Lurie Children’s Single Ventricle Center of Excellence

05/22/2026

This is the 30th year! ❤️🫶❤️Consider walking with us and message in comments if you wish to join in our annual photo.

Hey Chicago-area Heart families and Walk supporters: THE COUNTDOWN IS ON!! Walk Day is just ONE MONTH away! 💥💥💥

Once again, this unforgettable day will be packed with:
🎉 Family-friendly fun
✨ Inspiring mission moments
🎯 Exciting activities
👟 Our signature one-mile walk!

We're walking to fuel life-saving CHD research, and we need YOUR help to reach our goal. Every step and every dollar makes a difference. 🙌 Let’s come together and make an impact!! WALK WITH US! FUND HOPE. CHANGE LIVES! ❤️ Register now & get ready to join us JUNE 6th at Lincoln Park (by the Ulysses S. Grant Memorial). Visit for details: https://secure.qgiv.com/event/chicagoil/

05/11/2026

❤️ One week away! Sign up now! ❤️

Join Team CHD Illinois on Sunday, May 17, 2026, as we walk for our heart warriors, survivors, fighters, families, and angels.

📍 Promenade Bolingbrook
⏰ Registration: 9:00 AM
💙 Remembrance: 10:00 AM
👟 Walk Begins: 10:30 AM

Every step matters. Every family matters. Every heart matters.

👉 Register here: https://runsignup.com/Race/IL/Bolingbrook/TeamCHDILWalk

05/10/2026

Join us!!!! Only 1 month to go!

Hey Chicago-area Heart families and supporters! 💓 The countdown is ON — the 2026 Chicago Congenital Heart Walk is less than a month away! 🎉

We're walking to fuel life-saving research — and we need YOUR help to reach our goal. Every step and every dollar makes a difference. 🙌 Let’s come together and make an impact. Register now & get ready to join us next month: https://secure.qgiv.com/event/chicagoil

05/09/2026

🥰😍❤️

05/03/2026

Research Explained - Lifespan registry publication. Our very own Dr Kiona Allen Lurie Children's Heart Center is a co-author. ❤️🫶❤️

What have we learned from the first people to take part in the FON Legacy Registry?

Our newest Research Explained shares key takeaways from the new publication, highlighting how registry data can help us better understand health challenges for people with single ventricle heart disease (SVHD) across the lifespan.

Thank you to the individuals with SVHD, families, and care teams who made this learning possible.💙

🔗 Check out the Research Explained summary and research article: https://www.svone.org/news/first-fon-legacy-data-registry-publication-releasednbsp

05/03/2026

Today we honor the mothers whose hearts carry a love that never fades.

Bereaved Mothers Day is a reminder that motherhood does not end… it changes. It lives on in memory, in love, and in the quiet strength it takes to keep going.

To every mother grieving a child — we see you. We honor you. We stand with you.

Your child is forever a part of you. Your love is forever. 💜

05/01/2026

❤️🥰🔥

04/17/2026

A milestone worth celebrating 💙

The first publication using data from the FON Legacy Registry is officially published! This marks a significant milestone for our community, demonstrating how shared data can lead to shared knowledge and progress.

Thank you to everyone who helped make this possible.
🔗 https://www.svone.org/news/first-fon-legacy-data-registry-publication-releasednbsp

04/03/2026

Share your incredible milestones! 📣🧠🫀🫁

We’re collecting community highlights to celebrate during the Spring 2026 SV-ONE Virtual Learning Session! ⭐If you’re an individual with SVHD, family member, or care center team member, share your milestones and achievements since the last Learning Session—big or small, for an opportunity to be recognized during our upcoming Spring 2026 Virtual Learning Session!
Share your highlights: https://www.svone.org/voices-united-stories
Bonus: Want to share your highlight publicly, too? Drop a quick “win” in the comments! 🎉

04/03/2026

Blue & Green Spirit Week runs from April 4 through April 11! Join us for fun activities that celebrate the Donate Life message, honor donors, and give hope to those waiting for a second chance at life.

You can plan your week with the Blue & Green Spirit Week calendar, and then get ready to share your blue & green colors on (and send some photos to the Blue & Green Day Photo Contest when it opens on Friday, April 10 😉)! 💙💚 Learn more here: https://donatelife.net/how-you-can-help/national-observances-celebrations/blue-green-day/