06/15/2026
A retrospective cohort study of Utah residents from 1950 to 2019 found that individuals with had significantly worse survival compared to unaffected peers, with risk of death in infancy more than 20 times higher and remaining 8-fold higher in adulthood.
Survival for people with spina bifida improved substantially between 1950 and 2010, most notably in the first decade of life, but these gains paralleled those seen in the general population—indicating that improvements in care have not reduced the survival gap. Persistent disparities highlight the need for ongoing healthcare improvements and support for this population.
https://ja.ma/4uCVngt
