love to connect — come say hello! 👋

05/28/2026

In this special ALKtALK, Dr. Ken Culver, Executive Director and Medical Director at ALK Positive, shares a preview of ALK Positive Awareness Month 2026 and highlights the discoveries, research initiatives, and future frontiers shaping the future of ALK-positive cancer care.

Dr. Culver highlights progress across ALK Positive’s research initiatives — including clinical and preclinical work, support for young investigators, and expansion of clinical trial opportunities.

From emerging science to expanded treatment opportunities, this conversation offers a closer look at the discoveries, collaboration, and research efforts helping move the field forward.

Whether you are a patient, care partner, advocate, loved one, researcher, or supporter, this is an important discussion for our entire community.

🎥 Recorded live on Sunday, May 17, 2026 at 7:00 PM ET
https://youtu.be/mMTqHDyFr8k?si=f5CEbRg5k4bo1NHd

05/21/2026

Thinking about clinical trials but wondering what the experience is really like? 👀

Join us TONIGHT at 7:00 PM ET for Clinical Trials Connect — a welcoming space to learn, ask questions, and connect with others in the ALK+ community.

What you’ll gain:
• Real-world perspectives from ALK-positive patients who have participated in clinical trials
• Insights into the motivations, experiences, and lessons learned along the way
• Discussion around Dr. Ken Culver’s paper, Six Facts About Clinical Research Participation for ALK-positive Lung Cancer Patients

💬 Bring your questions and lived experiences to share as we explore the clinical trial journey together.

Facilitated by Jeff Sturm, 11-year ALK-positive NSCLC patient, Board Member, and member of the Clinical Trials and Research Acceleration Committees.
To learn more and join: https://alkpositive.org/event/clinical-trial-connect-2/2026-05-21/

05/19/2026

Reminder: Join Us Tonight!

Don’t miss tonight’s webinar with Dr. Ross Camidge and Nancee Pronsati discussing the evolving landscape of ALK+ lung cancer care, treatment, side effect management, research, and advocacy.

🗓 Tonight — Tuesday, May 19
⏰ 4 PM PT | 7 PM ET

Register here: https://tinyurl.com/8pnek2mz

Thank you to The Patient Story for partnering with ALK Positive to expand education and awareness throughout the lung cancer community.

05/18/2026

Upcoming Webinar: Living Well with ALK+ Lung Cancer

Join The Patient Story on Tuesday, May 19 for an important conversation featuring Dr. Ross Camidge and ALK Positive Board member Nancee Pronsati as they discuss:

• ALK+ treatment advances
• Managing side effects & quality of life
• Brain metastasis prevention
• Clinical trials & research
• Patient advocacy and support

We’re grateful to The Patient Story for helping raise awareness and education across the ALK+ lung cancer community.

🗓 Tuesday, May 19
⏰ 4 PM PT | 7 PM ET

Register now: https://tinyurl.com/8pnek2mz

05/17/2026

Tonight at 7 PM ET: Join ALKtALK with Dr. Ken Culver, Executive Director & Medical Director of ALK Positive, for a special preview of ALK Positive Awareness Month 2026.

Dr. Culver will highlight progress across ALK Positive’s research initiatives — including clinical and preclinical work, support for young investigators, and expansion of clinical trial opportunities.

Whether you’re a patient, care partner, advocate, loved one, researcher, or supporter, we hope you’ll join us for this important discussion and sneak peek at what’s ahead for APAM 2026.

Learn more and join here: https://alkpositive.org/living-with-alk/alktalk/

05/08/2026

We are deeply grateful to the Dave Jasso Foundation for their unwavering support of the ALK-positive community and for the incredible awareness, compassion, and hope they continue to inspire through their work.

Surpassing this fundraising milestone is more than a number — it represents lives touched, patients supported, and a legacy that continues to make a meaningful impact. We are honored to help share Dave’s story and to stand alongside the Jasso family in carrying forward a mission rooted in love, advocacy, and action.

Thank you to everyone who continues to support the ALK-positive community and help ensure that no patient walks this path alone. 💙

Today we’re proud to share that the Dave Jasso Foundation has surpassed the $100,000 fundraising milestone in support of ALK Positive.

Thank you to our incredible supporters for helping us honor Dave’s memory by turning love into action, legacy into hope, and generosity into real impact.

"Lives of great men all remind us
We can make our lives sublime,
And, departing, leave behind us
Footprints on the sands of time."

— Henry Wadsworth Longfellow, “A Psalm of Life”

05/08/2026

Join us on May 14 at 1.30pm ET for a conversation on how heritable genetics can drive the next generation of lung cancer research.

Our Board & Medical Committee Member Marc Muskavitch joins special guests Dr. Sandip Patel, Dr. Isabel Preeshagul, and Janet Freeman-Daily, Co-founder & President of ROS1ders, for this special livestream from Lung Cancer Research Foundation and Susan Wojcicki Foundation.

Don't miss this discussion on heritable genetics and how we can drive more research together.
Register: LCRF.org/together