08/26/2026
Yes that is coffee on my nose π€¦ββοΈ And it had been there for at least 2 hours, all through my leg ultrasound, a trip through Safeway and CVS. Good times.
Pulmonary went well, he said things are looking good and I just need to be patient. The right lung was like a miracle it cleared up so fast but the left lung will definitely take longer. I've been getting really bad shoulder cramps after the drains so he said to go slower and stop earlier. Also draining every day might help the swelling in my foot.
No blood clot/ DVT in my leg which is great but that leaves lymphadema or just a weird swelling for no reason. I remember from reiki the body has opposite side features so the right foot might just be connected to my left lung? Seeing my acupuncturist and integrative doctor on Friday.
PET SCAN! Holy moly Xeloda and the off labels are working π These pills are a little rough and I actually didn't finish last week all the way because by the end of the week of them I'm exhausted and my lungs are tight and my stomach is a little wonky. But some CBD and aloe fixed that. The lung part sucks though.
Just 2 small spots left - Interval decrease in FDG uptake at scattered skeletal sites, now with uptake similar to background, for example in a lesion in the right side of T1 with current SUV max 2.3 (CT 137), previously
SUV max 3.4. Index lesions which demonstrate uptake above background marrow activity suggesting residual disease include:
-a lesion in the left scapula (CT 160) with max SUV 2.9, previously 3.4.
They're also recommending a brain MRI which scares me (but is on course for Sierra can't just get good news, there always has to be hitch) but I'll schedule it. I'm going to start spacing out scans a little more too, especially after all the emergency room ones.
So that was my day mixed in with Dolly Parton passing (this will take me awhile to recover) and today Tim Curry (Clue is my second favorite movie and I met him in 1987 at the stage door after Me & My Girl for my 11th bday π€). Death is hard to handle but even worse when you already have a life threatening disease.
Out of word space,
Sierra