Rocky Mountain Rett Association

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Rocky Mountain Rett Association

Rocky Mountain Rett Association seeks a cure for Rett Syndrome.

Until a cure for this disease is found, we envision a region where girls with Rett Syndrome and their families have access to the resources, care and support they need, where the public is aware of, engaged and active in addressing this debilitating disease, and where improved treatments are found to help our girls live a little easier.

05/28/2026

Happening Tonight! Join the International Foundation for CDKL5 Research for a virtual Sibling Panel featuring adult siblings who will come together to answer questions and share perspectives shaped by lived experience.

This is a great opportunity to listen and learn from adults whose experiences can help guide and support others who are experiencing similar things.

International Foundation for CDKL5 Research-IFCR

05/26/2026

Are you interested in helping out at a Risers 4 Rett event as a volunteer, guide, or sponsor?
🤝🎣
Organizing an R4R event takes a lot of support from dedicated volunteers to fishing guides, and we are always looking for support. Do you have any auction items to donate? Or would you like to become an official sponsor? Let’s chat.
Check out risers4rett.org/get-involved to learn more!
Risers4Rett

05/19/2026

We would like to extend a warm welcome to Scott Henley, the new Executive Director of RMRA and R4R! Scott brings more than four decades of experience in the hospitality industry. He began his career as a prep cook and steadily worked his way through the ranks—serving as Executive Chef, General Manager, Regional Manager, and ultimately spending the last decade as a senior executive. Along the way, Scott has successfully grown and revitalized numerous concepts while mentoring and developing countless individuals. His career has been defined by a deep commitment to service and hospitality, which he believes to be one of the highest callings in life. Serving the RMRA community is a natural extension of that belief. We are so excited to have him join our team! Welcome, Scott!

05/14/2026

Believe. Hope. Cure Rett. A cure is possible!! 💜🧬

05/10/2026

A mother's love is like no other. 🩷🌷
Happy Mother’s Day to all the strong mothers out there today - we see you, we love you, and we appreciate your dedication. 💗

05/04/2026

R4R Spring 2026 was amazing!! From great fishing to time spent with friends and supporting the Rett Clinic - we are so grateful for all the participants, volunteers, guides, and sponsors who made this event a possibility!
Risers4Rett

04/28/2026

Keep an eye out.... 👀🎣
Tickets are going on sale soon for R4R’s Fall 2026 Fly-Fishing Tournament! Don’t miss a three-day weekend in beautiful Almont, CO, filled with fishing, eating, socializing and relaxing. Proceeds from the event benefit the Rett Clinic at Children’s Hospital Colorado. Do what you love to help someone else and get ready for R4R Fall 2026! Registration coming soon. 🤝

04/22/2026

The R4R Spring 2026 Online Auction is Now OPEN!
Get ready to bid on incredible items and experiences while supporting a great cause.

⏰ Bidding Closes: Saturday, April 25 at 8 PM (MST)

Happy bidding!

https://e.givesmart.com/events/Ldp/i/

Risers4Rett

04/10/2026

April 10th is National Siblings Day! There are so many amazing siblings in our community who show up with strength and love to care for their brothers and sisters daily. Siblings are warriors!
🫂💜
Click https://www.rmrett.org/news-from-rmra/siblings-day-honoring-the-unique-relationships-in-rett-syndrome-families to read our Sibling's Day blog from 2024.

04/06/2026

Tight Lines for Tillie: A Fundraiser Supporting the Rocky Mountain Rett Association 💜

Join the Tinsley family as they fundraise for the Rett Clinic at Children's Hospital Colorado. Tillie has a powerful story, and is now a 2nd grader with physical therapy, occupational therapy, speech therapy, and more hospital visits in her short life than any child should have to log. She handles all of it with a grace that humbles her family.

Visit https://www.coloradogives.org/story/lkd3eg to read more of Tillie's story and donate. It takes a village! 🌟💜

Risers4Rett

Address

Morrison, CO

Website

https://rmrett.org/

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