CURE Epilepsy

10/20/2026

SUDEP is when someone with epilepsy, who was otherwise healthy, unexpectedly dies. In SUDEP cases, no other cause of death is found when an autopsy is done.

In this webinar from TSC Alliance, Dr. Crino and Ashley provide an overview of SUDEP, including what you need to know to have informed conversations with your medical team about your/your loved one’s risk. They also share resources for grief support and how you can support TSC research through tissue donation.

Watch here: https://www.youtube.com/watch?v=ueg5fQxxuCw

Presented by: Peter Crino, MD, PhD, TSC Clinic Director at the Univ...

10/19/2026

This week marks SUDEP Action Day 2026. To raise awareness about SUDEP, epilepsy organizations across the world are sharing each other's excellent resources and media.

And so...in this episode of What the EF podcast Dr. Kim Pargeon, board member of The Cameron Boyce Foundation tackles an audience-requested topic: SUDEP. There are so many questions, and she guides us through all of them.

Watch Here: https://www.youtube.com/watch?v=hmAa-vUbPVI

In this episode, we tackle an audience-requested topic: SUDEP. Ther...

10/15/2026

Our latest Epilepsy Explained video is all about status epilepticus. Dr. Jaideep Kapur joined us to answer some of the most common questions and discuss a few of the clinical trials happening now. He covers:

👉 What is status epilepticus?

👉 Why is status epilepticus considered a medical emergency?

👉 How is status epilepticus treated?

👉 What causes status epilepticus and who is most at risk for it?

👉 What are NORSE and FIRES?

👉 What research is being done on status epilepticus and potential treatments for it?

Watch here: https://bit.ly/3VBWxgN

Dr. Jaideep Kapur explains Status Epilepticus, a series of seizures that last longer than 5 minutes and can result in severe, long-term impacts on the patient.

10/15/2026

Last year, we introduced you to Drs. Avtar Roopra and Olivia Hoffman. Their work is centered on a medication that is already FDA-approved to treat rheumatoid arthritis.

But due to changes in how the National Institute of Health (NIH) awards grants, their work has been hanging in the balance.

Still, curiosity, innovation, and brilliance always finds a way. Watch to hear about what the lab has been up to for the past year, and the exciting places their work is going.

10/14/2026

ICYMI 💜 is now part of the CURE Epilepsy family. Established in 2019, this foundation has been pivotal in bringing the epilepsy community together, especially young adults.

Swipe to get a peek at their impact-to-date. We can't wait to accelerate research and grow the community together. 🤝

10/08/2026

Did you catch September's Seizing Life podcast episode? It's all about the how research is funded and the current state of epilepsy research. Check it out on your favorite podcast platform!

In last month’s episode of Seizing Life, Kelly speaks with neurologist, neuroscientist, and former National Institute of Neurological Disorders and Stroke Director Dr. Walter Koroshetz about the state of epilepsy research, the critical role of federal funding, especially for early-career scientists, and the advances bringing new hope to people and families impacted by epilepsy. Listen or Watch Now from CURE Epilepsy: https://www.cureepilepsy.org/seizing-life/former-ninds-director-dr-walter-koroshetz-on-current-challenges-and-promise-in-epilepsy-research/

10/08/2026

Did you know? Scientists can use light to turn specific brain cells off and on. The approach is called "optogenetics" and has just been recognized in a big way.

10/07/2026

We’ve invested $6M in SUDEP-related grants across the world since 2004. But we didn’t do it alone.

Donors, supporters, patients, families, clinicians, foundations, corporate partners — thousands of individuals have made our pioneering work possible.

In the spirit of togetherness, this month SK Life Science, Inc. is generously matching all gifts dollar-for-dollar up to $10,000 in honor of SUDEP Action Day.

That means your gift right now goes twice as far, powering more science.

Together, we are continuing to invest in research, so we can understand who is most at risk and ultimately prevent SUDEP. Join us by making your matched gift here: https://bit.ly/4hxEzV2

10/06/2026

Did you hear? New CURE Epilepsy grantees just dropped.

The Taking Flight Award seeks to promote the careers of early-career investigators to allow them to develop an independent research focus. Here's what our latest grantees will work on...

🧑‍🔬 Patrick Davis, MD, PhD, (Boston Children’s Hospital)
🔎 Network Resonance as a Novel, Targetable Driver of Seizure Onset in Drug-Resistant Epilepsy

🧑‍🔬Federico Moro, PhD, (Mario Negri Institute for Pharmacological Research)
🔎 Targeting GFAP Aggregation to Prevent Post-Traumatic Epileptogenesis

🧑‍🔬 Justin Ryan, PhD, (Upstate Medical University)
🔎 Development of ECG-Derived Respiratory Biomarkers for SUDEP Risk Assessment

Learn more about these projects here: https://bit.ly/4AQjqNi

These three early-career investigators will use their Taking Flight grants to establish their research.

10/02/2026

The 5th annual Reagan's Run was a runaway hit! Thank you so much for bringing such a wonderful community together in the spirit of hope and progress. 💜