Lurie Children’s Single Ventricle Center of Excellence

10/07/2026

🎶 Let’s Sing, Connect & Make a Difference! 🎶

Calling all kids ages 7–12 living with congenital heart disease! 💙 Join Heartsong Choir Fall 2026 for six weeks of singing, songwriting, friendship, and FUN!

📅 Thursdays, Oct. 8–Nov. 12 | 5:30–6:30 PM
📍 Northwestern University’s Bienen School of Music, Evanston
✨ Free program + free parking!

Come make music, build community, and help create a song for a professional album featuring musicians with CHD. Your voice matters—come sing with us! 🎤💙

10/04/2026

Hope to see you all next year!!

09/28/2026

Play ball!!

09/23/2026

Our Fontan Choir study is finally published!!!! Congrats to the team for this INCREDIBLE work:

Children with Fontan circulation (FC) rely on passive blood flow to the lungs and require optimal lung function [1, 2]. Singing has been shown to increase exercise capacity, improve lung function and enhance quality of life (QoL) in adults and in rare studies of children with non-cardiac disease [7....

09/20/2026

Congrats to the amazing Thrivorship team for their incredible showing at The Cardiac Neurodevelopmental Outcomes Collaborative 14th Annual Scientific Sessions meeting. Lurie was represented by 20 incredible team members including an adult patient living with CHD, cardiologists, inpatient and outpatient nurses, speech therapists, occupational therapists, physical therapists, music therapists, social workers, education liaisons, neuropsychologists, developmental pediatricians, and a partridge in a pear tree. We had 4 oral presentations (including 2 presented as part of the best abstract competition) and 8 posters highlighting our research, QI, and program development. This team is truly the best of the best!! 🤩

09/20/2026

It’s not too late to sign up for the Team CHD IL White Sox Game in 9/27! Great fun for a great cause - including a really special parade down on the field before the game!! Join your Lurie Family to help raise money for this incredible organization that does so much to support our heart families all year long!!

https://www.gofevo.com/event/2026chd

08/11/2026

❤️🫶❤️

Odayin’s 25th anniversary is a year-long celebration and our next stop is Chicago! Join us on September 24th for our Big Heart (Birthday) Bash, a grown-up birthday party with a purpose with live music, piñatas, a magician, and more!

Come raise a glass, make memories, and celebrate 25 years of giving heart heroes a place where they truly belong. The event is a little fancy and a little casual, and in a fun new venue with space to mingle indoors and out on the patio. We can't wait to party with you!

The celebration is from 6-9pm and includes:
-A delicious dinner and hosted bar
-Live music, cotton candy, and piñatas
-Roaming magic by Dr. David Wax
-A 360° photo booth to capture the fun
-Fantastic silent auction and interactive games
-An inspiring program hosted by Chris from The Morning Mix on 101.9 The Mix

Individual tickets are $125 and the deadline to purchase is September 13th.

08/01/2026

An incredible opportunity to get the training and experience needed to make a difference!!

As a member of the Every 100th Heart Coalition, Mended Little Hearts is excited to share a new opportunity to get involved in CHD advocacy.

Every 100th Heart is now recruiting the first cohort for the CHD Champions Network, a national
community of patients, families, clinicians, and advocates working together to make CHD a
national priority.

As a CHD Champion, you'll receive advocacy training, connect with policymakers, and help
ensure the CHD community's voice is heard at the state and federal levels. No previous advocacy
experience is required, just a passion for making a difference.

🫀 Commitment: Approximately 2-3 hours per month
📅 Application deadline: August 21, 2026

Help shape the future of congenital heart disease advocacy.

Learn more and apply: https://every100thheart.org/chd-champions/

07/26/2026

Such a wonderful event providing fun engagement opportunities for families cared for by Lurie CCU to connect outside the hospital walls.

🎉 CCU patients and families, the CCU BBQ is back! 🍔☀️

Registration is now open for all patients who have ever been admitted to the CCU. Check your email for your invitation and register to join us for a fun day of food, family, and connection! ❤️

📧 Didn’t receive your invitation? Email [email protected]