Lurie Children’s Single Ventricle Center of Excellence

08/11/2026

❤️🫶❤️

Odayin’s 25th anniversary is a year-long celebration and our next stop is Chicago! Join us on September 24th for our Big Heart (Birthday) Bash, a grown-up birthday party with a purpose with live music, piñatas, a magician, and more!

Come raise a glass, make memories, and celebrate 25 years of giving heart heroes a place where they truly belong. The event is a little fancy and a little casual, and in a fun new venue with space to mingle indoors and out on the patio. We can't wait to party with you!

The celebration is from 6-9pm and includes:
-A delicious dinner and hosted bar
-Live music, cotton candy, and piñatas
-Roaming magic by Dr. David Wax
-A 360° photo booth to capture the fun
-Fantastic silent auction and interactive games
-An inspiring program hosted by Chris from The Morning Mix on 101.9 The Mix

Individual tickets are $125 and the deadline to purchase is September 13th.

08/01/2026

An incredible opportunity to get the training and experience needed to make a difference!!

As a member of the Every 100th Heart Coalition, Mended Little Hearts is excited to share a new opportunity to get involved in CHD advocacy.

Every 100th Heart is now recruiting the first cohort for the CHD Champions Network, a national
community of patients, families, clinicians, and advocates working together to make CHD a
national priority.

As a CHD Champion, you'll receive advocacy training, connect with policymakers, and help
ensure the CHD community's voice is heard at the state and federal levels. No previous advocacy
experience is required, just a passion for making a difference.

🫀 Commitment: Approximately 2-3 hours per month
📅 Application deadline: August 21, 2026

Help shape the future of congenital heart disease advocacy.

Learn more and apply: https://every100thheart.org/chd-champions/

07/26/2026

Such a wonderful event providing fun engagement opportunities for families cared for by Lurie CCU to connect outside the hospital walls.

🎉 CCU patients and families, the CCU BBQ is back! 🍔☀️

Registration is now open for all patients who have ever been admitted to the CCU. Check your email for your invitation and register to join us for a fun day of food, family, and connection! ❤️

📧 Didn’t receive your invitation? Email [email protected]

07/20/2026

Save the Dates! 📅 SV-ONE’s Fall 2026 Virtual Learning Series is coming soon. We’re piloting a new format featuring three shorter virtual sessions throughout the fall to provide greater flexibility and create more opportunities for meaningful discussion and learning.
📍 Sept. 23 | 3:30–5 pm ET
📍 Oct. 20 | 6:30–8 pm ET
📍 Nov. 17 | 11 am–12:30 pm ET
More information about session topics and registration will be available soon. We look forward to seeing you there!

07/06/2026

We see you ! Great opportunity!

Let's hear it for the heart dads - this is the perfect relaxed weekend just for them.

06/30/2026

❤️

06/29/2026

Consider participating in this survey about supporting children with CHD who attend public schools. The investigator is a Heart Mom who has devoted her dissertation to better understanding how to support our kids! See link below to learn more and hopefully participate!

https://docs.google.com/forms/d/e/1FAIpQLSczs_KleLn5cROl2MUndZKzHukPKGSqIowIh5HlSLHv8z5Hhg/viewform?usp=preview

06/17/2026

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06/13/2026

This is a wonderful conference and pre conference discussing advocacy. Look at your calendars and consider applying to join! 🫀🧠❤️🫶❤️